Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 hi everyone, i have been very busy running back and forth to soccer games, baseball games, little league and softball games. ah the joys of having 3 children. i have been feeling about the same in fact i relie on my walker more now than ever. i still go to cleveland clinic once of month for remicade infusions. had alot of parkinsons type thing going on with my arms , i could not stop them from wailing all over the place! does anyone else have this problem? so i was diagnosed with neurosarcoidosis in august of 08, well on may 20, 2009 my son was diagnosed with crohns disease!! he had a case so bad he was bleeding internally!! poor kid!! he is currently on steriods as well. we call each other the roid ragers. lol. my husband might have to get another job just to support our eating habits!! he pretty much eats anything that is not tied down!! anyway the doctor told my husband and myself that if the steroids do not work then he will have to be on remicade like me! omg here we go again!! my poor husband is about to crack!! don't know how much more we can take!! well there you have it ! that is what is up with me! i hope and pray that everyone is feeling well! your sarc buddie~~~barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Sear Barb, I don't know how you do all the running around that you do. I couldn't that's for sure. You are strong in that respect. Sorry to hear about your son's diagnosis. Two ill individuals in the family must be really hard. Hope you are both looking up, Debbie CoModerator Subject: checking in!To: Neurosarcoidosis Date: Wednesday, June 3, 2009, 11:56 PM hi everyone, i have been very busy running back and forth to soccer games, baseball games, little league and softball games. ah the joys of having 3 children. i have been feeling about the same in fact i relie on my walker more now than ever. i still go to cleveland clinic once of month for remicade infusions. had alot of parkinsons type thing going on with my arms , i could not stop them from wailing all over the place! does anyone else have this problem? so i was diagnosed with neurosarcoidosis in august of 08, well on may 20, 2009 my son was diagnosed with crohns disease!! he had a case so bad he was bleeding internally!! poor kid!! he is currently on steriods as well. we call each other the roid ragers. lol. my husband might have to get another job just to support our eating habits!! he pretty much eats anything that is not tied down!! anyway the doctor told my husband and myself that if the steroids do not work then he will have to be on remicade like me! omg here we go again!! my poor husband is about to crack!! don't know how much more we can take!! well there you have it ! that is what is up with me! i hope and pray that everyone is feeling well!your sarc buddie~~~barb Quote Link to comment Share on other sites More sharing options...
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