Re: New to this Disease

[Guest guest]

>

> Hey everyone, my husband just got diagnosed with neurosarcoidosis

last

> week. Of course, our neurologist spent a lot of time going over the

> severe side effects of taking the high doses of prednisone, but I

> really want to hear how others & their spouses are dealing with

this

> same thing. He has it in his hypothalamus, which I've heard is a

rare

> area, so I just haven't found any information out there. Any

> information would be appreciated. The side effects that they

talked

> about him having with the medication seem to be right in line with

the

> symptoms that he was experiencing that lead us to go to the doctors

in

> the first place-weight gain, severe irritability ,diabetes

symptoms,

> etc. I already have seen our marriage be affected by this & it

hurts

> so much. He & I are both in our 20's & have only been married for

a

> year, so this has really tested us.

>

Hi My Mum diagnosed with neurosarcoidosis October last year My Mum

had it on the brain by the end my Mum died on 24/12/08 but she had

many things wrong with her,she was a very sick people Mum was only

61yrs old.My wishes go out to you & your husband hope things work out

for you both and yes it is a big test for you both.Please dont give

up hope your husband is very young.

Love Ann Thorpe.