Re: Neurosarcoidosis, Prednisone, and PTSD

[Guest guest]

hello, I have some of the same problem's. anger is awful. Over the past year's my PTSD has got somewhat under control, but now Im on the prednisone 50mg. im a bear. My family doesn't know when to speak to me anymore. My doctor up my Lamictal which help's with my mood's swing's, but I see red to when i get in a mean mood, I also take a low dose of xanax to help calm. its just awful I feel sorry for all with this problem. Mona

Subject: Neurosarcoidosis, Prednisone, and PTSDTo: Neurosarcoidosis Date: Thursday, April 2, 2009, 12:01 PM

Hey Y'all,I find it hard some times to hold on to reality of whats happening at this time. What I mean is I find Flashbacks of my PTSDs'sometimes invade my reality. So far I have been able to control them mostly. But I have caught myself exploding over small things. I mean getting so mad that I actually see blood, but over stupid stuff. And at these time I feel endanger so that I must fight to get free. I am slowly getting more control over them. Thru biofeedback and Lots of prayers. I guess my questions are ' Is there anyone else out there that has or is going thru this same thing'????Greg aka Krumdawg

[Guest guest]

Mona,

I started on 60mg of pred down to 20mg at this time. I am scared of letting go

because of my training. So I have to be in control at all times. My PTSD's or

bad memories put me in bad places. So I keep a tight eye on my anger. I am

pretty sure it is the Pred and the only way I have to battle it is self control.

I don't like pain meds.

>

>

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> Subject: Neurosarcoidosis, Prednisone, and PTSD

> To: Neurosarcoidosis

> Date: Thursday, April 2, 2009, 12:01 PM

>

>

>

>

>

>

> Hey Y'all,

>

> I find it hard some times to hold on to reality of whats happening at this

time. What I mean is I find Flashbacks of my PTSDs'sometimes invade my reality.

So far I have been able to control them mostly. But I have caught myself

exploding over small things. I mean getting so mad that I actually see blood,

but over stupid stuff. And at these time I feel endanger so that I must fight to

get free. I am slowly getting more control over them. Thru biofeedback and Lots

of prayers. I guess my questions are ' Is there anyone else out there that has

or is going thru this same thing'????

>

> Greg aka Krumdawg

>

[Guest guest]

I have to say that I can so relate to the anger issues when on prednisone. The only time I"ve ever been physically angry-- actually took a swing at my husband-- was when I was on 80g of prednisone.

When I was working for an Internal Medicine doc, we saw it all the time-- put someone on pred-- and watch them explode-- and implode.

It's a fantastic drug to get rid of inflammation fast, and it has saved many patients with spinal cord injuries from a life of quad or paraplegia. The side effects are a whole nuther story...

The challenge with prednisone is that once we are weaned off if, the symptoms come back-- sometimes years later, sometimes during the weaning period.

For all of us, it's important that we be aware that if symptoms do start coming back, and the clinical trials show that it does-- that we get our MD's to put us on Methotrexate or Plaquenil as we are coming off prednisone-- especially if you have a multi system sarcoidosis. That way, the MTX or plaquenil will kick in about the time you get off the pred.

The reason that pred has to be weaned off is that it stops your adrenals from making cortisol. Cortisol is our bodies own "steriod" and helps control pain, heart rate, body temperature. To stop the prednisone without weaning off it-- and retraining the adrenals to begin production of cortisol again, will put you into an adrenal crisis. That can be a death sentence, so wean off slowly per the MD's instruction.

Take care,

Tracie

NS Co-owner/moderator

From: gregorykrumme <krumdawg (AT) tx (DOT) rr.com>Subject: Neurosarcoidosis, Prednisone, and PTSDTo: Neurosarcoidosis@ yahoogroups. comDate: Thursday, April 2, 2009, 12:01 PM

Hey Y'all,I find it hard some times to hold on to reality of whats happening at this time. What I mean is I find Flashbacks of my PTSDs'sometimes invade my reality. So far I have been able to control them mostly. But I have caught myself exploding over small things. I mean getting so mad that I actually see blood, but over stupid stuff. And at these time I feel endanger so that I must fight to get free. I am slowly getting more control over them. Thru biofeedback and Lots of prayers. I guess my questions are ' Is there anyone else out there that has or is going thru this same thing'????Greg aka Krumdawg

[Guest guest]

Greg, My prayers are with you, Marl a

Hey Y'all,

I find it hard some times to hold on to reality of whats happening at this time. What I mean is I find Flashbacks of my PTSDs'sometimes invade my reality. So far I have been able to control them mostly. But I have caught myself exploding over small things. I mean getting so mad that I actually see blood, but over stupid stuff. And at these time I feel endanger so that I must fight to get free. I am slowly getting more control over them. Thru biofeedback and Lots of prayers. I guess my questions are ' Is there anyone else out there that has or is going thru this same thing'????

Greg aka Krumdawg

[Guest guest]

Hi Marla I will be at NJH from April 27 through the 30th and was wondering if we could meet on Sun afternoon on the 26th. Hope all is well with you, Mattthew 26th Apr 4, 2009, at 10:09 AM, Marla Bramer wrote:Greg, My prayers are with you, Marl aOn Thu, Apr 2, 2009 at 2:01 PM, gregorykrumme <krumdawg (AT) tx (DOT) rr.com> wrote:Hey Y'all,I find it hard some times to hold on to reality of whats happening at this time. What I mean is I find Flashbacks of my PTSDs'sometimes invade my reality. So far I have been able to control them mostly. But I have caught myself exploding over small things. I mean getting so mad that I actually see blood, but over stupid stuff. And at these time I feel endanger so that I must fight to get free. I am slowly getting more control over them. Thru biofeedback and Lots of prayers. I guess my questions are ' Is there anyone else out there that has or is going thru this same thing'????Greg aka Krumdawg

[Guest guest]

Marl a,

Thank You. You are in mine as well, as is all my new friends at this site.

wishing loving and pain free days on all,

Greg aka Krumdawg

>

> > Hey Y'all,

> >

> > I find it hard some times to hold on to reality of whats happening at this

> > time. What I mean is I find Flashbacks of my PTSDs'sometimes invade my

> > reality. So far I have been able to control them mostly. But I have caught

> > myself exploding over small things. I mean getting so mad that I actually

> > see blood, but over stupid stuff. And at these time I feel endanger so that

> > I must fight to get free. I am slowly getting more control over them. Thru

> > biofeedback and Lots of prayers. I guess my questions are ' Is there anyone

> > else out there that has or is going thru this same thing'????

> >

> > Greg aka Krumdawg

> >

> >

> >

>

[Guest guest]

Hey , good to hear from you, at this point that date sounds good, I have you on my calender, I'm in church until 1130, will you be on your way home, or is that just a good day to meet, as we can meet halfway if you will still be in

Denver, does that make sense?   Blessings, Marla

Hi Marla I will be at NJH from April 27 through the 30th and was wondering if we could meet on Sun afternoon on the 26th.   Hope all is well with you, Mattthew 26th Apr 4, 2009, at 10:09 AM, Marla Bramer wrote:

Greg, My prayers are with you, Marl a

On Thu, Apr 2, 2009 at 2:01 PM, gregorykrumme  wrote:

Hey Y'all,I find it hard some times to hold on to reality of whats happening at this time. What I mean is I find Flashbacks of my PTSDs'sometimes invade my reality. So far I have been able to control them mostly. But I have caught myself exploding over small things. I mean getting so mad that I actually see blood, but over stupid stuff. And at these time I feel endanger so that I must fight to get free. I am slowly getting more control over them. Thru biofeedback and Lots of prayers. I guess my questions are ' Is there anyone else out there that has or is going thru this same thing'????

Greg aka Krumdawg

[Guest guest]

Greg,

Good for you; keep fighting. I salute you.

Terri. G.

> > > >

> > > >

> > > > Greg,

> > > >

> > > > I cannot imagine having NS, PTSD and trying to quit smoking.

Whew,

> > you

> > > > might want to put up that sign!!! Just kidding. All I know was

when

> > I

> > > > quit smoking I was a b**ch with a capital B. My husband said I

was

> > like

> > > > Blair in the exorcist and told him in a demonic voice to

" go

> > buy

> > > > me some cigarettes " . I had just had pneumonia and decided not

smoke

> > > > again after that. So as you can see, I wasn't sick yet and

couldn't

> > > > barely get by without them.

> > > >

> > > > One word of advice as far as quitting goes - when you want a

> > cigarette

> > > > remind yourself that you are addicted - I used to get up in the

> > morning

> > > > and say out loud " you are addicted cigarettes and you can't have

> > them

> > > > anymore " . It has been over 10 years and I did do it cold turkey.

> > There

> > > > will be times that you will want it more than ever and just

remember

> > you

> > > > are stronger than that.

> > > >

> > > > As far as the PSTD - is there a VA Hospital you could go to get

some

> > > > help with it? I hate to think of you and others suffering

> > needlessly.

> > > >

> > > > Take care and let me know how everything goes.

> > > >

> > > > Terri G.

> > > >

> > > >

> > > > > OOOOOOOOOO and I am in the process of quitting nicotine a

habit I

> > have

> > > > had for more then 20+ years. Today is day 8 no tobacco or

nicotine.

> > > > >

> > > > > Think I should post a warning on my Door???

> > > > >

> > > > > Greg

> > > > >

> > > > >

> > > >

> > >

> >

>