Guest guest Posted February 10, 2009 Report Share Posted February 10, 2009 Barb, the one thing about Remicade and your insurance, don't give up, keep going through all the appeals, I think it took the 3rd outside appealto get me Remicade, so hang in there, I know the Sarcoid does not go on hold while we are waiting, but hang in there. MarlaMay the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace. (Numbers 6:24-26) good to be home!! Jess and Jackie , yes i also had about 5 spinal taps and the last one showed that the inflammation was gone but yet i still had many syptoms . This seems to be the great mystery of this disease because all the test are coming back with nothing wrong but my body says different!! The pulmonary doc at cleveland clinic said the ns which yes has been confirmed can be in the brain but not show its ugly head unless they go in and actually crack my coconut. Not ready for that one. Dr. is fighting insurance for the remicade infusions unfortunately the disease itself does not want to wait!!! Hope all is well with everyone! Any news on Debbies grandson? Keep Praying barb Quote Link to comment Share on other sites More sharing options...
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