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Hi to Everyone,

I hope this finds everyone doing well today!! It has been a while since I

have posted but am in need of some information/advice and I know from past

experience that I can count on this group to help me out. I have several

questions, so please bare with me... I flew out to see Dr. Trentham and he

changed my medications so that is what my first set of questions pertain to.

He took me off of Methotrexate and put me on Arava. After researching

this medication I have concerns about the side effects and the recent

warnings that have been posted about it. I am also having trouble

understanding the benefits it would give to a person with RP-- especially

someone with my primary symptoms which are Tracheal and Cardiac Involvement.

So, I would be interested in hearing from anyone who is taking or has

taken Arava and what their experience has been with it. I am also on the

waiting list for Enbrel, so I would also like to hear from anyone who has

taken both medications. I am also trying to find information from anyone

who has experienced calcification of their trachea and tracheal cartiladge.

My X-ray that was taken in January showed this and I am having difficulty

finding any information about it. I would greatly appreciate any

information that I can get. Please e-mail me back at

angelhearts61@... since I am still off mail!!

Thank you,

Kathi

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  • 7 years later...

> I am questioning if Crohn's is soley to blamed for the state of my > health. Since joining the blog, I have learned how candida can overlap > with stomach issues, and seems to be very common for many with IBD.I am > going to get tested on Monday for it and have my adrenals and thyroid > tested. Anything else I should have tested? I noticed this morning > that I had mucus in my stool, what could this be?> Thanks you,>> Randi> Crohn's 4 years, no meds> SCD 2 months>Mucous in the stools is very common with Crohn's, and it doesn't necessarily directly relate to specific foods you're eating. I read recently exactly what causes it but can't remember (and can't find the info at the moment); as I recall it relates to the intestines' handling of/reaction to inflammation.n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

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Randi,My husband has UC and he had the mucus as well. It part of the normal layering next to the intestinal wall--a kind of protector. When there is irritation the body produces more to protect the wall. It can produce so much that it inhibits absorption too. My husband always saw it as a sign of deterioration in his condition.I would also get your ferritin checked (storage iron).AmeliaHusband UC 9 years, SCD 20 monthsLDN 3 mgTo: BTVC-SCD Sent: Sat, February 20, 2010 4:23:57 PMSubject: Information please

I am questioning if Crohn's is soley to blamed for the state of my health. Since joining the blog, I have learned how candida can overlap with stomach issues, and seems to be very common for many with IBD.I am going to get tested on Monday for it and have my adrenals and thyroid tested. Anything else I should have tested? I noticed this morning that I had mucus in my stool, what could this be?

Thanks you,

Randi

Crohn's 4 years, no meds

SCD 2 months

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