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temporal arteritis

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Dear Sandy: I have had a biopsy for TA, and it proved negative. I was told

later that they should do more than one to be a really definitive diagnosis

though, and they only did one on me. I had started losing my vision and it was

the ophthalmalogist who BLEW UP at the doctor I was going to as he was only

giving me some cream to put on my ear! He insisted that I be put immediately on

60 mg prednisone. Which I did, and then when we returned to Seattle for the

summer I went to my old internist at Virginia Mason who immediately diagnosed me

as having RP. He put me back on 60 mg as I had flown back east with my husband

when our son was in a terrible car accident and had forgotten to take my pred

with. Big mistake. I was told that one should never ever go off pred cold

turkey like that. We worked my pred down to 4 mg, but it took a year to do it.

Then after my husband died, the stress threw me back into flaring again, and the

rest is just history. Temporal arteritis is a very serious problem and needs to

be treated quickly with prednisone. The surgeon shaved a small patch of hair in

my right temple and I was sedated enough not to care what he did. The incision

was cut into the hair line and was cosmetically unnoticeable. This is probably

more info than you wanted, but it's one of the rare occassions when I'm willing

to write it down!! I shall say a little prayer that you remain under superb

care and get the problem under control. Love, Dagny

P.S. , someday when I'm in the proper mood I shall add my long story to

all the others about the experiences I had getting good care.

: When is your next appointment with Dr. Buckner? Mine will be 9:oo am

Tuesday, May 28. I'm sorry your trip to Hawaii was dampened, but glad you found

some relaxation.

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