Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 Royce, did you go up in the strength of the Remicade, or adjust how often you were getting infusions? I know it's not for everyone-- but generally if it helped on the first infusion, and then stopped helping-- it means that the dosage and interval of your infusions needs to be adjusted. I'm glad that Imuran is helping, and that you're able to be weaning off the pred. Best wishes, Tracie NS Co-owner/moderator Subject: Re: House diagnosisTo: Neurosarcoidosis Date: Friday, May 1, 2009, 8:19 AM >i've tried remicade but after 4mo. the only treatment i felt no pain was the 1st one, so i quit taking it. i hope it works better for you.GOD bless> > > > > > > > > > > > > > > I'll chime in here folks. I have ns without significant pulmonary involvement. The docs think they see something in the lungs but only if they look really, really close. The radiologist said they would have missed it if they didn't already have a dx of sarc. I've just quit smoking...again. Believe it or not, my sarc flares up everytime I quit. Not the run of the mill, I'm not feeling quite right flare up either. These are the someone hit me with a 2x4 type. I suppose that's what I get for messing around with my immune system. Realistically, I'm not certain which is worse...the prednisone with all the fun side effects or the long term effects of smoking. Figure it's a bad choice either way. Obviously I would never recommend that someone take up smoking...wish I never had.> > > >> > He didn't smoke..he chewed tobacco. They said it acted as an immune suppressent and when he stopped using it the sarcoid flared up. > >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.