Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Dear friends, I haven't been keeping up with what's going on and am nearly 1000 messages behind. Partially, it's been because of my own health and partially because I've been trying to learn about cystic fibrosis since my niece was diagnosed back in September. I joined 2 groups for that and it keeps me busy during the times I am able to stay at the computer. As you all know, sometimes it's very hard to sit at the computer. I've been having more and more of those times. Anyway, for those that " know " me, I mainly wanted to tell you that I finally have an appointment in Boston at Brigham and Women's with a world-renowned doctor. The appointment is in just 2-1/2 weeks. I've been trying to track down films, etc. I called 1 hospital and they purge films after 6 yrs! So, no hope of getting those. I still have calls to make, but it looks like I might be going with just my most recent CT and ultrasound films and reports along with reports from most of the other tests and bloodwork. I really hope this guy has some useful thoughts and/or suggestions. I wish you all well and hope to be more active soon. It's just that my niece is so important to me and I want to learn all I can. My best to all, Jill Quote Link to comment Share on other sites More sharing options...
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