Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 You go girl. Fight like hell and beat this monster. We are all in this together. We find strength in laughing together, crying together and praying for each other. I hope you find a Dr. who will work with you to control this NS thing we all have. God Bless and Keep you. If this doesn't make the sense I mint it is because my sig. other is talking to me at this time. Jackie from Wisconsin Thank you > Today is Thanksgiving Day in Canada and I just found this site and am > truly thankful. After reading all the posts, it still amazes me how vast > and unknown this disease is. The tricky part here in Canada is to find > someone who can help with neuro sarc. Pulmonary sarc seems to be well > taken care of but we have no specialists strictly dedicated to neurosarc. > I am in the process of being referred to s Hopkins because I am > nearing the end of my rope. I am not sure who said this, in one of the > posts on here...but she said something like.. " sarcoidosis is a battle and > sometimes it wins but mostly I win " and those words helped me immensely. > I do not want to lay in bed, in pain, and feel sorry for myself. I want > to get out there and kick some neuro sarc butt! Well...maybe I will have > my wonderful husband do the kickin but you get the idea! > Life is a blessing, and for that I am truly thankful. Take care mes ami > (my friends) > from the Centre of Canada > > > > ------------------------------------ > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > > CHATROOM LINK: http://www.sarcbuddies.com -- Open all the time..... > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2010 Report Share Posted January 25, 2010 Gay and Mara, Thanks for the info on the coconut/almond flours. I was offline this weekend … I think on Sunday I was experiencing some die-off or fighting a cold. I was headachey – but not a full blown headache, feverish and really tired. Pretty much slept most of the day and woke up this morning feeling fine. I am on my 28th day. I seem to be getting progressively better except for yesterday, Quote Link to comment Share on other sites More sharing options...
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