Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Robin, The pain you describe is what I live with daily. The pain gets worse even if I walk around too much. Robin, it sounds like you also need a new Dr. I don't know how a Dr. can think pancreatitis can just go away because they say so. The dr. also needs realize that when the pancreas is inflamed and pressing against other organs it is going to hurt! Maybe we should make a law or something that any Dr treating pancreatitis has to have an ERCP done, so they can have an acute attack and then they can be more sympathetic to our day to day lives. I know I am blessed to have my DR.'s, my internal meds DR. is very knowledgeable with CP he interned at s Hopkins and spent allot of time treating CP patients. He will be the first to tell you that allot of CP patients are drug seeking but he says you can tell the difference between drug seeking behavior and someone that really needs help. In almost every medical record he has written regarding my CP he notes that " patient has no drug seeking behavior " I think this helps me with other Drs. also believing I don't want this disease for the Drugs. He also knows that I don't ask other Dr's for medications, I won't even take anything in the ER without his knowledge and OK. Anyways I think I got off the subject, I don't think you can be cured from this disease. Even if you haven't had an attack in a long time, you will always have to live your life a certain way. You will always have to avoid certain foods and alcohol, you will always have to live with the fear of an attack when you least expect it. Simi Valley, CA -------------------------------------------------------- This e-mail and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. If you have received this e-mail in error please notify the system manager: postmaster@... This e-mail and its attachments have been scanned for the presence of computer viruses, however it is always advisable to run a virus check on e-mails and attachments before opening them. -------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 > Hi : > > I had to write when I read your post. I just recently came from seeing > a specialist in PA. I have previously been diagnosed with cp, I have > undergone two ERCP's with stenting both times, as well as having a " slight " > stricture in my pancreatic duct. The report also said something about > beading in the branches or something. Anyway, I have been going under this > premise for the past three years. However, my right sided pain does not > seem to be getting any better at all. This is why my PCP sent me to a > different specialist. To make a long story short, he said I probably had > SOD, which should have been fixed by the sphincterotomy and stent. In his > opinion I didn't need the second stent. At this point, he doesn't think the > pain is from my pancreas at all, because it is a constant, vice- like grip > around my right side, that gets worse with activity, especially any type of > workout. He said pancreas pain usually comes and goes, since the pancreas > is an organ that moves and changes. So, even though I might have had > pancreatitis after the first stenting, he no longer thinks I do. So, I > guess that is either good or bad news. He is checking into it further, but > thinks I probably have fibromyalga, colitis, IBS or some duodenal > inflammation. > > What am I supposed to think? I am still waiting for his office to ask > for any other documents they need for him to come up with his > recommendation. But I can guarantee the way he was talking, he won't > address the pancreas at all. > > So, just so you know, you are not alone. This just goes to show how > little is none about this illness. > > Hope you (and I) get some answers soon. > > Robin R. > Sr. Production Planning Specialist > * (ext. 102) Robin Sometimes you can have a few attacks even, and never have another one. I've known people that had three or four, and never again...sometimes after stenting...although as I was told, stenting with sphincterotomies is a temporary solution to a permanent problem. I hope you find the answers and start feeling better...doesn't matter what you have, just as long as you can find a treatment and hopefully never another problem!!! Email me anytime. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Robin, Thank you. Re: LISA-CA Quote Link to comment Share on other sites More sharing options...
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