Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Hi everyone, I am getting information from my cf coordinator at our cf clinic that does not seem to go along with what others have experienced. First, Zach is having a lot of ear infections. I was told that cf kids really do not get many ear infections because their immune systems are so revved up that they can fight these infections off easily. I think she was politely telling me that his ear infections are not cf related, but I insisted on an ENT consult anyway and they are humoring me. Secondly, Zach is once again having large yellow mushy stools. I told the cf coordinator that we had modified Zach's diet and he had gained weight and had formed stools. But since Friday he is having a lot of absorption problems. She was alarmed that I had restricted Zach's diet because as long as cf people take their enzymes they can eat anything they want. Long story short we are starting a 72 hour fat stool study tonight. She was amazed that I agreed to this, but I will do anything to make my baby feel better. Period. I think she is using some flawed logic with some of her assumptions and I think she is getting tired of me. What are your thoughts????? Sara - mommy to Zach 19 months wcf Quote Link to comment Share on other sites More sharing options...
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