Re: My UC is soooo much better after 6 weeks of diet- Ima new woman

[Guest guest]

Hi! Just wondering if you experienced any side effects of 6-mp, especially since it's an immunosuppresant - have you gotten sick? Do you anticipate getting off of it? My GI wants me to start 6-MP and he said it would be forever - it's not a drug to get off of.  So that's why I'm trying the SCD - it's been about a month and I haven't seen much result. Any insight would be helpful.

 

I cannot remember if I've posted here but just wanted to say that I started 6 weeks ago +- by removing gluten from my diet. This was prompted by an increase in bleeding for no reason and I know that the next step my doctor would say is Humira or Remicade. I have had UC for almost 10 years and it's been a steady increase in medications with little or no relief. I never had a remission in all that time.

I tried the SCD diet many years ago with no results. I've tried almost every diet ever heard of for UC with no results. What made me try SCD this last time was an article my DH read that said that many UC people were undiagnosed with celiac disease. I told him I had been tested for that with negative results but after thinking it over I thought " what was the harm " in removing gluten for a while and observing.

That was the turning point to my recovery. Bleeding stopped almost immediately. I still had some other symptoms (urgency, etc) so I decided to remove all grain products and dairy products also. (Been tested for that too-also negative). Things got even better.

My diet is even more restrictive than SCD but that works for me. I eat lots of animal protein and lots of nonstarchy veggies. Although I LOVE dairy it just doesn't agree with me except for miniscule amounts of very hard cheddar. I LOVE fruit and juices but they also don't agree with my colon so they are removed except for miniscule amounts of blueberries (say 10-12 blueberries a day).

Yes it is incredibly hard to shop in the grocery which seems to be 99% carbs but this is the only remission I have ever had in 10 years so it is worth the sacrifice.It now makes me mad that no doctor in all this time has suggested diet modification. I have lost a lot of respect for pill-pushers who will not do everything they can to help people get healthy unless it involves a prescription.

Because I can't eat SCD yogurt I take a probiotic pill every morning and I also drink freshly made greens juice (I grow collards and cabbage and other greens), no gas or intestinal upset at all. I also take a teaspoon of CLO every morning, helps with C I think.

I still take my meds (50 6MP and 6 Balsal. a day but cut the Balsal from 9 to 6-nothing bad happened) and will evaluate things in 3 months before cutting back more.Am I perfect yet? No but way way better. From my reading it may take years to get back to a perfect colon but removing gluten, grains, dairy and fruit has worked for me.

Along with SCD I highly recommend the book " Life without Bread " by Dr. Allan and Lutz. Lots of scientific evidence on why grains are bad for health, not just UC and Crohns but many many diseases.

To those who are still struggling I say don't give up. It took me two tries many years apart to get where I am. Keep searching for what works for YOU. This disease is very difficult and every person is different.

Good luck and best wishes for better health,

[Guest guest]

It takes several months for 6mp to get in your system (I was told).

When I started 6mp about 9 months ago (?) I felt more fatigued and this past

summer got dizzy playing tennis in hot conditions (older women playing had less

problems so it was the 6mp not the heat).

I don't know the answer of how to taper off. Maybe someone else can respond

because I'd like to know too. My doc moved me up to 75 mg but after 2 months and

still bleeding I went back to 50 mg.

I know steroids have to be tapered but am not sure about immuno-suppresants like

6mp.

I'm convinced that diet stopped my bleeding not 6mp or other drugs because the

drugs have had almost 10 years and didn't work. Diet modification worked for me.

However, as stated, my diet is stricter than regular SCD. No juice or fruit

(small amount of blueberries/day only), no yogurt or DCCC. Grains and

carbohydrates are my biggest cause of bleeding.

Good luck. Make sure you are blood-tested for liver function with 6mp, VERY

important.

>

> Hi! Just wondering if you experienced any side effects of 6-mp, especially

> since it's an immunosuppresant - have you gotten sick? Do you anticipate

> getting off of it? My GI wants me to start 6-MP and he said it would be

> forever - it's not a drug to get off of. So that's why I'm trying the SCD -

> it's been about a month and I haven't seen much result. Any insight would be

> helpful.

>

>