Stents, anyone?

[Guest guest]

Thank you, everyone, for your assistance with my decision about the

laryngoscopic procedure....it sure helps to have the experience of fellow

RPers ease my mind.

Here's another question that I have re: stents.

VERONICA HARVEY, I hope that you're still on the group's listing, as I

lost your e-mail address,

I just got back from a follow up visit with my pulmonologist for my acute

bronchitis. He strongly suggests that I consider flying up to the

mainland to a clinic that's familiar in treating RP for a consult re: a

comprehensive assessment for possible stents in the future. I've had

tracheal involvement for the past 3 years,and, it seems to be

worsening....need to be prepared.

In Hawaii, there are NO surgeons who are familiar with bronchial -

tracheal stenting.

Carolyn went to the Mayo Clinic, but, I kinda hate to fly so far to

Rochester, Minnesota. I recall Harvey saying that she had to

check on her stents every quarter. But, I had forgotten where in San

Diego she went to.

If anyone would like to personally recommend their RP clinic/surgeon/doc,

I would appreciate finding out from you their names/phone numbers.

I'd like to give this info to my rheumy and perhaps set up a consult. I

did consult with Dr. Trentham back in 1993, and will also try to find out

who he recommends.

If I have to fly to the Mayo Minnesota clinic, I guess I could, but, it

would be so much easier ( & economical) to fly to the west coast instead

of the east coast, especially for follow ups.

Thank you so much! Aloha, karen