Re: Check in; Tonight I'll email Sophie

[Guest guest]

Dear Rose,Thanks for you email. I´m alright, OK with all the sarc stuff but I love to live!Still a lot of pain but thankful for the Remicade and MTX who I receive every 4 weeks in the hospital. I read your note about Sophie, I will send her an email this evening. She must be strong!!!! Sarc is not a killer after delivering a baby. OK the sarcoidosis could be return after 6 months when the natural protection with the pregnancy hormones stops but its not the end of you life.And sometimes it will not come back! I still live and enjoy the life with my children and husband. My life changed but I accepted help, from friends and family but also professional heath care people. Together it´s perfect to live with the sarc. Not the way I always wanted but with all the help and medicines I will survive and my funeral will not be before I´m old and gray and at least 85 years old. So til 2053 I have a lot of time to spent with all the people that I love!Dear Rose, thanks for your email again, a very big special Dutch hug. Hope that you are alright, and off course I will send Sophie some, may be a lot emails to give her the power that she needs a lot!Take care,YvonneIn Neurosarcoidosis , Rose wrote:>> > Hi, Sophie. I'm sorry that you are having to deal with this right now, but you will find lots of support & encouragement from this group. Not many of us can personally share the experience of having NS while pregnant, but Yvonne from the Netherlands had a normal pregnancy & birth a couple of years ago. I'm emailing her to see if she has any words of wisdom or advice for you, so watch the messages for the next few days! When you find yourself getting anxious or stressed, stop & take some nice slow deep breaths. This will help keep your blood pressure & stress hormones normal, which will benefit the baby.> > > Ramblin' Rose> Moderator> > A merry heart is good medicine. Proverbs 17:22> > > > To: neurosarcoidosis ; Neurosarcoidosis > Date: Sat, 28 Mar 2009 18:50:27 -0700> Subject: Re: Check in>>> > my name is sophie i am 8 months pregnant, i have neurosarcoidosis, i quit all treatment about 3 some years ago. i been doing great, but now im scared. will i die when this baby is born. does anyone out there know anything on this subject. i have this since2004 this destryoyed my mind body and marriage, so i just quit treatment. mind over matter has worked for me, i have 2 b strong 4 my kids but now a new baby will be here in 3 weeks. my mind is begining 2 b week.any one out there i just need 2 face this head on i need 2 know the truth> >