Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 SCD worked great for 3 months and I was able to eat nuts and delicious recipes from the books. One flare up, and I am back to the same old story. It's been three months now, I am on and off to flare-ups. I have stopped nuts, few vegetables,fruits that I thought was a culprit. I saw my doctor and he prescribed "prednisone". I feel like giving up. I need help in determing if I am on the right track. I am tired of eating Chicken soup and vegetables saute. Please help me Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Don't give up. The " three month flare " is well known, and many have experienced it. Marilyn explains it well, that there are some stronger gut bugs hanging around, and if you quit SCD now, you'll just feed the buggers. Take the medication and continue on SCD. If you stop SCD, the prednisone may just mask any symptoms. Do what you need to do to feel better and stay on SCD. Sauteed vegetables may be too rough. It is best to cook them well and even puree them at this point. Go back to soups- add beef and even fish bone soup for variety, meats, fish, DCCC, basically what you tolerate from intro- stage 1. Then progress slowly as tolerated, but don't quit SCD. When you are well, you could try to slowly taper off the prednisone and see what happens, and/or switch to a medication with less side effects. You can do medication and SCD together, it is not one or the other. PJ > > SCD worked great for 3 months and I was able to eat nuts and delicious recipes from the books. One flare up, and I am back to the same old story. It's been three months now, I am on and off to flare-ups. I have stopped nuts, few vegetables,fruits that I thought was a culprit. I saw my doctor and he prescribed " prednisone " . I feel like giving up. I need help in determing if I am on the right track. I am tired of eating Chicken soup and vegetables saute. > > Please help me > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Your probably going through what many know as the 3 month flare. Just cut back like you did on basic, easy to digest foods and you should come out of it. Some people go through it at 3,6,9 12 months. Don't quit your right on schedule. Katy ____________________________________________________________ Criminal LawyerCriminal Lawyers - Click here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Katy, Totally high-jacking the thread but wanted to throw my hands around you giving you a big hug!! How you be? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 ,Are you aware that Asacol can cause the very same symptoms (as a side effect) it is trying to help? Since you are on the prednisone (which should not take a long time to kick in), you shouldn't need the asacol -- it isn't to treat really just to help maintain. You might consider dropping the asacol to see if that helps -- it did my husband. When he eventually tried it again, it was the suppositories, not oral.AmeliaFrom: T To: btvc-scd Sent: Fri, March 19, 2010 11:52:24 PMSubject: RE: Please help... I've been on SCD for a year, and still having a bad flare that's lasted almost 2 whole months now. I'm on prednisone as well as some other stuff. It takes a long time to work, and there are plenty of setbacks. Try going on pecanbread.com and eating foods from some lower stages like stage 1 and 2. I haven't eaten raw fruit or any nuts in over a year!-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD@yahoogroup s.com; scdinfo (AT) yahoogroup (DOT) comFrom: scd143 (AT) yahoo (DOT) comDate: Fri, 19 Mar 2010 08:04:07 -0700Subject: Please help... SCD worked great for 3 months and I was able to eat nuts and delicious recipes from the books. One flare up, and I am back to the same old story. It's been three months now, I am on and off to flare-ups. I have stopped nuts, few vegetables,fruits that I thought was a culprit. I saw my doctor and he prescribed "prednisone" . I feel like giving up. I need help in determing if I am on the right track. I am tired of eating Chicken soup and vegetables saute. Please help me Thanks Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn More. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 also, Elaine writes: I know that the Asacol seems to be without efficacy for 98% of the people to whom I speak. But the azulfidine does not breed yeast and it is one of the older and more effective drugs. I was told this story by the president of a drug company: In spite of the fact that azulfidine was the tried and tested help for almost 50 years, the patent began running out. (By the way, the azulfidine fools microbes, bacteria and yeast, into picking up a "counterfeit" molecule with which they make their own folic acid and which they need to multiply) The generic drug companies started producing azulfidine since the patent ran out and the big companies now had a competitive product, just as good, but much cheaper. So the big companies started a big hype about the azulfidine: that they had finally found out what the active component was (this was a lie, they knew for years it minimized the growth of microbes) and that this component would be put in a new breakthrough drug called 5-amino salicylic acid. You know it as Asacol and a few others.The terrible thing about this was that the active component in Azulfidine was not so much 5-amino salicylic acid as it was the sulfated form of para-amino-benzoic-acid which was designed to fool bacteria into picking it up and trying to make their own folic acid out of it (they cannot use preformed folic acid as we do). So every doctor connected with the powers-that-be went about lecturing about this new discovery. I attended a lecture while doing research in London, Ontario at St. ph Hospital and Dr. W. C. Watkins gave the hype on the new drug. I had learned otherwise in microbiology and I raised my hand to say 'BUT WE DO KNOW WHICH COMPONENT IN AZULFIDINE IS MOST EFFECTIVE' and he waved me down. There are better and moreeffective drugs Colazol also works with a twopronged attack: one of the prongs is to keep bacterial growth down.-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: luckycharms@...Date: Sat, 20 Mar 2010 11:55:11 -0400Subject: Re: Please help... Are you aware that Asacol can cause the very same symptoms (as a side effect) it is trying to help? It did that to me. The Asacol gave me bloody D, and I originally started taking it to help with D. Hm... Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 35 mg 1x per day Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn More. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.