Re: Thinking of terminating the diet

[Guest guest]

You had a transfusion and they only gave you 40 mgs of pred? That seems like a

really small amount. I mean every time I was hospitalized I was on higher than

60 mgs (IV). That's terrible but also odd about the allergy though especially

because prednisone blocks allergy symptoms (one reason I had to wait to get off

it before doing a patch test). I imagine that means your allergy is extremely

bad if it's still happening even while on the pred?

Stacey

> >

> >

> >

> > Hello All,

> >

> >

> >

> > I in no way want to stir doubt in anyone's minds.  I'm sorry if this email

does this.  I just really need some feedback at this point.

> >

> >

> >

> > I've been grappling with some questions to which I cannot think of good

answers.  I'd value the feedback from this group.  I have definitely seen some

improvement with this diet, but have not had a complete remission yet.  I

haven't expected one yet though, as I've only been on the diet for 4 1/2 months.

> >

> >

> >

> > I've had UC symptoms for approximately 11 years and have had an official

diagnosis for approximately 6 years.  Shortly after my dx and starting

medication I had a complete remission.  I was not on the diet at this time. 

This remission lasted 2-3 years.  For some reason the idea just hit me the

other day.  If this diet is good for this illness, why did I go into remission

yet eat all the things that I shouldn't have?  My GI doctor told me years ago

that there is no proof about diet, but said that I should certainly avoid

anything that seemed to aggrivate it.  He did mention that the illness will go

on a natural increase and decrease in symptoms and periods of remission. 

What's to say that when one is newly diagnosed, they immediately go onto the

diet and then experience a natural remission, but attribute it to the diet? 

Has anyone been on this diet for 10 years or so and can say that they've

consistently experienced decreased symptoms that can't be attributed to the

natural cycle of the illness?

> >

> >

> >

> > Some other questions that I have:  Perhaps this diet is good for getting

rid of the extra bacteria in the GI tract.  However, does that do anything to

stop my immune system from attacking my colon?  Perhaps the bacteria is a

defense mechanism that protects the tissue?

> >

> >

> >

> > No surprise, I'm experiencing a flare right now.  I just wanted soft foods

to eat, but all that was available to me at my home was fruit, vegetables, white

beans, nuts, eggs, and meat.  Not comfort foods and mostly things harsh on

one's symptoms.  I know that I can go back to chicken, chicken soup, and cooked

carrots.  But rice seems like it would be light on my system.

> >

> >

> >

> > I value this listserv group and value your thoughts.  I'm not going off the

diet yet, but thinking about it.  I have lost about 15 pounds on this diet,

which I'm very happy about.  I've finally gone from chunky to slendor and don't

want to go back to chunky.  I just appreciate your thoughts right now.

> >

> >

> >

> > UC 11 years, dx for 6

> >

> > On Colazol 3 750mg capsules 3Xdaily and nightly rowasa enemas

> >

>

[Guest guest]

,

I, also, would like to encourage you to give the diet a chance. I

know in these days of " take this antibiotic for five days and you'll

feel better " , it's easy to think a short time on any med or program

should cure you. But this is a long term process. I suspect the bad

gut bacteria are probably the most hidden foes our bodies have to

deal with, and they are stubborn. The body, given the right diet so

they are no longer fed, will get rid of them over time, and I think

of it as in waves, the easier stuff first, the more stubborn bacteria

as we go along. I come to SCD from IBS, and although I started

feeling some better fairly soon, I still have a long ways to go as I

approach 8 months. It wasn't until six months that I could start

adding more veggies into my diet. It was OK waiting for this,

because I say, I was feeling somewhat better, but of course it has

been very nice to have a few more foods lately. There are still

things most people can havea on Intro that I can't, but I wouldn't

give up the diet for anything. It will come.

So, do give it more of a trial. I suspect the good effects will keep

coming to you asthey do to just about everyone who really follows the diet.

Hang in there,

[Guest guest]

PJ,

Any chance you are from Bidgeport, California?

Ellen

>

> - I would like to add to these great responses, that 4 1/2 months can

not undo 11 years of illness. I believe the benefits from SCD are in the long

run. Yes, people feel better after 4 1/2 months, but the first year, I've heard,

has it's ups and downs. I've been on SCD 11 months, and am feeling much better

than I did at 4 1/2 months. I believe it is a slow process, but well worth the

effort.

>

> PJ

>

[Guest guest]

According to the " Legal/Illegal " list, nettles aren't legal:

http://www.breakingtheviciouscycle.info/legal/legal_illegal_d-n.htm

Nettles - Illegal - Adverse effects from consuming nettle tea can range from

upset stomach to burning sensations in the skin, difficulty in urination and

bloating.

Holly

Crohn's

SCD 12/01/08

>

> Re: allergies. Kat, I would recommend trying nettle; it's an herb that's

> an effective antihistamine without side-effects. It may take several weeks

> to really get into your system for that you feel effects, but it does work

> for most people. I find it extremely effective. And once you've taken it

> for a while, when you need it again, your body will already be sort of

> " primed " to it, so it then works very quickly.

>

> n

>

[Guest guest]

> According to the "Legal/Illegal" list, nettles aren't legal:>> http://www.breakingtheviciouscycle.info/legal/legal_illegal_d-n.htm>> Nettles - Illegal - Adverse effects from consuming nettle tea can range > from upset stomach to burning sensations in the skin, difficulty in > urination and bloating.>> Holly> Crohn's> SCD 12/01/08>Well, nettle is certainly by far  the lesser of two evils if one has allergies and would normally take or have to take an antihistamine. Drug antihistamines are a killer on the gut. Nettle is not.n> >>>> Re: allergies. Kat, I would recommend trying nettle; it's an herb that's>> an effective antihistamine without side-effects. It may take several >> weeks>> to really get into your system for that you feel effects, but it does >> work>> for most people. I find it extremely effective. And once you've taken it>> for a while, when you need it again, your body will already be sort of>> "primed" to it, so it then works very quickly.>>>> n>>>>-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere