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Cool,

Another reason I would love to go on IV for a long term, I have to pay

for a perm every three months....what a savings......

Hugs,

Marta NJ

--

>From: June <CADDEPT@...>

>

>Hey, speaking of hair....I have always had straight hair, but after 18

>months on/off IV abx's, the whole back of my head suddenly has curly

>hair....weird.

>

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Me too! Used to be blonde, after children, turned brown (with natural red

highlights though, does that count?) I'm 5'7 " and used to be pretty thin,

starting to approach chubby - but not short. Vicki, Md

-

>From: " Rodney A .Metzler " <rod@...>

>

>well I am here to blow your hypothesis! Blonde (natural thank you!) and

>5'8 " sorry guys! pepipony

>

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  • 2 years later...

In a message dated 2/21/02 2:38:53 PM Pacific Standard Time, seajay192002@... writes:

I have white fur too -- mainly up by my ears but it

does extend down ----kind of like an "aura" round my

round face!!!!!

I tried thinking of myself as a friendly sort of werewolf. Mine was like that, too; it shaved off very well and returned only once. I envy you being able to bake; I couldn't do that during early Prednisone because I couldn't follow recipes. With baking, as opposed to "a little this and a little that" cooking, you can't screw up. I think I could follow a recipe now, but I'm not sure, and I'm a little afraid to find out.

Harper

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I have white fur too -- mainly up by my ears but it

does extend down ----kind of like an " aura " round my

round face!!!!! At least it does diminish but when

you are feeling prednisonely fragile it is kind of the

last thing we need. Actually I do overcome alot of

stuff as I am quite a strong person mentally (I

think!) and tend to cope with most stuff --- I guess

I'd hate to miss out if something were discovered that

can be liver friendly and DIDN'T have so much trash

attached.

Am currently psyching myself up to do baking to fill

the tind for when these folk come home tomorrow. It is

now nearly lunchtime ----maybe I'll have a snack

first-------- THEN it will be time for a nap ----THEN

-----

well ------ we can always go and BUY something.

Have a nice day Love Caroline

--- flatcat9@... wrote:

> In a message dated 2/21/02 2:05:33 PM Pacific

> Standard Time,

> joangardaclaffey@... writes:

>

>

> > I wax, tweeze & bleach. I spend alot of time

> > on this. It's been almost a year since I stopped

> the

> > steroids and I don't have as much but I do still

> have

> > more than I had pre-steroid.

> > Jolene bleach works wonders for facial, arm and

> > shoulder hair.

> >

>

> Also, there's SurgiCreme? depilatory, which someone

> said is safe. And some

> hair can be removed with an electric razor without

> showing. I had fine,

> white " fur " on the tops of my cheekbones and beside

> my eyes, which was weird.

> It all went away, eventually.

> Harper

>

__________________________________________________

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  • 7 months later...

In a message dated 9/22/2002 5:27:09 PM Pacific Daylight Time,

rjenkins@... writes:

> Does anyone know if there is anything I can do to stop this? I am going to

> be bald if I don't do something!

Dear Rhonda,

I dunno if it's just me or what but I've been feeling pretty well after one

year on the timed release T3 except for continued hair loss and occasionally

feeling achey in my neck . My wholistic MD told me he thought my liver was

overloaded with bad estrogens and it was the underlying cause of these

symptoms. I felt a bit incredulous because it didn't seem possible. But I

had to admit my liver had been aching and getting worse for the past three

years.

So, I did a liver cleanse and I am using a couple of supplements my doc

ordered for me. One, indolplex, is supposed to dissolve estrogens built up in

the liver. The second, calcium d-glucarate, is made for detoxification

support. Both are made by a company named Tyler out of ville, OR, for

MDs, etc. I have seen them in a local pharmacy where you can get

professional vitamins and health supplements products.

On my own, I've added fresh lemon juice (sipped quick through a straw to get

it past the teeth) from 1/2 a lemon mixed with water every morning before

eating. And, knock me over! I'm feeling better! Plus, my hair loss is

diminishing and my neck aches less. So does my liver.

I don't know if something like this would address your problem. I would

never have thought of it on my own! I guess that's what my doc gets the big

bucks for!

Good luck whatever you try!

in LA

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In a message dated 9/22/2002 6:21:44 PM Pacific Daylight Time,

karlynn17@... writes:

> what are the benefits of drinking lemon juice?

>

,

I'm using fresh lemon juice temporarily to help my liver cleanse. It's also

supposedly good for helping dissolve kidney stones and cleansing the gall

bladder. But it's so highly acidic that it's a problem for your tooth enamel

if used over an extended period. That's why I'm drinking it through a straw

and then I chase it with water to rinse my teeth.

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Thanks for the tip about the lemon, I will have to go

out and get some (with a box of straws) do you have

the lemon in warm water or cold water? does it make

any difference?.

I have also felt less bloated and swollen on

prescription diuretics and also pro biotic drinks from

the store. I have a pro biotic drink each morning and

I feel so much better.

--- annah1149@... wrote:

<HR>

<html><body>

<tt>

In a message dated 9/22/2002 5:27:09 PM Pacific

Daylight Time, <BR>

rjenkins@... writes:<BR>

<BR>

<BR>

& gt; Does anyone know if there is anything I can do to

stop this? & nbsp; I am going to <BR>

& gt; be bald if I don't do something! & nbsp; <BR>

<BR>

Dear Rhonda,<BR>

<BR>

I dunno if it's just me or what but I've been feeling

pretty well after one <BR>

year on the timed release T3 except for continued hair

loss and occasionally <BR>

feeling achey in my neck . & nbsp; My wholistic MD told

me he thought my liver was <BR>

overloaded with bad estrogens and it was the

underlying cause of these <BR>

symptoms. & nbsp; I felt a bit incredulous because it

didn't seem possible. & nbsp; But I <BR>

had to admit my liver had been aching and getting

worse for the past three <BR>

years.<BR>

<BR>

So, I did a liver cleanse and I am using a couple of

supplements my doc <BR>

ordered for me. One, indolplex, is supposed to

dissolve estrogens built up in <BR>

the liver. & nbsp; The second, calcium d-glucarate, is

made for detoxification <BR>

support. & nbsp; Both are made by a company named Tyler

out of ville, OR, for <BR>

MDs, etc. & nbsp; I have seen them in a local pharmacy

where you can get <BR>

professional vitamins and health supplements

products. & nbsp; <BR>

<BR>

On my own, I've added fresh lemon juice (sipped quick

through a straw to get <BR>

it past the teeth) from 1/2 a lemon mixed with water

every morning before <BR>

eating. & nbsp; And, knock me over! I'm feeling

better! & nbsp; Plus, my hair loss is <BR>

diminishing and my neck aches less. & nbsp; So does my

liver. & nbsp; <BR>

<BR>

I don't know if something like this would address your

problem. & nbsp; I would <BR>

never have thought of it on my own! & nbsp; I guess

that's what my doc gets the big <BR>

bucks for!<BR>

<BR>

Good luck whatever you try!<BR>

in LA<BR>

<BR>

<BR>

[Non-text portions of this message have been

removed]<BR>

<BR>

</tt>

<br>

<!-- |**|begin egp html banner|**| -->

<table border=0 cellspacing=0 cellpadding=2>

<tr bgcolor=#FFFFCC>

<td align=center><font size= " -1 "

color=#003399><b>

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An alternative to lemon juice that is easier on the teeth and tummy is apple

cider vinegar. Given that most hypothyroids don't produce enough stomach

acid, this addition helps with digestion, too.

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  • 11 months later...

Tom - interesting subject, to some of us at least, and certainly for

myself. I have always been fascinated by hair, and was always very

envious of those who had more than I (which was almost everyone!).

Maybe it is that sign of masculinity that you suggest. I don't

know. Knowing what I know now after being diagnosed with primary

hypogonadism 1.5 years ago, and thanks to the wealth of information

in this group, I now suspect that I may have always been on the low

side of T production. Neither nut has ever been what I could call

large, and in fact, one has always been almost nonexistant. I wonder

if that is at least partly to explain why I was never as hairy as I

thought I should be.

Now, with AndroGel (10 gm/day for almost 1 year now), both nuts have

become firmer, even the questionable one; albeit, not larger (no

surprise there). What facial and (very little) body hair I had is

now denser. I am sprouting new hair in places I never had any

before! The new hair is kinda fascinating too - more like a young

guy's new hair...kinda soft. Depending on the situation, I

even " feel " hairy at times. My partner now calls me " Fuzzy " , which

is the best compliment since " Have you lost weight? " !

I have learned that even though many on TRT do report new hair

growth, that the rate of that growth varies wildly between

individuals. I also suspect that the T/E ratios we keep hearing

about are significant. I will wager that even in your case, that

with good TRT and some patience (order of years maybe), even you will

sport that full beard.

Cheers.../Dale

> > Did you ever have any hair loss before being daignosed? I have

some

> > hair missing from my face--especially the cheeks and chin area. I

am

> > usually clean shaven, so it's not real noticible. But I can

clearly

> > see places where hair is no longer growing. Additionally, while I

> > keep my chest, arm pits, and stomach area shaven, I have noticed

that

> > it's not growing back anywhere near the regular rate. And,

finally,

> > my legs are very strange regarding hair. I don't know if

testosterone

> > affects leg hair, but I have NEVER had any hair grown on my legs

on

> > or below the calf---not even as a hormone laden youth. I know for

> > certain that it's not socks becuase all the ones I wear only go

up to

> > the ankle, and during the summer I don't wear them. It just

makes me

> > think that I never had enough testosterone to make my leg hair

grow?

> > That's probably not related at all, but I never thought about

things

> > like that until recently.

> >

> > Have any of you had experience with hair loss or non-growth?

> >

> > Markus

> >

>

> >

> >

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I guess I'm the odd man out - at last count my T was 210, but most of

my adult life I've had a full beard (now just a goatee), and I'm the

hairiest memeber of my family - hairy chest, hair all over my back

and stomach.

BUT - wouldn't you know it - I have very little hair on my head.

Usually a sign of T conversion to DHT, but I don't think I have

enough T to actually do this.

I do like being hairy, though, and my !!new!! girlfriend likes it

too...

Jim

> > Did you ever have any hair loss before being daignosed? I have

some

> > hair missing from my face--especially the cheeks and chin area. I

am

> > usually clean shaven, so it's not real noticible. But I can

clearly

> > see places where hair is no longer growing. Additionally, while I

> > keep my chest, arm pits, and stomach area shaven, I have noticed

that

> > it's not growing back anywhere near the regular rate. And,

finally,

> > my legs are very strange regarding hair. I don't know if

testosterone

> > affects leg hair, but I have NEVER had any hair grown on my legs

on

> > or below the calf---not even as a hormone laden youth. I know for

> > certain that it's not socks becuase all the ones I wear only go

up to

> > the ankle, and during the summer I don't wear them. It just

makes me

> > think that I never had enough testosterone to make my leg hair

grow?

> > That's probably not related at all, but I never thought about

things

> > like that until recently.

> >

> > Have any of you had experience with hair loss or non-growth?

> >

> > Markus

> >

>

> >

> >

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Jim,

I've been hairy too. My primary hypo probably came late...reckon I became

infected with HIV when I was 43; I had full beard/moustache before then. I

don't know how much is know about onset of hypogonadism in HIV+ men, but I

would guess that it doesn't occur immediately and perhaps correlates with

stage/severity of disease. I reckon my HIV infection was picking up

momentum in 1997, when I was 59, as in May 1998 I had double digit T4 cells

and viral load ~500,000 copies/ml and developed frank HIV encephalopathy

July, 1998.

At that time I was unaware of link between HIV as cause of primary hypo...so

I can't remember if my beard grew more slowly, etc.

I've never liked shaving! My last winter in Chicago, '94, I let my beard

grow....it covered my throat and was best protection from cold, I looked

like " Gabby " . Now when I shave, maybe every other day if I have a

social function, I use my Wahl professional barber's clippers without any

" guard " . When I trim my beard/moustache ~7-10 dys I use #2 guard. I've not

paid for a haircut in ~15 yrs....I do my own using #2 guard.

Hair is very insulating from cold...when I visited my b/f in upstate NY over

Christmas my normal wear was shorts as my hairy legs protected me from cold;

I prefer shorts to long pants.

Just my experiences....

OR eon

Re: Hair

I guess I'm the odd man out - at last count my T was 210, but most of

my adult life I've had a full beard (now just a goatee), and I'm the

hairiest memeber of my family - hairy chest, hair all over my back

and stomach.

BUT - wouldn't you know it - I have very little hair on my head.

Usually a sign of T conversion to DHT, but I don't think I have

enough T to actually do this.

I do like being hairy, though, and my !!new!! girlfriend likes it

too...

Jim

> > Did you ever have any hair loss before being daignosed? I have

some

> > hair missing from my face--especially the cheeks and chin area. I

am

> > usually clean shaven, so it's not real noticible. But I can

clearly

> > see places where hair is no longer growing. Additionally, while I

> > keep my chest, arm pits, and stomach area shaven, I have noticed

that

> > it's not growing back anywhere near the regular rate. And,

finally,

> > my legs are very strange regarding hair. I don't know if

testosterone

> > affects leg hair, but I have NEVER had any hair grown on my legs

on

> > or below the calf---not even as a hormone laden youth. I know for

> > certain that it's not socks becuase all the ones I wear only go

up to

> > the ankle, and during the summer I don't wear them. It just

makes me

> > think that I never had enough testosterone to make my leg hair

grow?

> > That's probably not related at all, but I never thought about

things

> > like that until recently.

> >

> > Have any of you had experience with hair loss or non-growth?

> >

> > Markus

> >

>

> >

> >

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  • 3 months later...

I would also like to know the answer to this..... also, is it just synthroid

or is levoxyl going to give the same results?

----Original Message Follows----

From: " mspac99 " <mspac99@...>

Reply-hypothyroidism

hypothyroidism

Subject: Hair

Date: Wed, 31 Dec 2003 02:42:45 -0000

Hi, I am a member of this group, but never seem to have time to

follow much of it. I have been taking synthroid for almost 20 years.

I can't say that I notice any difference if I take it or forget it.

I don't notice being tired or any of the other complaints I hear

about, only get tired when I should be tired. HOWEVER,

I notice that my hair has been thinning out and when I mentioned it

to the beauty operator, one said it happens when you get older and

the other said that is just normal fallout. But it isn't. I am

definitely getting thin hair. I am wondering if it is caused by

hypothroidism or by synthroid. I am wondering if I should see my

doctor or a specialist, a dermatologist or who. I have always had

very thick hair, this is happening only lately. Would appreciate

any replies. mspac

_________________________________________________________________

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Hi, I have had the same problem with my hair, I was on Armour

however for the first 8 months of my treatment. I switched to

Synthroid because the Armour wasnt helping. Synthroid has

resolved all of my symptoms for the most part except for the

hair loss! In fact it seems to be a bit worse now.

What is it about this disease and hair? there isnt much

available information on it. I have seen a dermatologist, and

she tells me that the last thing to resolve will be this.

It can take up to two years! Arrrrrgggg! I will be bald by then.

I have been on meds for almost a year.

But, I'm certain I have had this condition for longer.

She assures me that I will not lose it all, but you couldnt

prove it to me....

chriss.

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Hi ! My mom is being treated for hypothyroidism. Her hair didn't start

falling out until AFTER she started taking Synthroid.

I never had much of a problem with that on Levoxyl. My eyebrows were falling out

some, but since I don't wax or pluck them (like that natural look) they were

pretty thick. they don't look bad at all.

my hair fell out a little before I was diagnosed, but it wasn't like it was a

huge amount.

take care! Hugs and happy near year! Sheila

K a r e n P <karlynn17@...> wrote:

I would also like to know the answer to this..... also, is it just synthroid

or is levoxyl going to give the same results?

----Original Message Follows----

From: " mspac99 " <mspac99@...>

Reply-hypothyroidism

hypothyroidism

Subject: Hair

Date: Wed, 31 Dec 2003 02:42:45 -0000

Hi, I am a member of this group, but never seem to have time to

follow much of it. I have been taking synthroid for almost 20 years.

I can't say that I notice any difference if I take it or forget it.

I don't notice being tired or any of the other complaints I hear

about, only get tired when I should be tired. HOWEVER,

I notice that my hair has been thinning out and when I mentioned it

to the beauty operator, one said it happens when you get older and

the other said that is just normal fallout. But it isn't. I am

definitely getting thin hair. I am wondering if it is caused by

hypothroidism or by synthroid. I am wondering if I should see my

doctor or a specialist, a dermatologist or who. I have always had

very thick hair, this is happening only lately. Would appreciate

any replies. mspac

_________________________________________________________________

Take advantage of our limited-time introductory offer for dial-up Internet

access. http://join.msn.com/?page=dept/dialup

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hi & welcome! here's a link you can check out...lots of links for info about

hypothyroidsim and hair loss.

http://search.atomz.com/search/?sp-q=hair+loss & sp-a=sp10016740

Happy New year! sheila

mspac99 <mspac99@...> wrote:

Hi, I am a member of this group, but never seem to have time to

follow much of it. I have been taking synthroid for almost 20 years.

I can't say that I notice any difference if I take it or forget it.

I don't notice being tired or any of the other complaints I hear

about, only get tired when I should be tired. HOWEVER,

I notice that my hair has been thinning out and when I mentioned it

to the beauty operator, one said it happens when you get older and

the other said that is just normal fallout. But it isn't. I am

definitely getting thin hair. I am wondering if it is caused by

hypothroidism or by synthroid. I am wondering if I should see my

doctor or a specialist, a dermatologist or who. I have always had

very thick hair, this is happening only lately. Would appreciate

any replies. mspac

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http://www.hotzehealth-wellness.com/8-

PointTreatment/Tests/TestLowAdrenal.htm

I don't know if synthroid does this as I have not looked into it yet,

but I will tomorrow---but I keep on hearing people getting worse on

their thyroid meds so I am looking deeper into adrenal sites to see

if I can find more info for you guys.

I just found this one, not as detailed as some of my past links--but

still easy to read---look at the bottom--adrenal problems equal hair

loss--so if you are untreated for adrenal you will continue to have

hair loss even with your thyroid meds. So it may not be the thyroid

meds at all?????

just a thought---tina

> I would also like to know the answer to this..... also, is it just

synthroid

> or is levoxyl going to give the same results?

>

> ----Original Message Follows----

> From: " mspac99 " <mspac99@y...>

> Reply-hypothyroidism

> hypothyroidism

> Subject: Hair

> Date: Wed, 31 Dec 2003 02:42:45 -0000

>

> Hi, I am a member of this group, but never seem to have time to

> follow much of it. I have been taking synthroid for almost 20

years.

> I can't say that I notice any difference if I take it or forget it.

> I don't notice being tired or any of the other complaints I hear

> about, only get tired when I should be tired. HOWEVER,

> I notice that my hair has been thinning out and when I mentioned it

> to the beauty operator, one said it happens when you get older and

> the other said that is just normal fallout. But it isn't. I am

> definitely getting thin hair. I am wondering if it is caused by

> hypothroidism or by synthroid. I am wondering if I should see my

> doctor or a specialist, a dermatologist or who. I have always had

> very thick hair, this is happening only lately. Would appreciate

> any replies. mspac

>

> _________________________________________________________________

> Take advantage of our limited-time introductory offer for dial-up

Internet

> access. http://join.msn.com/?page=dept/dialup

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you know I have not done a lot of research into this area, but I will

just say that for my daughter her hair is actually coming back in. It

looks a lot better than before. And you don't notice the scalp as

much so I am just hoping and assuming it's coming back.

Maybe the hair is adrenal and not just thyroid?? I do not know

because I have not done the homework in this area, I just assumed

that when she got regulated her hair would come back as well has her

period.

I know we are a bit too excited because we have the period back for

the first time (a real one too) but it does seem that most of all her

problems are dissipating.

Something for you guys to think about and look into if it can help.

tina

> Hi, I have had the same problem with my hair, I was on Armour

> however for the first 8 months of my treatment. I switched to

> Synthroid because the Armour wasnt helping. Synthroid has

> resolved all of my symptoms for the most part except for the

> hair loss! In fact it seems to be a bit worse now.

> What is it about this disease and hair? there isnt much

> available information on it. I have seen a dermatologist, and

> she tells me that the last thing to resolve will be this.

> It can take up to two years! Arrrrrgggg! I will be bald by then.

> I have been on meds for almost a year.

> But, I'm certain I have had this condition for longer.

> She assures me that I will not lose it all, but you couldnt

> prove it to me....

> chriss.

>

>

>

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K a r e n P wrote:

>I would also like to know the answer to this..... also, is it just synthroid

>or is levoxyl going to give the same results?

>

Identical effects but different dose, higher for the levoxyl. If you

change from one to the other, your doc should titrate the dose again or

at least calculate an equivalence.

Hair loss is definitely a symptom of hypothyroidism. You never mentioned

your dose. If it is low, you may not notice a one-day change. However, I

definitely notice if I miss a dose.

Chuck B

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Identical effects but different dose, higher for the levoxyl. If you

change from one to the other, your doc should titrate the dose again or

at least calculate an equivalence.

Chuck,

so if I changed from synthroid to levoxyl, you're saying that she should

have increased the levoxyl? I went from 112 synthroid to 100 of levoxyl

with the added 5 of cytomel. thanks

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My hair is coming back in too! I noticed today there are lots of

little new hairs at the hairline. :-)

I am taking DHEA and cortisol, so you might have a point there, Tina.

Jan

>

> you know I have not done a lot of research into this area, but I

will

> just say that for my daughter her hair is actually coming back in.

It

> looks a lot better than before. And you don't notice the scalp as

> much so I am just hoping and assuming it's coming back.

>

> Maybe the hair is adrenal and not just thyroid?? I do not know

> because I have not done the homework in this area, I just assumed

> that when she got regulated her hair would come back as well has

her

> period.

>

> I know we are a bit too excited because we have the period back for

> the first time (a real one too) but it does seem that most of all

her

> problems are dissipating.

>

> Something for you guys to think about and look into if it can

help.

> tina

>

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So Synthroid is stronger than Levoxyl? What about generic and other

brands, like Unithroid?

Just curious in how it compares. I use the Merck Levothyroxine now

instead of Synthroid (brand name here is Euthyrox} and I find it a

bit stronger than Synthroid, and the generic was the weakest of them

all.

Jan

>

> >I would also like to know the answer to this..... also, is it just

synthroid

> >or is levoxyl going to give the same results?

> >

> Identical effects but different dose, higher for the levoxyl. If

you

> change from one to the other, your doc should titrate the dose

again or

> at least calculate an equivalence.

>

> Hair loss is definitely a symptom of hypothyroidism. You never

mentioned

> your dose. If it is low, you may not notice a one-day change.

However, I

> definitely notice if I miss a dose.

>

> Chuck B

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K a r e n P wrote:

> Identical effects but different dose, higher for the levoxyl. If you

> change from one to the other, your doc should titrate the dose again or

> at least calculate an equivalence.

>

>

> Chuck,

> so if I changed from synthroid to levoxyl, you're saying that she should

> have increased the levoxyl? I went from 112 synthroid to 100 of levoxyl

> with the added 5 of cytomel. thanks

I was assuming no addition of T3, just changing the labels on the

synthetic T4.

Chuck

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