Hello All

[Guest guest]

This past week has been so bad for me. The prednisone is really messing me up bad. I'm starting to swell in my face real bad and in my feet. My moods are so bad. One minute I feel like climbing the wall's the next, depressed and in tear's. I get confussed alot to. As I've said the sarcoid is in my lung's. I guess my question is does it effect you all over your body in someways even though it's only been seen there? There is so many many unanswered Question's I have about all of this still. I'm still scared in many way's. I feel like my family sometime's get tired of me alway's finding some new kind of problem almost everyday. It's been about 2 month's since my doctor said oh it's back second stage we have to hit it hard, so it does seem like there is a new problem everyday now, I haven't had to face it like this before now. I

feel like I have a long road ahead, I worry about the long term prednisone I may have to take, right now he said maybe 2 month's at 50mg, but by everyone I've read about or talked to it has been alot's longer. Is there any advise out there that any of you can send to my family and maybe help them to see what a nightmare this is to all that has it. I worry about how they feel. I know there are many question's they have also and I'm not much help at all right now. Please if anyone can help out with my family and help them understand alittle more please write them I will make sure they read it. thank you Mona

[Guest guest]

Mona,

First of welcome to the group. You have come to a place I call home with tons of

supporttive and understanding people.

Now Prednisone is a common Med the docs like to use. It is a steriode, and I

have noticed it will make you retain water, you'll have extreme hunger, it will

mess with your moods. I mean as with me, and it is differrent for everybody. I

went from 198bls to 265lbs and thru lots of work and dicspline I am down to 250.

I notice that I get aggrevated easier. I keep my eyeball on that. Because stupid

statements that i usually just let blow past me will now send me in a murderous

rage. I even got a new t-shirt that explains it, it says " My grumpy behavior can

be blamed on the Prednisone I take for my Sarcoidosis. Thank you for your

Patience. " " ...What the heck you looking at?! "

Now that being said I suggest you use the links that group provides to study up

on all this so you understand it better. You are going to get a lot of answers.

A lot of people here will answers you and be real supporttive. More then likely

they will be better answers then mine. I just want you to know that I understand

and Having started out on 60mg of pred in May 08 I know what you are going thru.

I wish you blessings and luck

Greg aka Krumdawg

>

> This past week has been so bad for me. The prednisone is really messing me up

bad. I'm starting to swell in my face real bad and in my feet. My moods are so

bad. One minute I feel like climbing the wall's the next, depressed and in 

tear's. I get confussed alot to. As I've said the sarcoid is in my lung's. I

guess my question is does it effect you all over your body in someways even

though it's only been seen there? There is so many many unanswered Question's I

have about all of this still. I'm still scared in many way's. I feel like my

family sometime's get tired of me alway's finding some new kind of problem

almost everyday. It's been about 2 month's since my doctor said oh it's back

second stage we have to hit it hard, so it does seem like there is a new problem

everyday now, I haven't had to face it like this before now. I feel like I have

a long road ahead, I worry about the long term prednisone I may have to take,

right now he said maybe 2

> month's at 50mg, but by everyone I've read about or talked to it has been

alot's longer. Is there any advise out there that any of you can send to my

family and maybe help them to see what a nightmare this is to all that has it. I

worry about how they feel. I know there are many question's they have also and

I'm not much help at all right now.   Please if anyone can help out with my

family and help them understand alittle more please write them I will make sure

they read it. thank you Mona

>

[Guest guest]

Mona,

When I was taking large doses of prednisone, I too had terrible mood

swings. My kids used to call it my " mean medicine " . I used to warn

them when i was going to be on it awhile - I think they hated the stuff

as much as I did.

Maybe you can print our some of these messages and share them with your

family so they can understand what is happening? Just an ideas.

Take care.

Terri e

>

> This past week has been so bad for me. The prednisone is really

messing me up bad. I'm starting to swell in my face real bad and in my

feet. My moods are so bad. One minute I feel like climbing the wall's

the next, depressed and in tear's. I get confussed alot to. As I've

said the sarcoid is in my lung's. I guess my question is does it effect

you all over your body in someways even though it's only been seen

there? There is so many many unanswered Question's I have about all of

this still. I'm still scared in many way's. I feel like my family

sometime's get tired of me alway's finding some new kind of problem

almost everyday. It's been about 2 month's since my doctor said oh it's

back second stage we have to hit it hard, so it does seem like there is

a new problem everyday now, I haven't had to face it like this before

now. I feel like I have a long road ahead, I worry about the long term

prednisone I may have to take, right now he said maybe 2

> month's at 50mg, but by everyone I've read about or talked to it has

been alot's longer. Is there any advise out there that any of you can

send to my family and maybe help them to see what a nightmare this is to

all that has it. I worry about how they feel. I know there are many

question's they have also and I'm not much help at all right now.

Please if anyone can help out with my family and help them understand

alittle more please write them I will make sure they read it. thank you

Mona

>