Re: Just started the diet on Monday

[Guest guest]

Have you looked on pecanbread.com? It is a very helpful site for parents. It is

designed for kids with ASD, so it is non dairy SCD, but it is helpful for people

on SCD who can also use the SCD yogurt and legal cheeses.

I believe ascorbic acid is a legal additive. It is vitamin C. I'm the only one

in my area on SCD, so I understand feeling lonely. This group has helped me so

much with this.

Feel free to post your questions. You are not alone.

PJ

>

> My 11yo daughter, , has UC. Not responding to prednisone and Lialda. I am

sure my doc is going to put her on an AZA or 6MP which I find scary, but

nessesary for now. Remicade denied by insurance. I already have 10000

questions. But lets start with a few. Can I use ascorbic acid as a

preservative? This is sad and a bit lonely. I don't know anyone locally doing

this diet.

>

[Guest guest]

Ascorbic acid is fine to use. What's local for you? I'm in PA, and there's people on this diet all over the place. There might be someone within walking distance and you'd never know!Ask away, you can't learn unless you ask. (or read other people's questions/answers)-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: smdsmom2008@...Date: Wed, 27 Jan 2010 19:37:34 +0000Subject: Re: Just started the diet on Monday

Have you looked on pecanbread.com? It is a very helpful site for parents. It is designed for kids with ASD, so it is non dairy SCD, but it is helpful for people on SCD who can also use the SCD yogurt and legal cheeses.

I believe ascorbic acid is a legal additive. It is vitamin C. I'm the only one in my area on SCD, so I understand feeling lonely. This group has helped me so much with this.

Feel free to post your questions. You are not alone.

PJ

>

> My 11yo daughter, , has UC. Not responding to prednisone and Lialda. I am sure my doc is going to put her on an AZA or 6MP which I find scary, but nessesary for now. Remicade denied by insurance. I already have 10000 questions. But lets start with a few. Can I use ascorbic acid as a preservative? This is sad and a bit lonely. I don't know anyone locally doing this diet.

>

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[Guest guest]

At 12:10 PM 1/27/2010, you wrote:

My 11yo daughter, , has UC.

Not responding to prednisone and Lialda. I am sure my doc is going to put

her on an AZA or 6MP which I find scary, but nessesary for now. Remicade

denied by insurance. I already have 10000 questions. But lets start with

a few. Can I use ascorbic acid as a preservative? This is sad and a bit

lonely. I don't know anyone locally doing this diet.

Ascorbic acid is Vitamin C, and is SCD-legal.

I know it's scary, embarking on a major change of lifestyle, but this

community becomes your local friends. And sometimes, you can find

people nearby through the list who are willing to help you.

SCD works. It isn't easy, but it works for many, many people. Meds aren't

necessarily bad: sometimes they are needed.

Several other people will doubtless mention low-dose naltrexone to you,

which is something which out to be researched. Most doctors will not be

familiar with its use for Crohn's and UC because it is FDA approved at a

much higher dosage and the clinical trials for it at 1.0-4.5 mg are only

beginning to be published. Here's one story:

http://live.psu.edu/story/17985

Do you have a copy of Breaking the Vicious Cycle?

Have you taken a look at the legal/illegal list on

www.breakingtheviciouscycle.info?

They may answer some of your questions. For the rest, we're here. Good

Health is not a destination; it's a journey.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund