Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done..............who is next?????????????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Ok here,,,I have been quiet with the start of the CellCept, and the swelling hands and feet. I had a chest and abdomen Cat-scan done yesterday and xrays of my hands , feet and pelvis. so I am waiting for the results of those tests... oh I could get on here daily and complain.. but I do not want to do that.. I know everyone on here is just as sick as I am.. everyone plz rest and take care of yourself... Many Blessings A. Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done..............who is next?????????????? Hugs to all, Darlene NS Co-Owner/Moderator Shop Inspiron, Studio and XPS Laptops at Dell.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 sorry! I am getting ready for a graduation with my nephew! I can not believe he is already graduating, when it seems like just a couple of years he was just starting school. Time has flown so fast. Well, just wanted to report inSubject: Let's have a Roll Call!!!To: Neurosarcoidosis Date: Wednesday, June 3, 2009, 6:29 PM Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Ok lets see I have a pulse so I guess I am still alive. I am in pain that does it I know for a fact I am still alive. Learning to deal Pre Diabetes as a result of Prednisone usage. Urging docs to switch me to Remicade or Humria. Have lost 20 bls. of the 80 I packed on 2 months with prednisone. So I am doing good and wish everyone a painfree day. Greg aka Krumdawg > > Hi everyone, > The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. > > Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. > > Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. > > Ok........just jump in here and give us an update on YOU! > I am done..............who is next?????????????? > > Hugs to all, > Darlene > NS Co-Owner/Moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi , Thanks for your roll call. Hope you are doing better and get good results from your tests.......:-) Hugs, Darlene NS Co-Owner/Moderator Re: Let's have a Roll Call!!! Ok here,,,I have been quiet with the start of the CellCept, and the swelling hands and feet. I had a chest and abdomen Cat-scan done yesterday and xrays of my hands , feet and pelvis. so I am waiting for the results of those tests... oh I could get on here daily and complain.. but I do not want to do that.. I know everyone on here is just as sick as I am.. everyone plz rest and take care of yourself... Many Blessings A. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 OK I will sound off. I have been sick also. Pneumonia. Down for a whole week with this stuff. Just getting over it. I already coughed up a lung. lol I started therapy again because I fell in the parking lot of a shopping mall. Thank God for my daughter. She came running out and took charge. Telling people to get back I will get her up. And she did. Gosh even security was called. how embarrassing. Anyway I lost some of my confidence in walking but I will get it back. "I get knocked down but I get up again. No body going to keep me down." Anyone remember that song.? Well because of the pneumonia I got dehydrated and now I have a UTI. This too shall pass. Graduation parties this weekend. Granddaughter coming to stay with me and "take care of me". Got to love that girl. That is about what is going on in Mauston, Wisconsin. OH yes the weather is beautiful today. Finally. Jackie Thinking of you all and you are all in my prayers. Let's have a Roll Call!!! Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done..............who is next?????????????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi Greg, I can sympathize with you on the weight gain from the prednisone! I gained 60 lbs in my first two months on it and unfortunately, I have not been able to lose it. I am glad you have been able to lose at least 20 of yours. Keep up the good work. Glad you are doing well. Hugs, Darlene NS Co-Owner/Moderator Re: Let's have a Roll Call!!! Ok lets see I have a pulse so I guess I am still alive. I am in pain that does it I know for a fact I am still alive. Learning to deal Pre Diabetes as a result of Prednisone usage. Urging docs to switch me to Remicade or Humria. Have lost 20 bls. of the 80 I packed on 2 months with prednisone. So I am doing good and wish everyone a painfree day.Greg aka Krumdawg>> Hi everyone,> The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. > > Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists.> > Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. > > Ok........just jump in here and give us an update on YOU!> I am done..............who is next??????????????> > Hugs to all,> Darlene> NS Co-Owner/Moderator> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi , Hope your nephew's graduation goes well. As I said earlier, I have had two granddaughters graduate in the last two weeks! Busy and rough time - those graduations........ but nice. They all grow up so fast. Take care and thanks for checking in. Enjoy the graduation. Hugs, Darlene NS Co-Owner/Moderator Let's have a Roll Call!!!To: Neurosarcoidosis Date: Wednesday, June 3, 2009, 6:29 PM Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi Jackie, Geez, sounds like you have had it rough too..... You take care and keep that attitude! I have a little problem with confidence in my walking also, but I am keeping on doing it anyway. I stumble and fall and I know I look funny, but.........hey, I am alive and I am still able to get around. Keep up the good work. Enjoy the graduations...........I did mine, but I was so very tired. Take care and do not over do. Hugs, Darlene NS Co-Owner/Moderator Let's have a Roll Call!!! Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done..............who is next?????????????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done..............who is next?????????????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Hi, I'm still lurking now and then. I'm trying to spend less time on the computer and more time getting out and enjoying life and getting exercise. I feel best when out in the sun. So far (knock on wood) I've got this thing beat. Hope everyone is doing well. regards, Rick Subject: Let's have a Roll Call!!!To: Neurosarcoidosis@ yahoogroups. comDate: Wednesday, June 3, 2009, 6:29 PM Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Well I am still alive, though barely hanging on. I'm sorry I haven't been around, I've been reading, but dealing with depression, I read but feel like I have nothing to say thatwould make any sense these days. It's not that I'm doing worse, I think. In fact I am doing P.T. twice a week, and he thinks I am doing better, I guess a little, it's been coldand rainy here, and cold rain " hurts " so I'm sure that's part of it. Greg I'm glad you were able to lose some weight, I know thatadds to my depression, I gained 40 lbs, and have not lost any, and that really gets me down, especially as we are going to a family reunion, my husbands side and my two sister in laws, brothers wife, are tiny and in good shape. It's in Wis. a Condo on a lake, yea, lets see, I can't do sun, probably can't swim like I use to, since limited use of my legs, but then again that would be out in the sun right? I love the Aunt and Uncle we are seeing, this Aunt has had Scleraderma since her 30's it's an auto immune disease too. My Mother in law died about 16 years ago, and she's been like a Mother in law to me, she is my Mother in Law's baby sister, and her whole family grew up with my husbandsfamily, and thus the reunion, so I know it will be good tosee them, just nervous, can't walk far, so do I run the wheelchair through the mud and lake , OK trying to make light of it. OK then to top it off, my daughter who is a good girl, made a poor decision the last week of school, she said she was afraidsomething bad was going to happen, as that's true the last few years, last year Tornado, year before they were in lock down as a some Man ran around the building with a gun, and the year before some one started fire in the building. So she took a " steak knife " to school with her, and now she has an expulsion until Jan 2010, we've been to a hearing, appealed it, etc. and this is such stress, and of course you know what stressdoes??? We haven't heard back on the appeal, so maybe we will be blessed with some good news there, sure could use it. Thankfully I get my Remicade tomorrow, so this has not been a great weekanyway. Boy just when you think you're on the right track you derail. But, I am here, and with Tracie out, will try to help out more, I will however be down for about 3 days after my Remicade, but I will be back. Sorry this is so long, and I hope this finds everyone hanging in there, Blessings to all, Marla Hi Greg,       I can sympathize with you on the weight gain from the prednisone!  I gained 60 lbs in my first two months on it and unfortunately, I have not been able to lose it.  I am glad you have been able to lose at least 20 of yours.  Keep up the good work.  Glad you are doing well. Hugs, Darlene NS Co-Owner/Moderator   Re: Let's have a Roll Call!!! Ok lets see I have a pulse so I guess I am still alive. I am in pain that does it I know for a fact I am still alive. Learning to deal Pre Diabetes as a result of Prednisone usage. Urging docs to switch me to Remicade or Humria. Have lost 20 bls. of the 80 I packed on 2 months with prednisone. So I am doing good and wish everyone a painfree day.Greg aka Krumdawg>> Hi everyone,> The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. > > Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists.> > Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. > > Ok........just jump in here and give us an update on YOU!> I am done..............who is next??????????????> > Hugs to all,> Darlene> NS Co-Owner/Moderator> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Marla Sorry to hear about your daughter. I hope all goes well for her. I don't blame her for being a little worried. Good luck. Where in Wisconsin are you going. As for the sun it doesn't come out all that much so far this year. lol But I am sure your aunt will probably have an umbrella for you to sit under. Take care Jackie Re: Let's have a Roll Call!!! Ok lets see I have a pulse so I guess I am still alive. I am in pain that does it I know for a fact I am still alive. Learning to deal Pre Diabetes as a result of Prednisone usage. Urging docs to switch me to Remicade or Humria. Have lost 20 bls. of the 80 I packed on 2 months with prednisone. So I am doing good and wish everyone a painfree day.Greg aka Krumdawg>> Hi everyone,> The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. > > Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists.> > Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. > > Ok........just jump in here and give us an update on YOU!> I am done..............who is next??????????????> > Hugs to all,> Darlene> NS Co-Owner/Moderator> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Hi All, I have not been on the boards for a long time. I actually have been doing pretty well. The sarc has been quiet. that being said, I have been very sick the last two months. First with a bad cold that went into chest wall infection. Then, I developed colitis. Then, when I finally got off all the antibiotics, I developed very bad asthma.Never had that before, not like that. Did see the pulmonary nurse practitioner..So,on steroids, but they think it's asthma, not sarc!!! Ae they right?? Who knows. Now having vision problems with this kind of ghosting visual thing.My ophthamologist doesn't see anything wrong, but is sending me to the retina guy... The practice that I work for has moved to a beautiful new office, we even have a psychiatrist in our office now. And get this,he told me about a patient he has with neurosarc. I never even mentioned it first. So, then I told him that this is a possible diagnosis for me. It's kind of amazing to hear someone who knows of this disease just off the top of his head. I'm sure that you all know what I mean. I do lurk here alot. Just felt that I was doing so well, I didn't have much to share. Best days to you all. Bonnie B Let's have a Roll Call!!! Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done..............who is next?????????????? Hugs to all, Darlene NS Co-Owner/Moderator Limited Time Offers: Save big on popular laptops at Dell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Oh, man, Marla, that's heartbreaking! I get the idea behind "zero tolerance," but isn't there still room for common sense? In Indiana a young boy realized he had left his Boy Scout knife in his jacket & turned it in to the principal. You know it--he got expelled! He could have just kept his mouth shut, but was punished for doing what he thought was the right thing. And meanwhile the cyberbullying just keeps getting worse. Give your baby a gentle hug from her Auntie Rose, okay? Ramblin' RoseModerator "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: mebramer@...Date: Thu, 4 Jun 2009 09:39:36 -0600Subject: Re: Re: Let's have a Roll Call!!! Well I am still alive, though barely hanging on. I'm sorry I haven't been around, I've been reading, but dealing with depression, I read but feel like I have nothing to say thatwould make any sense these days. It's not that I'm doing worse, I think. In fact I am doing P.T. twice a week, and he thinks I am doing better, I guess a little, it's been coldand rainy here, and cold rain "hurts" so I'm sure that's part of it. Greg I'm glad you were able to lose some weight, I know thatadds to my depression, I gained 40 lbs, and have not lost any, and that really gets me down, especially as we are going to a family reunion, my husbands side and my two sister in laws, brothers wife, are tiny and in good shape. It's in Wis. a Condo on a lake, yea, lets see, I can't do sun, probably can't swim like I use to, since limited use of my legs, but then again that would be out in the sun right? I love the Aunt and Uncle we are seeing, this Aunt has had Scleraderma since her 30's it's an auto immune disease too. My Mother in law died about 16 years ago, and she's been like a Mother in law to me, she is my Mother in Law's baby sister, and her whole family grew up with my husbandsfamily, and thus the reunion, so I know it will be good tosee them, just nervous, can't walk far, so do I run the wheelchair through the mud and lake , OK trying to make light of it. OK then to top it off, my daughter who is a good girl, made a poor decision the last week of school, she said she was afraidsomething bad was going to happen, as that's true the last few years, last year Tornado, year before they were in lock down as a some Man ran around the building with a gun, and the year before some one started fire in the building. So she took a "steak knife" to school with her, and now she has anexpulsion until Jan 2010, we've been to a hearing, appealed it, etc. and this is such stress, and of course you know what stressdoes??? We haven't heard back on the appeal, so maybe we will be blessedwith some good news there, sure could use it. Thankfully I get my Remicade tomorrow, so this has not been a great weekanyway. Boy just when you think you're on the right track you derail. But, I am here, and with Tracie out, will try to help out more, I will however be down for about 3 days after my Remicade, but I will be back. Sorry this is so long, and I hope this finds everyone hanging in there, Blessings to all, Marla Hi Greg, I can sympathize with you on the weight gain from the prednisone! I gained 60 lbs in my first two months on it and unfortunately, I have not been able to lose it. I am glad you have been able to lose at least 20 of yours. Keep up the good work. Glad you are doing well. Hugs, Darlene NS Co-Owner/Moderator Re: Let's have a Roll Call!!! Ok lets see I have a pulse so I guess I am still alive. I am in pain that does it I know for a fact I am still alive. Learning to deal Pre Diabetes as a result of Prednisone usage. Urging docs to switch me to Remicade or Humria. Have lost 20 bls. of the 80 I packed on 2 months with prednisone. So I am doing good and wish everyone a painfree day.Greg aka Krumdawg>> Hi everyone,> The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing.........what is going on in our lives, and how we are feeling.....and etc. > > Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live.........for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists.> > Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. > > Ok........just jump in here and give us an update on YOU!> I am done..............who is next??????????????> > Hugs to all,> Darlene> NS Co-Owner/Moderator> Hotmail® has ever-growing storage! Don’t worry about storage limits. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Hi Bonnie Sorry to hear what you have been going through. I have had severe asthma since childhood. Plus the sarc. Make sure they really check it out. Hope you feel better soon, Debbie Comoderator Subject: Re: Let's have a Roll Call!!!To: Neurosarcoidosis Date: Thursday, June 4, 2009, 4:46 PM Hi All, I have not been on the boards for a long time. I actually have been doing pretty well. The sarc has been quiet. that being said,I have been very sick the last two months. First with a bad cold that went into chest wall infection. Then, I developed colitis. Then, when I finally got off all the antibiotics, I developed very bad asthma.Never had that before, not like that. Did see the pulmonary nurse practitioner. .So,on steroids, but they think it's asthma, not sarc!!! Ae they right?? Who knows. Now having vision problems with this kind of ghosting visual thing.My ophthamologist doesn't see anything wrong, but is sending me to the retina guy... The practice that I work for has moved to a beautiful new office, we even have a psychiatrist in our office now. And get this,he told me about a patient he has with neurosarc. I never even mentioned it first. So, then I told him that this is a possible diagnosis for me. It's kind of amazing to hear someone who knows of this disease just off the top of his head. I'm sure that you all know what I mean. I do lurk here alot. Just felt that I was doing so well, I didn't have much to share. Best days to you all. Bonnie B Let's have a Roll Call!!! Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Limited Time Offers: Save big on popular laptops at Dell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Debbie, Thanks for your kind words. Wouldn't they know if it's Sarc or not?? I mean, what's the difference between the two?? I'm totally new to the asthma thing. Live on Advair, singular, and a rescue inhaler. Plus the prednisone. I am feeling alot better. Just coming off the prednisone, so hopefully I'll stay that way. Bonnie B Let's have a Roll Call!!! Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Limited Time Offers: Save big on popular laptops at Dell Mortgage rates drop to record lows. $200,000 for $1,029/mo Fixed. LendingTree® Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Hello Marla, I hope this finds you feeling better. The depression is the worst. It's hard to look ahead when you are feeling so bad. Just try to take it one day at a time, like Tracie's "alias:. I have been trying to lose weight too unsuccessfully. The stomach issues would make you think I can lose, HUH.......no way.I hope the reunion cheers you up. Thinking of you with hugs, Debbie Hi Greg, I can sympathize with you on the weight gain from the prednisone! I gained 60 lbs in my first two months on it and unfortunately, I have not been able to lose it. I am glad you have been able to lose at least 20 of yours. Keep up the good work. Glad you are doing well. Hugs, Darlene NS Co-Owner/Moderator Re: Let's have a Roll Call!!! Ok lets see I have a pulse so I guess I am still alive. I am in pain that does it I know for a fact I am still alive. Learning to deal Pre Diabetes as a result of Prednisone usage. Urging docs to switch me to Remicade or Humria. Have lost 20 bls. of the 80 I packed on 2 months with prednisone. So I am doing good and wish everyone a painfree day.Greg aka Krumdawg>> Hi everyone,> The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. > > Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists.> > Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. > > Ok........just jump in here and give us an update on YOU!> I am done........ .......who is next???????? ??????> > Hugs to all,> Darlene> NS Co-Owner/Moderator> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Good to hear you are doing well and so upbeat. I wish you well.. Debbie CoModerator Subject: Let's have a Roll Call!!!To: Neurosarcoidosis@ yahoogroups. comDate: Wednesday, June 3, 2009, 6:29 PM Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 I have had two graduations to go too. My youngest son graduated from the part time tech school he attended and next week he graduates from his home high school. My last one....lol Debbie Subject: Let's have a Roll Call!!!To: Neurosarcoidosis@ yahoogroups. comDate: Wednesday, June 3, 2009, 6:29 PM Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Dear , I hope things are going better for you. We all care.. Debbie COModerator Subject: Re: Let's have a Roll Call!!!To: Neurosarcoidosis Date: Wednesday, June 3, 2009, 7:47 PM Ok here,,,I have been quiet with the start of the CellCept, and the swelling hands and feet. I had a chest and abdomen Cat-scan done yesterday and xrays of my hands , feet and pelvis. so I am waiting for the results of those tests... oh I could get on here daily and complain.. but I do not want to do that.. I know everyone on here is just as sick as I am.. everyone plz rest and take care of yourself... Many Blessings A. Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Shop Inspiron, Studio and XPS Laptops at Dell.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Hi guys, I am sorry I haven't been on. I have been sicker than usual lately, and fell and bummed myself up. I have been so exhausted I wasn't even checking my email once a week. Sorry. I know everyone has been feeling bad lately; I will hush griping. Take care, Connie (FL) Subject: Re: Let's have a Roll Call!!!To: Neurosarcoidosis Date: Wednesday, June 3, 2009, 7:47 PM Ok here,,,I have been quiet with the start of the CellCept, and the swelling hands and feet. I had a chest and abdomen Cat-scan done yesterday and xrays of my hands , feet and pelvis. so I am waiting for the results of those tests... oh I could get on here daily and complain.. but I do not want to do that.. I know everyone on here is just as sick as I am.. everyone plz rest and take care of yourself... Many Blessings A. Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Shop Inspiron, Studio and XPS Laptops at Dell.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2009 Report Share Posted June 7, 2009 Dear Connie, Sorry you have been so ill lately. I hope things get better for you soon. Thanks for checking in even under crappy circumstances... Debbie Co-Moderator Subject: Re: Let's have a Roll Call!!!To: Neurosarcoidosis Date: Wednesday, June 3, 2009, 7:47 PM Ok here,,,I have been quiet with the start of the CellCept, and the swelling hands and feet. I had a chest and abdomen Cat-scan done yesterday and xrays of my hands , feet and pelvis. so I am waiting for the results of those tests... oh I could get on here daily and complain.. but I do not want to do that.. I know everyone on here is just as sick as I am.. everyone plz rest and take care of yourself... Many Blessings A. Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Shop Inspiron, Studio and XPS Laptops at Dell.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 Congratulations to your son, Debbie! Is he also your youngest child? Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: rozebudz36@...Date: Sat, 6 Jun 2009 06:17:27 -0700Subject: Re: Let's have a Roll Call!!! I have had two graduations to go too. My youngest son graduated from the part time tech school he attended and next week he graduates from his home high school. My last one....lol Debbie Subject: Let's have a Roll Call!!!To: Neurosarcoidosis@ yahoogroups. comDate: Wednesday, June 3, 2009, 6:29 PM Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Hotmail® has ever-growing storage! Don’t worry about storage limits. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 Connie, I hope you didn't hurt yourself seriously. And you know you can gripe all you want here. It helps get my mind off my own problems when I know what others are going through. And if you vent really well, you might earn a "Rant Score!" Ramblin' RoseModerator "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: conaugusta@...Date: Sat, 6 Jun 2009 07:13:17 -0700Subject: Re: Let's have a Roll Call!!! Hi guys, I am sorry I haven't been on. I have been sicker than usual lately, and fell and bummed myself up. I have been so exhausted I wasn't even checking my email once a week. Sorry. I know everyone has been feeling bad lately; I will hush griping. Take care, Connie (FL) Subject: Re: Let's have a Roll Call!!!To: Neurosarcoidosis Date: Wednesday, June 3, 2009, 7:47 PM Ok here,,,I have been quiet with the start of the CellCept, and the swelling hands and feet. I had a chest and abdomen Cat-scan done yesterday and xrays of my hands , feet and pelvis. so I am waiting for the results of those tests... oh I could get on here daily and complain.. but I do not want to do that.. I know everyone on here is just as sick as I am.. everyone plz rest and take care of yourself... Many Blessings A. Hi everyone, The list is SOOOO quiet! Let's have a Roll Call! We have nearly 600 members now and there is no reason that this list should be quiet. There are many things to discuss, questions to ask, and etc. Let's check in and see how everyone is doing....... ..what is going on in our lives, and how we are feeling..... and etc. Myself, I am just getting over the worst case of flu that I have ever had and my hubby has it also. We have been VERY ill. However, I think we are both going to live........ .for awhile there, I was not sure. :-) In the last two weeks, we have had two granddaughters graduate from High School too. We have been busy. I have had to reschedule my Stress Test and EKG until next week as I was just too ill to do it. It was supposed to be yesterday. My Doctors are very worried about all the swelling in my legs, ankles, and wrists. Tracie is taking a much needed rest away from here for awhile but I am here as well as the other Moderators. If you need help or have questions, please feel free to ask and we will get you some answers. We are all sick, so please be patient. Someone WILL answer your questions. Ok........just jump in here and give us an update on YOU! I am done........ ......who is next???????? ?????? Hugs to all, Darlene NS Co-Owner/Moderator Shop Inspiron, Studio and XPS Laptops at Dell.com found her dream laptop. Find the PC that’s right for you. Quote Link to comment Share on other sites More sharing options...
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