New member/ mail was sent to wrong site, so I'm enclosing it here.

Posted February 5, 2002 · February 5, 2002

Subj: [Polychondritismed] Pending RP Diagnosis & VERY anxious!

Date: 2/5/02 10:18:11 AM Pacific Standard Time

From: birdiea@... (a_birdie2000)

Reply-to: <A HREF= " mailto:Polychondritismed " >

Hello:

I actually found this group last August, when my ears (both sides)

became swollen and the specialist said I might have RP. However two

weeks later, the Dr. said: " Not so, you're lab results are all

negative " .

Needless, to say, greatly releived, I stopped persuing any info on

this disease.

In Dec. I developed a VERY bad " cold " , which 3 wks. later finally

required antibiotic treatment to get me through Xmas.

By Jan. 3/02 I had VERY SERVERE soreness of the throat, antibiotcs

again,,,,,,no sucess.......then wheezing, laboured breathing, etc. &

Dr. sent me from his office to hosp. emerg., (afraid my airway might

close off with swelling). My throat was scoped etc.

Long story short sent home on prednisone for one week, off it for 2

weeks to the day & right back to Dr. presenting with same symptoms.

My family Dr. now thinks I may truly have RP & is sending me to Eaar

Nose Throat specialist (Feb.26/02), & is sending report from

specialist who " diagnosised POSSIBLE RP " last July for him to review

BEFORE he exams me the end of this month.

I took my last Prednisone (50mg.) today (7 day course), & I still

definitely feel " a rough LUMP in my throat " , My sinus feel full-

nothing there to blow out, & my voice " comes & goes " .

I am worried, frustrated, & eager to learn ANYTHING I can, from those

who may have " walked my walk " . I do believe in the " medical world " ,

doing as your Dr. asks (IE: taking meds etc.), but I also truly

believe in HOLISTIC HEALTH, in that we should do whatever we can to

better our " lifestyle "

I am a grandmother, we live a quiet, " comfortable " life. Are there

changes I can make in my diet, exercise,(very limited I must admit!),

environmental etc?

Any help you can give me would be most appreciated.

Thank you.

Sent on the wings of a Robyn!

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