IS THIS WHAT A NORMAL IMMUNE SYSTEM FEELS LIKE?

[Guest guest]

I've been on Cytoxan for so long and haven't had a treatment for months because

of being treated for the MRSA with the IV Vancomycin. OOOOOOOOOO I want to get

on something other than the Cytoxan! I am still going to try to get the Remicade

but is there something similar I can try in the meantime? Something that doesn't

turn a minor scrape on the knee into 6 days in the hospital? UGGGG. I am so

ticked off at this disease. I know I have 2 more doc appts next week and then

everyone is signed off and I have no excuse not to go back to Cytoxan. Oh well,

if it's Cytoxan or Die then I choose Cytoxan but the crap's not working anyway

so why not try something else? I'm just ranting & brainstorming with the group

to present it to my sarc docs. I'm about 60 emails behind but I'll catch up

today & tomorrow if I continue to feel this good! Hope everyone(or as we say in

KY " all yall " ) is doing better than before!

the Lunatic

[Guest guest]

hey rant away. I love this site. all of us rant and rave and realize we

are not alone.

Hope all goes well.

Tacky Jackie

IS THIS WHAT A " NORMAL " IMMUNE SYSTEM FEELS

LIKE?

> I've been on Cytoxan for so long and haven't had a treatment for months

> because of being treated for the MRSA with the IV Vancomycin. OOOOOOOOOO I

> want to get on something other than the Cytoxan! I am still going to try

> to get the Remicade but is there something similar I can try in the

> meantime? Something that doesn't turn a minor scrape on the knee into 6

> days in the hospital? UGGGG. I am so ticked off at this disease. I know I

> have 2 more doc appts next week and then everyone is signed off and I have

> no excuse not to go back to Cytoxan. Oh well, if it's Cytoxan or Die then

> I choose Cytoxan but the crap's not working anyway so why not try

> something else? I'm just ranting & brainstorming with the group to present

> it to my sarc docs. I'm about 60 emails behind but I'll catch up today &

> tomorrow if I continue to feel this good! Hope everyone(or as we say in KY

> " all yall " ) is doing better than before!

> the Lunatic

>

>

>

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[Guest guest]

Good to hear from you, glad you are feeling better.  As for me the Remicade is great, but it too leaves you open for infections, I'm not sure there is one our there, maybe someone else knows. I hope you stay feeling good for awhile. 

OK, I have a stupid question, Is the MRSA contiguous?  I just assumed it was, being it's an infection.  Thanks, Marla

I've been on Cytoxan for so long and haven't had a treatment for months because of being treated for the MRSA with the IV Vancomycin. OOOOOOOOOO I want to get on something other than the Cytoxan! I am still going to try to get the Remicade but is there something similar I can try in the meantime? Something that doesn't turn a minor scrape on the knee into 6 days in the hospital? UGGGG. I am so ticked off at this disease. I know I have 2 more doc appts next week and then everyone is signed off and I have no excuse not to go back to Cytoxan. Oh well, if it's Cytoxan or Die then I choose Cytoxan but the crap's not working anyway so why not try something else? I'm just ranting & brainstorming with the group to present it to my sarc docs. I'm about 60 emails behind but I'll catch up today & tomorrow if I continue to feel this good! Hope everyone(or as we say in KY " all yall " ) is doing better than before!

the Lunatic