Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Here is a post from Marie-Pia. Please keep her and her children in your thoughts and prayers. , As i explain to , Coralie is back to Hospital for the weekend. She met a new team of dr. The chief of this team received us on thursday.He explained that he knew RP even he never had patient with it. He said the best for Rpers' is to prevent the flare.So AINS wasn't the best. The best is pred and imuran in the rignt dose. This is not benign drug but not so bad that a lot of patients and DRS. pretend So Coralie begin first with hignt dose of PRED. still the flare stop if the flare 'll not stop she' ll have to take both imuran and pred. The hardest is to find the right dose of each drug. Then after one year without flare she 'll decrease the dose . The same for Ben and nicolas. But less than Coralie because they 're not so ill than Coralie. Coralie was really hopefully. She say 'i'll be a normal teenager, I'll able to go to school each day , practise sport , i can beleive it " I'm a bit afraid of 2 thinks first it doesn't work enough second the side effects of this médications. Coralie'll back to the hospital on wednesday. A great news for all of us. The DRS; said it 's a great chance for all the RPers' that 3 of my children are ills.It 'll help the search. I'm not sure we're a lucky family LOL. As i ask karen, help me to make serene again this médications. Coralie started yesterday the hight dose of pred.BEn today and Nicolas 'll start in few time (he 'll wait and see first, he's got 19 y. so i'll choose ). Amitiés Marie-pia Quote Link to comment Share on other sites More sharing options...
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