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VERY CONFUSED

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Hi everyone,

I am getting information from my cf coordinator at our cf clinic

that does not seem to go along with what others have experienced.

First, Zach is having a lot of ear infections. I was told that cf

kids really do not get many ear infections because their immune

systems are so revved up that they can fight these infections off

easily. I think she was politely telling me that his ear infections

are not cf related, but I insisted on an ENT consult anyway and they

are humoring me. Secondly, Zach is once again having large yellow

mushy stools. I told the cf coordinator that we had modified Zach's

diet and he had gained weight and had formed stools. But since

Friday he is having a lot of absorption problems. She was alarmed

that I had restricted Zach's diet because as long as cf people take

their enzymes they can eat anything they want. Long story short we

are starting a 72 hour fat stool study tonight. She was amazed that

I agreed to this, but I will do anything to make my baby feel

better. Period.

I think she is using some flawed logic with some of her assumptions

and I think she is getting tired of me.

What are your thoughts?????

Sara - mommy to Zach 19 months wcf

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