feeling depressed need some up lifting thoughts

July 7, 2003

Hey gang, well we moved into an acutal house and out of base housing. I

should be excited right? We had our 3 month cf appointments today.

has lost 200 grams, Yoli hasn't gained at all but Phynix is 24 pounds and 10

ounces. I'm so frusterated. Yoli has a dry cough and runny nose. They

didn't do a thoat swab to make sure it wasn't PA. Just said to call back in

a few days if it didn't get any better and they'd just give her antibiotics.

She did sound clear though. I don't have anyone to talk to who half way

understands what we're going through. It's just so frusterating. It's

almost like they have accepted the fact that the kids are temerminal and are

just going to die. We've been to 2 different doctors in this clinic and

neither of them will answer my questions. The one we see now does but in a

round about way. They always ask if the kids have been running fevers, but

don't understand that in order for them to run fevers it has to be BAD!

never ran a fever with her phnemonia till it was half on lung and 3/4

the other. Or till she had the partial broncial collapse. I just feel so

frusterated and don't know what to do. I asked about the glutathione

therapy and they just gave me a hand out and that they don't recomend it

untill more research has been done, which is understandable. It just feels

like we've hit another brick wall. Will there ever be a light at the end of

the tunnel? Will the kids ever start gaining weight like they need to? If

anyone feels like chatting I'm on msn under gussuck107@... or

cfkids2@... also I have AIM under my465roses . Any words of

encouragment would be great. Thanks. Sorry for the depressing e-mail, I

have no were else to turn and who better to cry to than people who know and

understand what I'm going through.

Jen A. mom to 4 (almost 5), Yoli 3, and PHynix 1 all w/cf. Orion 3

months no cf.

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