TP surgery and Cincinnati

[Guest guest]

Hi Chrissy,

I was just looking at the Pittsburgh site (re. hereditary

pancreatitis) and I clicked on the link to " Other centres " . One was

the Cincinnati one. I THINK the link for the Cin one is :

www.ucpancreas.org/ at least that seemed to be the address that

appeared on my address bar while I was on the site.

You've probably already seen it but it looks very impressive. If you

haven't seen it I'm sure you'll be somewhat reassured. It's

obviously one of the three leading US centres for TP with ICT and an

impressive pancreatic centre all round.

Thanks for the explantion about the tubes. Sounds rough, I have to

say. You're right that I have a choice although the 40% risk of panc

cancer does make a difference when I'm thinking about this one! I

know you have not been given a choice but I hope that means your

docs are sure it is the best thing for you and therefore your

condition post-op will compare very favourably with your condition

now. They wouldn't be sure that the TP was the right thing unless

they really thought it would very much improve your condition.

People often speak about getting their life back after the TP. This

is what I hope for you.

Yes, I am very grateful for the pain-free holiday. I'm pain-free

again to-day despite yesterday's excruciating pain. I'm trying to

cut down on eating because I remember that in Nov. 2002, before I

knew I had CP and when the symptoms were pretty bad all the time, I

went on a slimming diet and everything improved drmatically for a

couple of weeks. Maybe if I cut down just a bit on portions it would

help to keep the pain at bay. The thing is, I don't really have the

malabsorption pains and symptoms any more.....the Creon deals with

that.....but the upper-abdominal pain, which is when the panc itself

is inflamed, still comes from time to time. That's the worst pain of

all, in my case, and it decreased a lot for a few months but seems

to be on the prowl again now. Still, time will tell.

Afraid we didn't take pics at the opera. There might be one when we

were on the Eye (NOT dressed up though!). I'll have a look. Jim took

a superb one of the Houses of Parliament, Big Ben etc. from the Eye

but we're not on it.....that's one reason why it's so good!!

Take care Chrissy and have a look at that site. I'm going to! It

looked very good but I left it right away to give you the link in

case you hadn't visited it. I'm going back to it now.

With love,

Fliss