In Diagnostic Limbo...STILL!

[Guest guest]

I won't go into too many details of our 1st visit to the CF Clinic.

Let's suffice it to say, it was disappointing. My daughter's

medical records never made it into the doctor's hands so they were

not prepared for our visit. The doctor said he would have liked to

perform an NPD on her, based on her history, but that he would be

unable on this particular day since the clinic was " backing up " and

time constraints were in place. I had spoken with his nurse 5 days

prior to this visit and she was well aware of Bethany's history. I

even expressed my desire to have this test done. No..they scheduled

a repeat sweat (her 3rd), instead...thankfully still " negative " .

My question for all of you is: If you had to choose one test, that

could give you either a positive or negative CF answer, which would

it be: The NPD or the Ambry?

Thanks in advance to any response!

Polly, mom to " nearly 9yo " in diagnostic limbo (positive for 1

mutation-DeltaF508)