experience from people with IBD

[Guest guest]

I have Crohn's, and I was diagnosed in July of '09. I went back and forth trying

to get on the diet, and then finally I committed and was faithful for a month

and a half before I fell off the wagon around Christmas. I am on Remicade and

Methotrexate. The Remicade was every 8 weeks, but I started to come down with a

serious flare much earlier than my scheduled 8 week infusion just this past

month. I went to the intro diet, and actually I went to just liquids for a while

to try and help with the flare and it did nothing. I finally was able to get my

Remicade infusion 3 weeks early and, thankfully, it has calmed my flare.

For now, it's obvious that it's the Remicade that has helped me. Knowing this,

how will I know if the diet is working for me? I know everyone is different, but

so many people I've read about say that if they start a flare, they just go back

to the intro and things get better. That didn't help me at all. I was getting

worse.

I guess I'm wondering if I'm a case that can't be helped by the SCD. I hope

that's not the case, but in all honesty, how long should I really give the diet

a shot to determine if it is working? The book says a month, but I've read other

people that say give it 6 months. For those of you with IBD, what's your

experience?

I know the diet doesn't work for everyone. I don't know if it will work for me.

I wonder if I'm just trying to follow it so that I feel like I have some control

over my disease. Can I get some feedback from people with IBD? Do you think

that SCD only works for those people with mild IBD?

Thanks for listening,

Amber

[Guest guest]

Thank you, everyone, for your responses. I realize that I am just being very

impatient and unrealistic, especially since I cheated. I appreciate all your

positive responses though. It's always good to hear success stories.

My original intent on starting this diet was to get off my meds, but I think I'm

just going to have to adjust that goal right now and make it to reduce symptoms.

I'd love if I could get off meds some day, but I think that day is way off in

the future if it is even a possibility.

Sorry for the constant need of reassurance. I just need to have faith that the

diet can work for me. And I need a LOT of patience. But it will all be worth it

if I can help heal myself.

Thanks again, guys. You're always so helpful.

Amber

>

> I have Crohn's, and I was diagnosed in July of '09. I went back and forth

trying to get on the diet, and then finally I committed and was faithful for a

month and a half before I fell off the wagon around Christmas. I am on Remicade

and Methotrexate. The Remicade was every 8 weeks, but I started to come down

with a serious flare much earlier than my scheduled 8 week infusion just this

past month. I went to the intro diet, and actually I went to just liquids for a

while to try and help with the flare and it did nothing. I finally was able to

get my Remicade infusion 3 weeks early and, thankfully, it has calmed my flare.

>

> For now, it's obvious that it's the Remicade that has helped me. Knowing this,

how will I know if the diet is working for me? I know everyone is different, but

so many people I've read about say that if they start a flare, they just go back

to the intro and things get better. That didn't help me at all. I was getting

worse.

>

> I guess I'm wondering if I'm a case that can't be helped by the SCD. I

hope that's not the case, but in all honesty, how long should I really give the

diet a shot to determine if it is working? The book says a month, but I've read

other people that say give it 6 months. For those of you with IBD, what's your

experience?

>

> I know the diet doesn't work for everyone. I don't know if it will work for

me. I wonder if I'm just trying to follow it so that I feel like I have some

control over my disease. Can I get some feedback from people with IBD? Do you

think that SCD only works for those people with mild IBD?

>

> Thanks for listening,

>

> Amber

>