[SPAM]Re: Re: Making People Aware

[Guest guest]

My son graduated from his DOC Band this past December. He wore his band for 12 weeks, and during those 12 weeks I can't tell you how many people I was able to educate about plagio. I had so many people come up to me and ask about his band. I would love to bring more awareness to the public about plagio. If you do decide to write a letter, let me know and I will join in.

Lorie

Mom to Spencer and Alizabeth 14 months

Spencer- Left Plagio- DOC Band Grad 9/07-12/07

Glendale, AZ

Re: Making People AwarePlagiocephaly Date: Thursday, June 19, 2008, 4:12 PM

Hi,I've been in this group for about 2 yrs. The idea of Oprah (or thoselike her) comes up every few months and quite a few people have triedto get her (or her staff) interested, without any succes. I haveheard of local news stations doing a story, but that is about it.I do wish you luck with this, since I would love for more people to beaware of the issues around plagio and treatment options.-christinesydney 2.5 yrs starband grad>> My daughter is now 8 months old. I noticed that she had a flat > spot before she was even a month. Her doctor told me she would grow > out of it. I'm sure you've all heard this before. She didn't and it > got worse. Two doctors and 3 months later I finally found out what > was happening on my own. She was diagnosed with severe brachy and a > moderate case of plagio. Thanks to posts like this one I found out > about repositional therapy and learned that my conserns were real. I > found someone to make her a cranial band and after 2 months she's > showing improvment. Her doctor thinks it's a torture device. I'm > finding that there are far more children that suffer from this than > the public is aware of. Since my daughter has been wearing her band > people have approached me and asked me about it. Some have even told > me that they wish they had known because they have children, > grandchildren, nieces, nephews, the list goes on. All have the same > problem and it was never treated. > > This brings me to the reason for my post. Maybe it's a long shot, but > perhaps if all the parents got together and wrote letters and sent > pictures to someone like Oprah then maybe it would open the publics > eyes. People need to be aware of the fact that this is a growing > problem and doctors aren't treating it. So far there are 2 other > people from the Older Plagio group that are willing to write leters. > Please consider it. I look forward to any feed back you may have.>

[Guest guest]

This is a great idea. I would LOVE to make people more aware. Let me know who and I will write a letter also.

Lorie

Mom to Spencer and Alizabeth 14 mo

Spencer- Left Plagio- DOC Band GRAD 9/07-12/07

Glendale, AZ

Re: Making People Aware

I also think that is a great idea. Let us know if there is anything we can do. Getting this out to as many people as possible is so important. So many don't know of it until it's already happening.> >> [portion of post deleted]> > This brings me to the reason for my post. Maybe it's a long shot, but > > perhaps if all the parents got together and wrote letters and sent > > pictures to someone like Oprah then maybe it would open the publics > > eyes. People need to be aware of the fact that this is a growing > > problem and doctors aren't treating it. So far there are 2 other > > people from the Older Plagio group that are willing to write leters. > > Please consider it. I look forward to any feed back you may have.> >>

[Guest guest]

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> From: Gardner <tinkmommyof3>

> Subject: Re: Re: Making People Aware

> Plagiocephaly

> Date: Sunday, June 29, 2008, 2:48 PM

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> i think this idea is awsome and i would love to be included. i was

also wondering maybe Ellen Degenrese would be willing to do on show on

this. i have a number to a guy at her show so if you all think its

sounds good i will try to get a hold of him.

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> Bradley 14 months ( starbamd for 5 months)

> Madison 3 yrs

> 7yrs

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> Re: Making People Aware

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> I wrote to Oprah. We'll see what happens!

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