update

[Guest guest]

Hi all, been a long time since I've posted here, but I've been

reading most of the posts. For those of you who don't remember me or

know me, I'm Carla. I've got 2 sons, Shay 4 1/2, ncf and Dallas, 2

1/2 wcf.

Dallas had been doing fantastic for a long time, but I've noticed

he's getting junky again. He goes for clinic next week, and I won't

be surprised if it's tune up time. He hasn't been in the children's

hospital for 2 years, so we're doing pretty good!

Other than that, not much new in my life. We moved last summer and

I've been so much busier in our new town. I find the people here are

so much more open to learning about CF and helping out when we need

it. Even the kids are great. They see that Dallas is special, but

it's no big deal to them. I wish everyone could be that easy going.

They see me give him meds, ask what they're for, then say " Oh, OK "

and keep right on playing!

The only problem we've had..which actually really surprised me, was

putting him in daycare. I went in and trained all the staff, and go

over everything everytime I drop him off. They still seem to be

totally clueless when it comes time for meds. It surprises me,

because we've got one of the top daycares in the country. I would

have thought they'd be better at dealing with special needs kids.

Anyone have problems like this? I don't have Dal in fulltime, just

one day every 2 weeks for mommy sanity time and playtime for him.

He's gotten extremely clingy and separation bothers him so much. I

decided he'd better get used to the idea of someone else having to

care for him, since he doesn't remember hospital stays. When he does

go in, I can't be with him 24/7.

Well, all in time I guess

I hope everyone is having a happy healthy day!

Carla