Re: Update: Maysa - Week 13 in DOC band 2

[Guest guest]

I agree with you - If you can't see it when you know what you're looking, no one else will either!

I've become a quick study of asym and can see it in alot of people... but that is because I obsessed about my dd's facial asym.

I think her numbers are fantasic - and even better given the road you have been down... your a great mom taking care of Maysa like that!!!

:-)

Jen

Mom to Luli - 3 yrs old

Torticollis, Plagio, Syringomyelia

Update: Maysa - Week 13 in DOC band 2

Maysa went in for another adjustment today. Amber saw us and was accompanied by a colleague from the Connecticut Office. Of course, I can’t remember her name. I am so bad with names… We briefly talked about Tim’s report and how neat it was looking at things from a different perspective. She asked me how happy I was about Maysa9s progress. I told her that I WAS happy. After the disappointing results we got from Eastern Cranial Affiliates, and the actual improvement in Maysa’s headshape since the DOC bands, I HAVE to be happy.

I thought long and hard about asking Amber once again about shaving the band on the back right side, but after looking at Maysa’s head from every possible angle I truly can’t see the “5mm†plagio that’s still left. If I can’t see it while knowing what I am looking for, then nobody else out there will either, unless it’s an extremely observant plagio parent or a orthotist. I think that a lot of it has to do with the fact that her head is no longer flat in the back. It is now round. It has a curve that hasn’t been there since she was about 6 weeks old. Amber gave Maysa a little more room in the band by shaving a little more off of it. I believe that she only shaved the middle back right side of it but I am not sure.

Also, looking at one of the top view pictures on Tim’s report, I was able to overlay it on the scan from Orthomerica and draw the two diagonal lines. I came up with the same 5mm diagonal difference, however, her Cephalic Index was much lower. There were two top view pictures of Maysa’s head on the report. One was similar to a top view picture I would take of her in the tub with her hair all wet, and the other one was a slice top view of it similar to the one that I obtained from Orthomerica. In the first top view picture, the worse Cephalic Index I could come up with after several measurements was 87.5%. In the slice view, the worse Cephalic Index I came up with was 91.25%. This is much lower that the 93% I was given in April. So I went back to the graphs from Orthomerica, took a cm ruler and measured the CI of the last three reports I got from them. Here are their measurements and mine:

October 2008 CI:

- Orthomerica -> 98.3%

- My measurements -> 98%

January 2009 CI:

- Orthomerica -> 93.3%

- My measurements -> 92.5%

April 2009 CI:

- Orthomerica -> 93%

- My measurements -> 91.7%

Really, all I did was take a cm ruler and measure the length and width lines on the graph from Orthomerica to obtain the CI. Have you STARband people tried that before? I know that it’s completely silly to be competing with computer technology, but I felt so good being able to measure her CI at 91.7% by measuring her graph. It is also closer to the 91.25% I measured on the picture from Tim’s report from Cranial Tech. I’ll add to that that this is really what I feel her CI is at this point: around the 91% mark.

Also, we have one more adjustment left scheduled for May 11th. In four weeks we have our exit appointment. It will be right around Memorial day weekend, a day to remember.

Leila,

Maysa, 15 months old, 4 weeks left in DOC band 2

www.mymaysa.wordpress.com

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

[Guest guest]

Thanks Jen for your words of encouragement. I couldn't have done it without this group and the help of other parents like you.

Leila,

Maysa, 15 months old, 4 weeks left in DOC band 2

www.mymaysa.wordpress.com

From: JenandLuli@... <JenandLuli@...>Subject: Re: Update: Maysa - Week 13 in DOC band 2Plagiocephaly Date: Monday, April 27, 2009, 4:55 PM

I agree with you - If you can't see it when you know what you're looking, no one else will either!I've become a quick study of asym and can see it in alot of people... but that is because I obsessed about my dd's facial asym.I think her numbers are fantasic - and even better given the road you have been down... your a great mom taking care of Maysa like that!!!:-)

JenMom to Luli - 3 yrs oldTorticollis, Plagio, Syringomyelia Update: Maysa - Week 13 in DOC band 2

Maysa went in for another adjustment today. Amber saw us and was accompanied by a colleague from the Connecticut Office. Of course, I can’t remember her name. I am so bad with names… We briefly talked about Tim’s report and how neat it was looking at things from a different perspective. She asked me how happy I was about Maysa9s progress. I told her that I WAS happy. After the disappointing results we got from Eastern Cranial Affiliates, and the actual improvement in Maysa’s headshape since the DOC bands, I HAVE to be happy.

I thought long and hard about asking Amber once again about shaving the band on the back right side, but after looking at Maysa’s head from every possible angle I truly can’t see the “5mm†plagio that’s still left. If I can’t see it while knowing what I am looking for, then nobody else out there will either, unless it’s an extremely observant plagio parent or a orthotist. I think that a lot of it has to do with the fact that her head is no longer flat in the back. It is now round. It has a curve that hasn’t been there since she was about 6 weeks old. Amber gave Maysa a little more room in the band by shaving a little more off of it. I believe that she only shaved the middle back right side of it but I am not sure.

Also, looking at one of the top view pictures on Tim’s report, I was able to overlay it on the scan from Orthomerica and draw the two diagonal lines. I came up with the same 5mm diagonal difference, however, her Cephalic Index was much lower. There were two top view pictures of Maysa’s head on the report. One was similar to a top view picture I would take of her in the tub with her hair all wet, and the other one was a slice top view of it similar to the one that I obtained from Orthomerica. In the first top view picture, the worse Cephalic Index I could come up with after several measurements was 87.5%. In the slice view, the worse Cephalic Index I came up with was 91.25%. This is much lower that the 93% I was given in April. So I went back to the graphs from Orthomerica, took a cm ruler and measured the CI of the last three reports I got from them. Here are their measurements and mine:

October 2008 CI:- Orthomerica -> 98.3%- My measurements -> 98%

January 2009 CI:- Orthomerica -> 93.3%- My measurements -> 92.5%

April 2009 CI:- Orthomerica -> 93%- My measurements -> 91.7%

Really, all I did was take a cm ruler and measure the length and width lines on the graph from Orthomerica to obtain the CI. Have you STARband people tried that before? I know that it’s completely silly to be competing with computer technology, but I felt so good being able to measure her CI at 91.7% by measuring her graph. It is also closer to the 91.25% I measured on the picture from Tim’s report from Cranial Tech. I’ll add to that that this is really what I feel her CI is at this point: around the 91% mark.

Also, we have one more adjustment left scheduled for May 11th. In four weeks we have our exit appointment. It will be right around Memorial day weekend, a day to remember.

Leila,

Maysa, 15 months old, 4 weeks left in DOC band 2

www.mymaysa. wordpress. com

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!