LISA-CA

[Guest guest]

Hi :

I had to write when I read your post. I just recently came from seeing

a specialist in PA. I have previously been diagnosed with cp, I have

undergone two ERCP's with stenting both times, as well as having a " slight "

stricture in my pancreatic duct. The report also said something about

beading in the branches or something. Anyway, I have been going under this

premise for the past three years. However, my right sided pain does not

seem to be getting any better at all. This is why my PCP sent me to a

different specialist. To make a long story short, he said I probably had

SOD, which should have been fixed by the sphincterotomy and stent. In his

opinion I didn't need the second stent. At this point, he doesn't think the

pain is from my pancreas at all, because it is a constant, vice-like grip

around my right side, that gets worse with activity, especially any type of

workout. He said pancreas pain usually comes and goes, since the pancreas

is an organ that moves and changes. So, even though I might have had

pancreatitis after the first stenting, he no longer thinks I do. So, I

guess that is either good or bad news. He is checking into it further, but

thinks I probably have fibromyalga, colitis, IBS or some duodenal

inflammation.

What am I supposed to think? I am still waiting for his office to ask

for any other documents they need for him to come up with his

recommendation. But I can guarantee the way he was talking, he won't

address the pancreas at all.

So, just so you know, you are not alone. This just goes to show how

little is none about this illness.

Hope you (and I) get some answers soon.

Robin R.

Sr. Production Planning Specialist

* (ext. 102)

* (fax)

robin.cox@...

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