Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Dear Barb My name is Kathy, Welcome to the Sarc Mafia! (my nick name for the group) I have been livining with the Sark Monster for seven years now. My Doctor tells me I'm Lucky to be one in a million-for real! My sark has remained in my brain and spine,where it started. And has not migrated to other organs or systems. He tells me that with this disease it is very rare for it not to spread. Because it is in my brain it has effected my balance and my ability to walk. As to how this affects you, my advice is to stay on your feet as long as possible. Move about as much as you can. Sarc in the brain and spine can attack any number of systems ,organs or extremiates. It is very important that you follow your doctor's orders and stay on your feet. I wish you the best of luck and I hope thr Sarc Monster stays away from your legs. Don't ever stop walking! Love, Kathy Quote Link to comment Share on other sites More sharing options...
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