new to the group - check out facebook

[Guest guest]

Hello everyone,

I'm new to the group but not new to sarcoidosis. I developed sarcoids

in my lungs several years ago but it went undiagnosed until i went to

Deborah heart and lung hospital in Browns Mills NJ. After battling

with it in my lungs, leaving my lungs 20%, the sarcoids went to my

brain lining. information was difficult to find but I am pleased to

final hook up with a group that suffer the same as i do. If anyone is

interested you can become a friend via my face book account. just get

on face book and do a search using my name and i would love to have

you as a friend.

ny Carrasquillo

[Guest guest]

ny,

Welcome to the group. You have over 500 new friends via this site, and you can share with all. NS is no fun, and I see that you too are in Stage 4 pulmonary sarcoidosis. I am down to 40% working lung capacity, and even at this level, it requires that I am on supplemental O2 24/7. Man I wish they made the tanks lighter.

What kind of meds do they have you on?

Feel free to contact us through the group site, and we can help each other with questions and answers-- our links and Message ARCHIVES have a tremendous amount of info-- so if you don't hear from someone and have an urgent question, you can always look there.

The owners and moderators of the group are also living with sarcoidosis, and we try to get to the mail daily.

Take care,

Tracie

NS Co-owner/moderator

To: Neurosarcoidosis Sent: Thursday, December 4, 2008 8:48:17 AMSubject: new to the group - check out facebook

Hello everyone,I'm new to the group but not new to sarcoidosis. I developed sarcoidsin my lungs several years ago but it went undiagnosed until i went toDeborah heart and lung hospital in Browns Mills NJ. After battlingwith it in my lungs, leaving my lungs 20%, the sarcoids went to mybrain lining. information was difficult to find but I am pleased tofinal hook up with a group that suffer the same as i do. If anyone isinterested you can become a friend via my face book account. just geton face book and do a search using my name and i would love to haveyou as a friend. ny Carrasquillo

[Guest guest]

Welcome ny, I'm sorry you've had to deal with this disease so long, but you have found a very loving, informative family here at NS. We are here to help, answer questions, or just listen. Welcome, Marla

Hello everyone,

I'm new to the group but not new to sarcoidosis. I developed sarcoids

in my lungs several years ago but it went undiagnosed until i went to

Deborah heart and lung hospital in Browns Mills NJ. After battling

with it in my lungs, leaving my lungs 20%, the sarcoids went to my

brain lining. information was difficult to find but I am pleased to

final hook up with a group that suffer the same as i do. If anyone is

interested you can become a friend via my face book account. just get

on face book and do a search using my name and i would love to have

you as a friend.

ny Carrasquillo

-- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer