Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 HAPPY BIRTHDAY DEAR TERRI....... AND MANY HEALTHY MORE Many Blessings A. thank you mary, my gut says to seek a second opinion at cleveland clinic ! the doc here in western ny do not know about this disease. that is why i personally go to cleveland clinic. have a blessed day ! ~~~barb From: Solberg <mary_s777 (AT) yahoo (DOT) com>To: Neurosarcoidosis Sent: Friday, June 12, 2009 2:12:03 PMSubject: Re: calling all sarkies !! i need help with a situation . please respond ! I'd say...Go with your gut. it sure wouldn't hurt to have it checked out. I can't tell you the number of times docs have screwed up my diagnoses or read tests wrong. Take a deep breath and do what you think is right. hugs S. 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV)."No one whose hope is in You will ever be put to shame….Show me Yourways, O LORD, teach me Your paths; guide me in Your truth and teachme, for You are God my Savior, and My hope is in You all day long."Psalm 25:3,4,5 NIV From: beautybarnweber <beautybarnweber@ yahoo.com>Subject: calling all sarkies !! i need help with a situation . please respond !To: Neurosarcoidosis@ yahoogroups. comDate: Friday, June 12, 2009, 1:27 PM as you all know i have been diagnosed with neurosarcoidosis in august 08. well just this past may 09 my 13 year old son was diagnosed with crohns disease. the doc said the biopsy would check for anything else. so yesterday june 11,2009 i went for dj's follow up visit and that is when i heard the dreaded word "granuloma" . well my heart was in my throat ! not my kid now ! so the doctor tried to reassure me that it was just crohns disease. i am telling you all ,something in me tells me to have the cleveland clinic check him out ! what do you think i should do ?this is what the fsr pamphelet says about granuloma's:a biopsy that shows evidence of granulomas in any of your tissures is probably the best indication that you have sarcoidosisnot sure what to do , but the mother bear in me is coming out !!------------ --------- --------- ------~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityCHATROOM LINK: http://www.sarcbuddies.com -- Open all the time..... Message Archives:-http://groups. yahoo.com/ group/Neurosarco idosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups. yahoo.com/ group/Neurosarco idosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 , it's good to see you posting. I was about to write you, seeing if you were okay. Hang in there, okay? Ramblin' RoseModerator "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: JessicAbouhamama@...Date: Sat, 13 Jun 2009 13:24:31 -0400Subject: HAPPY BIRTHDAY TERRI HAPPY BIRTHDAY DEAR TERRI....... AND MANY HEALTHY MORE Many Blessings A. thank you mary, my gut says to seek a second opinion at cleveland clinic ! the doc here in western ny do not know about this disease. that is why i personally go to cleveland clinic. have a blessed day ! ~~~barb From: Solberg <mary_s777 (AT) yahoo (DOT) com>To: Neurosarcoidosis Sent: Friday, June 12, 2009 2:12:03 PMSubject: Re: calling all sarkies !! i need help with a situation . please respond ! I'd say...Go with your gut. it sure wouldn't hurt to have it checked out. I can't tell you the number of times docs have screwed up my diagnoses or read tests wrong. Take a deep breath and do what you think is right. hugs S. 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV)."No one whose hope is in You will ever be put to shame….Show me Yourways, O LORD, teach me Your paths; guide me in Your truth and teachme, for You are God my Savior, and My hope is in You all day long."Psalm 25:3,4,5 NIV From: beautybarnweber <beautybarnweber@ yahoo.com>Subject: calling all sarkies !! i need help with a situation . please respond !To: Neurosarcoidosis@ yahoogroups. comDate: Friday, June 12, 2009, 1:27 PM as you all know i have been diagnosed with neurosarcoidosis in august 08. well just this past may 09 my 13 year old son was diagnosed with crohns disease. the doc said the biopsy would check for anything else. so yesterday june 11,2009 i went for dj's follow up visit and that is when i heard the dreaded word "granuloma" . well my heart was in my throat ! not my kid now ! so the doctor tried to reassure me that it was just crohns disease. i am telling you all ,something in me tells me to have the cleveland clinic check him out ! what do you think i should do ?this is what the fsr pamphelet says about granuloma's:a biopsy that shows evidence of granulomas in any of your tissures is probably the best indication that you have sarcoidosisnot sure what to do , but the mother bear in me is coming out !!------------ --------- --------- ------~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityCHATROOM LINK: http://www.sarcbuddies.com -- Open all the time..... Message Archives:-http://groups. yahoo.com/ group/Neurosarco idosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups. yahoo.com/ group/Neurosarco idosis/database Quote Link to comment Share on other sites More sharing options...
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