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Hi Tull,

I was really interested in your last post about TP without auto

islet cell transplant. I am considering that operation at the

moment. What Dr Sutherland says seems to coincide exactly with what

my own panc surgeon/specialist told me. He said most patients can

cope well with their diabetes after the TP (without ICT) but there

is a small risk of developing " brittle " diabetes. He said exactly

the same things as Dr S about the pain issues as well.

I was wondering whether the degree of " brittleness " depended on

whether or not one was already diabetic before the surgery, but my

surgeon didn't mention this (I forgot to ask him directly but will e-

mail him to check it out again) and from what you say, Dr Sutherland

didn't mention it as an issue either.

My main reason for contemplating the operation is to prevent the

possibility of pancreatic cancer as I am in a very high risk group.

(I have lifelong hereditary pancreatitis and am now 57.) Did Dr

Sutherland mention anything about this? My panc specialist said that

my pain levels/frequency at the moment were not quite as bad as

those he normally sees in patients to whom he offers the TP (because

I am still working and eating etc.) but my cancer risk was so high

that he was willing to perform the operation if I wished.

Your post was so informative and the most balanced information on

this matter that I've seen on a board yet!

Thank you very much Tull.

Best wishes,

Fliss

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