Re: After a bad flare, ever had the foods you tolerate change?

[Guest guest]

Has anyone heard of/tried emulsified oil of oregano? My naturopath recommended

it but I can't find it anywhere. About to try online. It is supposed to not

burn. Would diluting it in olive oil do the same thing?

Also, on the note about tolerating different foods, same thing happened to me. I

was great with carrots and butternut and acorn squash at first, then had to stop

all of them. I think my yeasts liked them too much. When I was first starting, I

had a yeast issue, but was less affected. My guess is, I was still using spices

at that point - garlic, tiny bit of onion, basil, oregano, turmeric was all -

and I think those were keeping the yeasts at bay, or they hadn't had time to

overgrow yet. I was also dairy free at that point.

Added the DCCC and things got worse. Cut it out, but then could not tolerate any

of the beginning foods. Added yogurt - took a week of absolutely loving it, then

things got worse. Cut it out and waited in case it was something else. Added it

- things got worse a week later again. I'm guessing it just takes time for the

bioflora of the cut to change ecologically. Like, it's OK to add frogs to an

environment if there is something to eat the frogs, but if there isn't watch

out. Soon you'll have to use frog poison, but only after the frogs have had a

chance to overpopulate. Then if you start adding something that eats frogs, you

can add the frogs again. No problem.

Sometimes I wish I could have a microscope installed to see what I'm dealing

with in there. ;b

Kat

27

UC since June 09

SCD since Feb 10

Prednisone 10mg, acyclovir, multi. every other day

[Guest guest]

If you've cut all that out, then what do you eat now? -UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: evenstrangerquark@...Date: Sat, 20 Mar 2010 02:58:27 +0000Subject: Re: After a bad flare, ever had the foods you tolerate change?

Has anyone heard of/tried emulsified oil of oregano? My naturopath recommended it but I can't find it anywhere. About to try online. It is supposed to not burn. Would diluting it in olive oil do the same thing?

Also, on the note about tolerating different foods, same thing happened to me. I was great with carrots and butternut and acorn squash at first, then had to stop all of them. I think my yeasts liked them too much. When I was first starting, I had a yeast issue, but was less affected. My guess is, I was still using spices at that point - garlic, tiny bit of onion, basil, oregano, turmeric was all - and I think those were keeping the yeasts at bay, or they hadn't had time to overgrow yet. I was also dairy free at that point.

Added the DCCC and things got worse. Cut it out, but then could not tolerate any of the beginning foods. Added yogurt - took a week of absolutely loving it, then things got worse. Cut it out and waited in case it was something else. Added it - things got worse a week later again. I'm guessing it just takes time for the bioflora of the cut to change ecologically. Like, it's OK to add frogs to an environment if there is something to eat the frogs, but if there isn't watch out. Soon you'll have to use frog poison, but only after the frogs have had a chance to overpopulate. Then if you start adding something that eats frogs, you can add the frogs again. No problem.

Sometimes I wish I could have a microscope installed to see what I'm dealing with in there. ;b

Kat

27

UC since June 09

SCD since Feb 10

Prednisone 10mg, acyclovir, multi. every other day

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

[Guest guest]

Let's see, here is a list of what I am eating now:

Beef (rare if possible - easier to digest)

Chicken soup (next time with just chicken - right now I use cabbage,

which I think may agree with me OK)

Fish (I use different kinds depending on what I am hungry for - good to listen

to my tummy)

Eggs

Note on meat: I've been frying on the stove top from the beginning because I

like adding olive oil. I haven't cooked with anything but for about a year, and

I stopped tolerating butter before I began the diet. I've recently starting

wanting to eat just the olive oil, so I add a little bit (unheated) with salt to

my avocado - very tasty in my book, but probably weird to many.

Zucchini (cook for 1 hr)

Pear (cook for 1 hr)

Applesause (just a little bit in a day - too much and I get burny stuff/smell it

on the way out, I only buy the kind where apples are the only ingredient)

Avocados (raw but ripe - about 1 to 1.5/day or I feel a tummy ache from it)

Blueberry juice/puree (I bought the Just Blueberry juice and it seems to do

okay. The puree settles better, but takes about 1.5 hrs to make, since I boil it

for 1 hr and press it through a strainer into a bowl. Some of the skins get

mushed up and pressed through I think, but it has not seemed to be a factor. I

don't eat that much in a day.)

I got desperate a few nights ago and had less than 1/4 tspn of pure cocoa

powder, but I would not recommend it - it helped my mood and got rid of my pain

but is not part of the diet. I also was desperate for peanut butter again so I

had one spoonful two days running and it doesn't seem to have made anything

worse. Also tried onion and garlic - oh so yummy! May or may not tolerate well -

too soon to tell, but the garlic has helped the yeast overnight.

The meat/fish/fruits etc above are not exciting. But they do seem to get me

through each day. When I start getting flashes in my head of another food (like

peanut butter) I figure I'm lacking something or one of my bacteria wants it. As

boring as it is, I've learned (3 times!) that slow and steady wins the race.

When I lost weight before, and was soooo fatigued after starting the diet, I had

to add a lot of carbs at once because my brain wasn't working well on small

amounts of zucchini alone. I later had to backtrack after a miniflair, but you

have to do what you have to do. Always the lesser of the evils I guess. If

trying some carbs that are risky will give you the nutrition you need, maybe try

more than one at once, but then, like me, you may have to cut out everything new

and go back to the beginning and add them one at a time.

Also, I've found that if I eat too much of anything it seems to be bad. Too much

beef - temporary C and pain. Too much eggs - awesome smell an gas. Too much of

any one veggie/fruit - D or cramps or something else. In this sense, variety

does help.

Recent things that have helped: I've been drinking tons of water and getting

plenty of sea salt. Sometimes regular salt for the iodine. More water/salt

always makes me feel better, and helps my vision get better after it got all

blurry after starting the diet.

I recently stopped all supplements after my last flair. (I've had three in one

month.) It did help. My kidneys were overloaded with 30 pills a day I think. I'm

now taking a multivitamin every other day to see if I can get enough of

everything. I also need to start getting/making electrolyte drinks for

magnesium, which I'm sure I'm deficient in.

Sorry for the super long reply! It sounds like you are having a really rough

time of it, and I figured I'd share all my (short) experience in case any of it

can help.

Kat

>

>

> If you've cut all that out, then what do you eat now?

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

> To: BTVC-SCD

> From: evenstrangerquark@...

> Date: Sat, 20 Mar 2010 02:58:27 +0000

> Subject: Re: After a bad flare, ever had the foods you tolerate

change?

>

> Has anyone heard of/tried emulsified oil of oregano? My naturopath

recommended it but I can't find it anywhere. About to try online. It is supposed

to not burn. Would diluting it in olive oil do the same thing?

>

> Also, on the note about tolerating different foods, same thing happened to me.

I was great with carrots and butternut and acorn squash at first, then had to

stop all of them. I think my yeasts liked them too much. When I was first

starting, I had a yeast issue, but was less affected. My guess is, I was still

using spices at that point - garlic, tiny bit of onion, basil, oregano, turmeric

was all - and I think those were keeping the yeasts at bay, or they hadn't had

time to overgrow yet. I was also dairy free at that point.

>

> Added the DCCC and things got worse. Cut it out, but then could not tolerate

any of the beginning foods. Added yogurt - took a week of absolutely loving it,

then things got worse. Cut it out and waited in case it was something else.

Added it - things got worse a week later again. I'm guessing it just takes time

for the bioflora of the cut to change ecologically. Like, it's OK to add frogs

to an environment if there is something to eat the frogs, but if there isn't

watch out. Soon you'll have to use frog poison, but only after the frogs have

had a chance to overpopulate. Then if you start adding something that eats

frogs, you can add the frogs again. No problem.

>

> Sometimes I wish I could have a microscope installed to see what I'm dealing

with in there. ;b

>

> Kat

> 27

> UC since June 09

> SCD since Feb 10

> Prednisone 10mg, acyclovir, multi. every other day

>

[Guest guest]

I don't know if it would work for you but during the last 2 massive flares I had

the starter diet wasn't enough to get my symptoms under control so I did a

(diluted) juice fast for a couple days (I think I did 3). That (for me) got

everything under control and I started adding foods back from there. Just an

idea anyway. I hope you feel better soon!

Stacey

>

>

> Almost at 2 months straight with a bad flare trying to get things under

control. I've bene eating nothing but beef, chicken, fish, avocado, grape juice,

apple cider, yogurt, DCCC, eggs, and very little cheddar cheese. I tried mashed

butternut squash 2 nights ago, and today I had a huge setback. It may be because

of the medicine i'm on, but may not... very hard to tell right now.

>

> Butternut squash was one of the first things I could tolerate a year ago when

I first started this diet. I guess that can change due to a flare??

>

> For anyone with experience, after a bad flare could you introduce foods faster

than before? I'm losing way way too much weight.

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> _________________________________________________________________

> Hotmail is redefining busy with tools for the New Busy. Get more from your

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[Guest guest]

i'll try the olive oil with a litle salt on my avocado in the morning.Check the salt that you use with iodine in it. Manufacturers put dextrose in there to stabilize the iodine. Dextrose is an illegal, even though it's only .04% in the salt.I have more illegals in my meds, but I guess every little bit helps -UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: evenstrangerquark@...Date: Sat, 20 Mar 2010 03:25:38 +0000Subject: Re: After a bad flare, ever had the foods you tolerate change?

Let's see, here is a list of what I am eating now:

Beef (rare if possible - easier to digest)

Chicken soup (next time with just chicken - right now I use cabbage,

which I think may agree with me OK)

Fish (I use different kinds depending on what I am hungry for - good to listen to my tummy)

Eggs

Note on meat: I've been frying on the stove top from the beginning because I like adding olive oil. I haven't cooked with anything but for about a year, and I stopped tolerating butter before I began the diet. I've recently starting wanting to eat just the olive oil, so I add a little bit (unheated) with salt to my avocado - very tasty in my book, but probably weird to many.

Zucchini (cook for 1 hr)

Pear (cook for 1 hr)

Applesause (just a little bit in a day - too much and I get burny stuff/smell it on the way out, I only buy the kind where apples are the only ingredient)

Avocados (raw but ripe - about 1 to 1.5/day or I feel a tummy ache from it)

Blueberry juice/puree (I bought the Just Blueberry juice and it seems to do okay. The puree settles better, but takes about 1.5 hrs to make, since I boil it for 1 hr and press it through a strainer into a bowl. Some of the skins get mushed up and pressed through I think, but it has not seemed to be a factor. I don't eat that much in a day.)

I got desperate a few nights ago and had less than 1/4 tspn of pure cocoa powder, but I would not recommend it - it helped my mood and got rid of my pain but is not part of the diet. I also was desperate for peanut butter again so I had one spoonful two days running and it doesn't seem to have made anything worse. Also tried onion and garlic - oh so yummy! May or may not tolerate well - too soon to tell, but the garlic has helped the yeast overnight.

The meat/fish/fruits etc above are not exciting. But they do seem to get me through each day. When I start getting flashes in my head of another food (like peanut butter) I figure I'm lacking something or one of my bacteria wants it. As boring as it is, I've learned (3 times!) that slow and steady wins the race. When I lost weight before, and was soooo fatigued after starting the diet, I had to add a lot of carbs at once because my brain wasn't working well on small amounts of zucchini alone. I later had to backtrack after a miniflair, but you have to do what you have to do. Always the lesser of the evils I guess. If trying some carbs that are risky will give you the nutrition you need, maybe try more than one at once, but then, like me, you may have to cut out everything new and go back to the beginning and add them one at a time.

Also, I've found that if I eat too much of anything it seems to be bad. Too much beef - temporary C and pain. Too much eggs - awesome smell an gas. Too much of any one veggie/fruit - D or cramps or something else. In this sense, variety does help.

Recent things that have helped: I've been drinking tons of water and getting plenty of sea salt. Sometimes regular salt for the iodine. More water/salt always makes me feel better, and helps my vision get better after it got all blurry after starting the diet.

I recently stopped all supplements after my last flair. (I've had three in one month.) It did help. My kidneys were overloaded with 30 pills a day I think. I'm now taking a multivitamin every other day to see if I can get enough of everything. I also need to start getting/making electrolyte drinks for magnesium, which I'm sure I'm deficient in.

Sorry for the super long reply! It sounds like you are having a really rough time of it, and I figured I'd share all my (short) experience in case any of it can help.

Kat

>

>

> If you've cut all that out, then what do you eat now?

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

> To: BTVC-SCD

> From: evenstrangerquark@...

> Date: Sat, 20 Mar 2010 02:58:27 +0000

> Subject: Re: After a bad flare, ever had the foods you tolerate change?

>

> Has anyone heard of/tried emulsified oil of oregano? My naturopath recommended it but I can't find it anywhere. About to try online. It is supposed to not burn. Would diluting it in olive oil do the same thing?

>

> Also, on the note about tolerating different foods, same thing happened to me. I was great with carrots and butternut and acorn squash at first, then had to stop all of them. I think my yeasts liked them too much. When I was first starting, I had a yeast issue, but was less affected. My guess is, I was still using spices at that point - garlic, tiny bit of onion, basil, oregano, turmeric was all - and I think those were keeping the yeasts at bay, or they hadn't had time to overgrow yet. I was also dairy free at that point.

>

> Added the DCCC and things got worse. Cut it out, but then could not tolerate any of the beginning foods. Added yogurt - took a week of absolutely loving it, then things got worse. Cut it out and waited in case it was something else. Added it - things got worse a week later again. I'm guessing it just takes time for the bioflora of the cut to change ecologically. Like, it's OK to add frogs to an environment if there is something to eat the frogs, but if there isn't watch out. Soon you'll have to use frog poison, but only after the frogs have had a chance to overpopulate. Then if you start adding something that eats frogs, you can add the frogs again. No problem.

>

> Sometimes I wish I could have a microscope installed to see what I'm dealing with in there. ;b

>

> Kat

> 27

> UC since June 09

> SCD since Feb 10

> Prednisone 10mg, acyclovir, multi. every other day

>

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn More.

[Guest guest]

Thanks I'll check. For some reason I felt like it wasn't " right. " Maybe that was

it. Or it just tastes weird after eating sea salt for so long.

Oh, and applesauce goes well with the avocados/olive oil/salt, to my taste buds

anyway.

Kat

>

> >

>

> >

>

> > If you've cut all that out, then what do you eat now?

>

> >

>

> > -

>

> > UC - 1+ years

>

> > SCD - 8 months 100% strict and 4 months restricted diet.

>

> > Asacol - 12 pills a day

>

> > Prednisone 40mg

>

> > entocort With vit E mixed in

>

> > Back to intro/stage 1 for now.

>

> >

>

> >

>

> > To: BTVC-SCD

>

> > From: evenstrangerquark@

>

> > Date: Sat, 20 Mar 2010 02:58:27 +0000

>

> > Subject: Re: After a bad flare, ever had the foods you tolerate

change?

>

> >

>

> > Has anyone heard of/tried emulsified oil of oregano? My naturopath

recommended it but I can't find it anywhere. About to try online. It is supposed

to not burn. Would diluting it in olive oil do the same thing?

>

> >

>

> > Also, on the note about tolerating different foods, same thing happened to

me. I was great with carrots and butternut and acorn squash at first, then had

to stop all of them. I think my yeasts liked them too much. When I was first

starting, I had a yeast issue, but was less affected. My guess is, I was still

using spices at that point - garlic, tiny bit of onion, basil, oregano, turmeric

was all - and I think those were keeping the yeasts at bay, or they hadn't had

time to overgrow yet. I was also dairy free at that point.

>

> >

>

> > Added the DCCC and things got worse. Cut it out, but then could not tolerate

any of the beginning foods. Added yogurt - took a week of absolutely loving it,

then things got worse. Cut it out and waited in case it was something else.

Added it - things got worse a week later again. I'm guessing it just takes time

for the bioflora of the cut to change ecologically. Like, it's OK to add frogs

to an environment if there is something to eat the frogs, but if there isn't

watch out. Soon you'll have to use frog poison, but only after the frogs have

had a chance to overpopulate. Then if you start adding something that eats

frogs, you can add the frogs again. No problem.

>

> >

>

> > Sometimes I wish I could have a microscope installed to see what I'm dealing

with in there. ;b

>

> >

>

> > Kat

>

> > 27

>

> > UC since June 09

>

> > SCD since Feb 10

>

> > Prednisone 10mg, acyclovir, multi. every other day

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID27925::T:WLMTAGL:ON:WL:en\

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>

[Guest guest]

Kat, how do you know when your electrolytes are low?

>Thanks I'll check. For some reason I felt like it wasn't " right. " Maybe that

was it. Or it just tastes weird after eating sea salt for so long.

>

>Oh, and applesauce goes well with the avocados/olive oil/salt, to my taste buds

anyway.

>

>Kat

>

>

>>

>> >

>>

>> >

>>

>> > If you've cut all that out, then what do you eat now?

>>

>> >

>>

>> > -

>>

>> > UC - 1+ years

>>

>> > SCD - 8 months 100% strict and 4 months restricted diet.

>>

>> > Asacol - 12 pills a day

>>

>> > Prednisone 40mg

>>

>> > entocort With vit E mixed in

>>

>> > Back to intro/stage 1 for now.

>>

>> >

>>

>> >

>>

>> > To: BTVC-SCD

>>

>> > From: evenstrangerquark@

>>

>> > Date: Sat, 20 Mar 2010 02:58:27 +0000

>>

>> > Subject: Re: After a bad flare, ever had the foods you tolerate

change?

>>

>> >

>>

>> > Has anyone heard of/tried emulsified oil of oregano? My naturopath

recommended it but I can't find it anywhere. About to try online. It is supposed

to not burn. Would diluting it in olive oil do the same thing?

>>

>> >

>>

>> > Also, on the note about tolerating different foods, same thing happened to

me. I was great with carrots and butternut and acorn squash at first, then had

to stop all of them. I think my yeasts liked them too much. When I was first

starting, I had a yeast issue, but was less affected. My guess is, I was still

using spices at that point - garlic, tiny bit of onion, basil, oregano, turmeric

was all - and I think those were keeping the yeasts at bay, or they hadn't had

time to overgrow yet. I was also dairy free at that point.

>>

>> >

>>

>> > Added the DCCC and things got worse. Cut it out, but then could not

tolerate any of the beginning foods. Added yogurt - took a week of absolutely

loving it, then things got worse. Cut it out and waited in case it was something

else. Added it - things got worse a week later again. I'm guessing it just takes

time for the bioflora of the cut to change ecologically. Like, it's OK to add

frogs to an environment if there is something to eat the frogs, but if there

isn't watch out. Soon you'll have to use frog poison, but only after the frogs

have had a chance to overpopulate. Then if you start adding something that eats

frogs, you can add the frogs again. No problem.

>>

>> >

>>

>> > Sometimes I wish I could have a microscope installed to see what I'm

dealing with in there. ;b

>>

>> >

>>

>> > Kat

>>

>> > 27

>>

>> > UC since June 09

>>

>> > SCD since Feb 10

>>

>> > Prednisone 10mg, acyclovir, multi. every other day

>>

>> >

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> _________________________________________________________________

>> Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

>>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID27925::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:032010_1

>>

>

>

[Guest guest]

> Kat, how do you know when your electrolytes are low?

>

>

>

I guess I don't " know " per se, but when I go into flair, it hurts pretty bad to

drink water, so I end up getting dehydrated (going 8 times/day doesn't help

either). My skin gets all dry and flaky, headaches, dizzy, etc. Also due to

blood loss probably. Then a couple days later, if I get things under control, I

am soooo thirsty. I drink a ton of water and eat salt, but in my current diet, I

have a source of potassium (avocados, other fruit), but none of my

fruits/veggies are high magnesium sources. There are some kinds of fish that are

relatively high, so I'm gonna try those soon.

So it's really just calculation.

Another symptom I've developed is my fingers not wanting to open/close very

quickly - not sure if that's lack of electrolytes or arthritis setting in due to

prednisone.

If you think you need electrolytes, theres an SCD recipe, and people on the list

also suggested substituting magnesium and potassium for baking soda in the

recipe, or just buying e-lyte, a sports drink with no sugar. I just googled it

and got some info - so far can't find it anywhere though.

Kat