Diagnosis Age

[Guest guest]

Gale,

My daughter was also not diagnosed with CF until she was 11 - she was

practically dying from malnutrition and had been in and out of hospitals at

least 3 times a year since she was born. It took an intern in the middle of

the night to ask if she had ever been tested for CF and finally we knew our

enemy. I don't know why ..... we were furious. So was she. For years some

even said nothing was wrong with her. She's had horrible intestinal pains

and terribly smelly poop all the classic signs, coughing to the point they

sent her home from school every day, ect. ect. It was horrible. Things are

better knowing what we're up against now.

G

mom of sam 14 w/cf

Re: When do you tune-up?

> Hello,

>

> I hope that you don't mind my questions, but I was surprised to see

> that Blake was not diagnosed until he was 9 1/2 years old. Was Blake

> sick during the first 9 1/2 years of his life? Does his CF effect

> his intestines? Our grand daughter was diagnosed at 3 months old.

> By then, she was already extremely sick. She spent a total of two

> months in the hospital during her first year.

>

> Why do you think that Blake may need a tune up? Has he been sick?

>

> Thanks,

> Gale

>

>

> > My son Blake (12) has been diagnosed 2 1/2 years. He has only had

> > one tune up and I am really wondering if he needs another. We

> moved

> > last summer and have new Doctors. (Liked the old ones much better!)

> > Whenever he is sick they don't even want to see him, they just

> phone

> > in another perscription. Do the gage it mainly on PFT's?

> > Thanks for any feed back.

> > Shelia mom of Blake 12 w/cf and 3 no cf

>

>

>

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>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

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