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Your screename:tabjay2001

Your real name:Tabitha

Clubfoot connection(child, spouse, grandchild, yourself,etc): son, Karter

Age of clubfoot child/person:18 months

Treatment:non-ponseti dr first, started seeing Dr. Ponseti at 14 months

recasted, never had tenotomy, had open pressure sores 2 times currently in the

's

Other info(other siblings, country, etc):Big sister, Brittanie almost 6, We

live in eastern Iowa about 1.5 hour from Iowa city.

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Your screename:tabjay2001

Your real name:Tabitha

Clubfoot connection(child, spouse, grandchild, yourself,etc): son, Karter

Age of clubfoot child/person:18 months

Treatment:non-ponseti dr first, started seeing Dr. Ponseti at 14 months

recasted, never had tenotomy, had open pressure sores 2 times currently in the

's

Other info(other siblings, country, etc):Big sister, Brittanie almost 6, We

live in eastern Iowa about 1.5 hour from Iowa city.

---------------------------------

Bring words and photos together (easily) with

PhotoMail - it's free and works with Yahoo! Mail.

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  • 3 years later...
Guest guest

Hi All,

I'm still about the same. Waiting to go back to the Neuro. I hope that she will

put me on something for those jerking shaking spells I have. I hve had sleep

study, checked for seizures, they did find a spot on my brain and also calcfied

places, the Dr. at Emory saidd it was doe to the neuro- sarc, they have tried

anything but high doese of prednisone , plaqanile, and metgatrexate and also a

beta blocker for tremors. The spells has worsened over the last few months and

my last pft was worse.

All of me joints and bones hurt and swell. I didn't mean to complain. I know

that God is in control.

I hope everyone is having a good , or as good as possible.

Alice

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