weight gain help

[Guest guest]

Hi all. I noticed an email about weight gain troubles and it reminded me

that I haven't mentioned on here how gained 10 pounds last month.

She has undergone some major changes lately. First of all, we changed CF

Clinics. We now go to UAB at Birmingham. On our first visit (supposedly a

checkup, get to know you kind of visit) they put her in the hospital since PFT's

were very low. They asked if we minded if they made a few changes to see how it

would affect her. SURE!! That is what we were there for. She had been kind

of at a stand still with her weight for about a year and her PFT's were not as

good as before. I was HOPING something could be done.

It could, in this case. They changed her enzymes from Pancrecarb back to

Creon. They gave her Prevacid to get rid of the stomach acid so the enzymes

didn't break down too early. I really think the combination of the two of these

changes are what caused her to gain at least half of the weight she gained

during that 2 weeks stay. She weighed 56 pounds when she was admitted. She

left

the hospital weighing 64 pounds two weeks later. has always had

trouble gaining weight. She has a Mickey button and gets her Nutren 2.0

(supposedly 3,600 calories) everynight. It just wasn't putting the weight on.

She has

continued to gain weight since coming home from the hospital. We went back

for a check up a week ago and she has gained 4 more pounds. She has gained over

10 pounds in 5 weeks. That is so NOT normal for her. They also started her

on zithromax (1 tablet 3 days a week) and has not had any problems with that

either. I don't know if that has anything to do with the weight gain or not,

but I am sure the Prevacid has. The different enzymes probably have too. Her

stool is actually normal for the first time in her life. I didn't know it was

possible.

Well, I'll quit rambling. Just wanted to pass on some hopefully helpful

information.

Take care everyone. We are off to play softball!!!! Wish us luck.

Sue Pettit

mom to (16 wocf), (12 wocf), and (11 wcf) diagnosed at

8 days of age at LeBonheur Childrens Medical Center in Memphis, Tennessee