Our New Front Page Star.....ALEX!

[Guest guest]

Hi everyone!

Please welcome our newest Front Page Star, ALEX! If 's mommy is

still with us, please share his plagio story.

Thanks!

[Guest guest]

Hi everyone, I'm 's mommy. I haven't posted here much since

came out of his helmet but I still lurk alot.

was born at 36 weeks by c-section and at first had a perfectly

round beautiful head. By 6 or 7 weeks we started noticing that his

head was a little flat in the back, but honestly I didn't think

anything of it. At his 2 month doctors appt I asked our ped about it

almost as an afterthought, and she seemed way more concerned about it

than I expected and recommended we see go to the plagio clinic at our

local children's hospital. Of course I was wracked with guilt thinking

I had screwed up my child by not giving him enough tummy time and not

recognizing how severe his deformity was. I called that day and they

couldn't get us in for 3 months! My husband and I are both in the

medical field and he actually works at that hospital, so he pulled

some strings and they fit us in a month and a half.

So over the course of the next 1 1/2 months we worked on tummy time

and tried aggressive repositioning and his flat spot continued to get

worse. When we went for his eval, they confirmed that he had severe

brachy (CI was 98%) with slight right plagio. He had significant

frontal bossing with a big bump on the right side of his forehead. We

were sent to the local Hanger shop to be fitted for a helmet (at this

time I had no idea that there were any other options for helmets). I

ended up being very pleased with our experience with Hanger- they were

very professional and thorough and our orthotist was wonderful. Our

insurance covered slightly over half of the cost which was helpful.

So went into his hanger helmet at just over 4 months of age and

he did great with it! Honestly it was so much easier and went so much

better than I thought it would. We were so lucky that he tolerated it

well; he never had any rashes or skin issues and it didn't disrupt his

sleep at all. We saw results so quickly. Its been a while so I don't

remember the exact numbers but by his first measurements his CI had

gone down to like 92 or 94%, and the lump on his right forehead had

diminished significantly.

By three months in the helmet the results were slowing plus he was

about to outgrow it- there was hardly any foam left on the forehead.

At 7 1/2 months old and after 3 1/2 months in the helmet, we decided

to call it a day. 's CI got down to 84%, his assymetry and frontal

bossing resolved completely and he looked like a different kid! His

head looks so much more proportioned now. Of course its still not

perfect but we're happy with the way he looks and its normal enough

that no one really notices except for me. has been out of his

helmet since the end of January. He's now almost 14 months old and is

doing great! We're newly pregnant with #2 now and I'm crossing my

fingers that we can avoid this whole issue with our next baby.

As a side note, about 3 1/2 months old we started letting sleep

on his tummy. Not because of the brachy, because the poor kid

couldn't sleep more than an hour at time on his back ever. I knew the

risk of sids was higher but he was SO miserable since he just couldn't

sleep. Once I put him down on his tummy he immediately started

sleeping 11 hours every night, getting up maybe once. He was like a

new baby after that- happier, eating better. I was so worried about

how he would do with tummy sleeping and the helmet, but it was never

an issue at all.

, mom to , 14 months

Brachy, Hanger grad 1/08

>

> Hi everyone!

>

> Please welcome our newest Front Page Star, ALEX! If 's mommy is

> still with us, please share his plagio story.

>

> Thanks!

>

>

[Guest guest]

Hi -

Thanks for sharing your story! The amount of correction sounds

fantastic and it's great to hear did so well in his helmet.

Congratulations on baby #2!

Jake-22m (tort resolved/rt plagio/DOCBand #2 6 weeks)

Jordan-4

> >

> > Hi everyone!

> >

> > Please welcome our newest Front Page Star, ALEX! If 's mommy

is

> > still with us, please share his plagio story.

> >

> > Thanks!

> >

> >

>