Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 I was on cff.org and there was a letter telling parents,patients not to use this because it wasn't fda approved and that it still is in the early processes of finding out the benifits and side effects. Now my question is What is this, it was reported as an erbal supplement but is considered a drug? Can it be bought at a nutrition store? If it is such a promising lead why arent more doctors looking into it?And if cf patients are lacking in this department, why not offer it has a supplement like they do for all the vitamins and minerals that cf patients are low in?I read about that woman who is the mother of 3 children who use it and are doing great, I also read that cf patients have alot of inflammation caused by the body itself, Can anyone explain it to me. I guess even dealing with cf for 2 years, I still don't understand it all. Anyone care to jump on the bandwagon and explain to me =). Thankyou , mommy of 5 years old w/cf/adhd and 2 years old no cf Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.