Re: Re: reply to Mona about pred.

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Hi Mona,

My family hated when I was on pred . too . I warned them also. They used to call me "Sybil" because of all my mood changes. It's so hard for them to understand.

Debbie

Subject: Re: Hello AllTo: Neurosarcoidosis Date: Wednesday, April 1, 2009, 11:01 PM

Mona,When I was taking large doses of prednisone, I too had terrible moodswings. My kids used to call it my "mean medicine". I used to warnthem when i was going to be on it awhile - I think they hated the stuffas much as I did.Maybe you can print our some of these messages and share them with yourfamily so they can understand what is happening? Just an ideas.Take care.Terri e>> This past week has been so bad for me. The prednisone is reallymessing me up bad. I'm starting to swell in my face real bad and in myfeet. My moods are so bad. One minute I feel like climbing the wall'sthe next, depressed and

in tear's. I get confussed alot to. As I'vesaid the sarcoid is in my lung's. I guess my question is does it effectyou all over your body in someways even though it's only been seenthere? There is so many many unanswered Question's I have about all ofthis still. I'm still scared in many way's. I feel like my familysometime's get tired of me alway's finding some new kind of problemalmost everyday. It's been about 2 month's since my doctor said oh it'sback second stage we have to hit it hard, so it does seem like there isa new problem everyday now, I haven't had to face it like this beforenow. I feel like I have a long road ahead, I worry about the long termprednisone I may have to take, right now he said maybe 2> month's at 50mg, but by everyone I've read about or talked to it hasbeen alot's longer. Is there any advise out there that any of you cansend to my family and maybe help them to see what a

nightmare this is toall that has it. I worry about how they feel. I know there are manyquestion's they have also and I'm not much help at all right now. Please if anyone can help out with my family and help them understandalittle more please write them I will make sure they read it. thank youMona>