Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 I am 5 months post-op and still have signficant numbness in my upper gum and back by my lower molars. Is this common? I was told my chin might be numb for up to a year, but nobody mentioned the upper gum being numb. I know they cut the nerve, but it sounded like it would return quickly. (I never had any problem with my chin!) I would appreciate any feedback and experiences on this. Thanks! Mindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Hi, i was six months post op on christmas day and i am very numb in full left tongue (driving me crazy, i am a teacher and it affects me bigtime) i am numb on all gums, upper and lower and the roof of my mouth. that is just inside! i am slightly numb in lower lip, something i could live with, and slightly in chin, could also live with that. the inside stuff is what i would like healed, god willing. I also have some funny sensations. in an area between two lower molars, when i floss, i have shooting pain, not unbearable, but sharp, along the left side of my numb tongue! odd. > > I am 5 months post-op and still have signficant numbness in my upper > gum and back by my lower molars. Is this common? I was told my > chin might be numb for up to a year, but nobody mentioned the upper > gum being numb. I know they cut the nerve, but it sounded like it > would return quickly. (I never had any problem with my chin!) I > would appreciate any feedback and experiences on this. Thanks! > > Mindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Marla & Pomy, I also get numbness in the arms and legs but only when I have small and large flare ups. Which I have had approx. 30 of them since Oct. 08. In days I go to UTSW in Dallas, tx. for an Exam and further Diag. Pomy if like me you also have memory trouble you should keep a Journal of when this happens. Show you fully explain it to the Doc when you have your visit. You didn't say if it was one or both limbs going numb when this is happening. If it is one limb then I suggest you get to the ER right away, because it could be a stroke that is happening. If it is both or all of your limbs , like me the is more then likely your NS causing it. But either way you should get to or talk to to your Doc right away.. Greg > > *Pomy, > I have numbness all the time, in many various places, If I sit too long, my > rear is numb and > I need help moving, It get numbness in my toes and fingers when it's cold > and it's painful, > the left side of my face is always numb. > But with the dizzy spells and you falling, you should probably get that > checked out, I don't > get dizzy, I get this " spacey " feeling, like air is whooshing through my > head, and makes > me feel kind of light headed, I have to stop what I'm doing for a few > minutes, and headaches > all the time, I see the doc today, so will mention it to him, but you should > do the same. > It could be your NS acting up, especially because you say your limbs are > falling asleep. > Let me know how you do, > Blessings, > Marla > > * > > > > 2009/3/31 Moish Pomeranc > > > Hi to all, > > > > I was wondering if anyone else suffers from limbs " falling asleep " . I've > > been experiencing this for the past few weeks. The weather has been very > > cold and my thumb has been numb for a while. I also have this feeling in my > > arms , but they come and go. > > > > Another thing is that I've had a few dizzy spells. These spells are similar > > to an inner ear infection, that causes to loose balance or walk " sideways " . > > When it hit me, I was on a street and walked into a wall. Luckily, it was > > early morning and no one was out side. > > > > Does this mean that my ns is acting up? > > > > Pomy > > > > ------------------------------ > > See all the ways you can stay connected to friends and family<http://www.microsoft.com/windows/windowslive/default.aspx> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Hey Pomy I have numbness in my feet all the time. They always feel like they are just waking up and I can't really tell where they are. When I walk I end up looking down to make sure I am walking without tripping myself. Some times I feel like they may be waking up. Too much hope???? People ask me why I keep moving my feet. I just say I am trying to wake them up. Hey maybe someday it will work. I too get dizzy spells. I take Meclizine to help. When I am going out someplace I take a dose just to be on the safe side. It works so far. If I am staying at home I skip it because I already take too many pills. And yes I have walked into walls and furniture. My sweetie usually ends up laughing at me. He says I look like a pinball game. I will get him for that. lol Have a wonderful pain free day, and stay off the walls. *wink* Jackie numbness Hi to all, I was wondering if anyone else suffers from limbs "falling asleep". I've been experiencing this for the past few weeks. The weather has been very cold and my thumb has been numb for a while. I also have this feeling in my arms , but they come and go. Another thing is that I've had a few dizzy spells. These spells are similar to an inner ear infection, that causes to loose balance or walk "sideways". When it hit me, I was on a street and walked into a wall. Luckily, it was early morning and no one was out side. Does this mean that my ns is acting up? Pomy See all the ways you can stay connected to friends and family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Hi, See your neurologist you might need to change or add a med. When I had similar numbness like yours they put me on Neurontin and it fixed me right up. Your case is probably different, have it looked into just the same. feel well, Rick Subject: Re: numbnessTo: Neurosarcoidosis Cc: sarcoidconnection@...Date: Tuesday, March 31, 2009, 10:36 AM Pomy, I have numbness all the time, in many various places, If I sit too long, my rear is numb and I need help moving, It get numbness in my toes and fingers when it's cold and it's painful, the left side of my face is always numb. But with the dizzy spells and you falling, you should probably get that checked out, I don't get dizzy, I get this "spacey" feeling, like air is whooshing through my head, and makes me feel kind of light headed, I have to stop what I'm doing for a few minutes, and headachesall the time, I see the doc today, so will mention it to him, but you should do the same. It could be your NS acting up, especially because you say your limbs are falling asleep.Let me know how you do, Blessings, Marla 2009/3/31 Moish Pomeranc <moishpomeranc@ hotmail.com> Hi to all, I was wondering if anyone else suffers from limbs "falling asleep". I've been experiencing this for the past few weeks. The weather has been very cold and my thumb has been numb for a while. I also have this feeling in my arms , but they come and go. Another thing is that I've had a few dizzy spells. These spells are similar to an inner ear infection, that causes to loose balance or walk "sideways". When it hit me, I was on a street and walked into a wall. Luckily, it was early morning and no one was out side. Does this mean that my ns is acting up? Pomy See all the ways you can stay connected to friends and family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 HI Pomy, That numbness is the neuropathy from the sarc. It could also be that your blood sugars are high-- so if you've done the high dose pred thing-- make sure the docs keep track of your A1C as well as the fasting sugars. Hydration is the other component of numbness-- as dehydration makes for lower blood volumes, and lower blood volumes means lower red blood cell counts, which makes for less oxygen getting out to your extremities. Also, if your breathing is compromised-- then the bodies survival instinct comes into play, and it saves what oxygen you breath in, and sends it to your vital organs, and the extremities go numb. I know I harp on these issues -- but for every person that has really paid close attention to these issues, and has actually monitored both sugar and fluid intake-- they've gotten alot more comfortable with their neuropathy issues. I put this out as a challenge to the local pain support group I belong to -- and I can't tell you the wonderful difference it's made, not only for me personally, but for several very close friends. Take care, Tracie NS Co-owner/moderator Subject: Re: numbnessTo: Neurosarcoidosis Date: Tuesday, March 31, 2009, 8:02 AM Marla & Pomy,I also get numbness in the arms and legs but only when I have small and large flare ups. Which I have had approx. 30 of them since Oct. 08. In days I go to UTSW in Dallas, tx. for an Exam and further Diag. Pomy if like me you also have memory trouble you should keep a Journal of when this happens. Show you fully explain it to the Doc when you have your visit. You didn't say if it was one or both limbs going numb when this is happening. If it is one limb then I suggest you get to the ER right away, because it could be a stroke that is happening. If it is both or all of your limbs , like me the is more then likely your NS causing it. But either way you should get to or talk to to your Doc right away..Greg>> *Pomy,> I have numbness all the time, in many various places, If I sit too long, my> rear is numb and> I need help moving, It get numbness in my toes and fingers when it's cold> and it's painful,> the left side of my face is always numb.> But with the dizzy spells and you falling, you should probably get that> checked out, I don't> get dizzy, I get this "spacey" feeling, like air is whooshing through my> head, and makes> me feel kind of light headed, I have to stop what I'm doing for a few> minutes, and headaches> all the time, I see the doc today, so will mention it to him, but you should> do the same.> It could be your NS acting up, especially because you say your limbs are> falling asleep.> Let me know how you do,> Blessings,> Marla> > *> > > > 2009/3/31 Moish Pomeranc <moishpomeranc@ ....>> > > Hi to all,> >> > I was wondering if anyone else suffers from limbs "falling asleep". I've> > been experiencing this for the past few weeks. The weather has been very> > cold and my thumb has been numb for a while. I also have this feeling in my> > arms , but they come and go.> >> > Another thing is that I've had a few dizzy spells. These spells are similar> > to an inner ear infection, that causes to loose balance or walk "sideways".> > When it hit me, I was on a street and walked into a wall. Luckily, it was> > early morning and no one was out side.> >> > Does this mean that my ns is acting up?> >> > Pomy> >> > ------------ --------- ---------> > See all the ways you can stay connected to friends and family<http://www.microsof t.com/windows/ windowslive/ default.aspx>> > > >> Quote Link to comment Share on other sites More sharing options...
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