Re: Anyone start treatment when your child was a toddler? Currently adopting an 18 mon. old from China

[Guest guest]

Yes.. My son started wearing the corrective shoes at 14 months. And now (at 2

1/2 yrs) has just been fitted with the bar. We're having struggles.

Yes at night is apparently the most important time to wear it.

H wrote:

I want to introduce myself to the group. My name is Holly and we are

currently adopting a wonderful baby from China. We requested special needs and

she has a right club foot (not sure of the correct term but pointing downward

and inward). We hope to bring her home when she is about 16-18 months old. We

are so in love with her and can't wait to hold her!

Does anyone have experience treating their child as a toddler or older

(beginning treatment)? We have emailed Dr. Ponseti and he has been wonderful.

We are definately considering going to Iowa for treatment.

Also, in all of the brace photos I see a bar between the two shoes. Is this

what our daughter will wear when she sleeps even though only one foot is

affected?

Thanks for your help. We are trying to learn as much as possible and look

forward to learning from you!

Holly

Blessed Mom to

Caroline from China -age 6

from Guatemala - age 3

Mia from China- age 1

---------------------------------

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Congratulations on your new baby. They are such

blessings.

My daughter, Kelsey, was 10 months old when she began

Ponseti method treatment. She was 12 months when she

had the tenotomy and then almost 13 months when she

went into the FAB(the shoes with the bar) for 3 months

at 23 hours daily. She has done great. Your daughter

will wear the FAB as well even with only one foot

affected. Kelsey only has a left clubfoot. She now

sleeps in the brace at night. I am so grateful that

we chose the Ponseti method even if we chose it late.

If it is possible for you to go to Iowa for treatment,

I am sure that you will not be sorry. No one knows

more about all of this than he does.

Jenni

--- H wrote:

> I want to introduce myself to the group. My name is

> Holly and we are currently adopting a

> wonderful baby from China. We requested special

> needs and she has a right club foot (not sure of the

> correct term but pointing downward and inward). We

> hope to bring her home when she is about 16-18

> months old. We are so in love with her and can't

> wait to hold her!

>

> Does anyone have experience treating their child as

> a toddler or older (beginning treatment)? We have

> emailed Dr. Ponseti and he has been wonderful. We

> are definately considering going to Iowa for

> treatment.

>

> Also, in all of the brace photos I see a bar between

> the two shoes. Is this what our daughter will wear

> when she sleeps even though only one foot is

> affected?

>

> Thanks for your help. We are trying to learn as

> much as possible and look forward to learning from

> you!

>

> Holly

> Blessed Mom to

> Caroline from China -age 6

> from Guatemala - age 3

> Mia from China- age 1

>

>

>

> ---------------------------------

> Yahoo! FareChase - Search multiple travel sites in

> one click.

>

> [Non-text portions of this message have been

> removed]

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

HI Holly and welcome to the group. What a gift you will receive from adopting

this special child. Though my experience is with an infant, a friend of mine

and a member of this group, Joyce, adopted a child from China as well.

is her name and she suffered from very severe BL CF and is undergoing treatment

with Dr. Ponseti.

Dr. Ponseti is an amazing man as we have been to him as well. I wish you all

the best and please email Joyce. She will be thrilled to hear from you. She has

been very busy with , practically living at the Mc House for

months while Dr. Ponseti treats who had already learned to walk on her

BL CF. It is an amazing story that I am sure she will share with you. Here is

her email:childrenloveall@...

B.

Mom to (6-11-05) corrected BL CF - Ponseti/M 22/7

H wrote:

I want to introduce myself to the group. My name is Holly and we are

currently adopting a wonderful baby from China. We requested special needs and

she has a right club foot (not sure of the correct term but pointing downward

and inward). We hope to bring her home when she is about 16-18 months old. We

are so in love with her and can't wait to hold her!

Does anyone have experience treating their child as a toddler or older

(beginning treatment)? We have emailed Dr. Ponseti and he has been wonderful.

We are definately considering going to Iowa for treatment.

Also, in all of the brace photos I see a bar between the two shoes. Is this

what our daughter will wear when she sleeps even though only one foot is

affected?

Thanks for your help. We are trying to learn as much as possible and look

forward to learning from you!

Holly

Blessed Mom to

Caroline from China -age 6

from Guatemala - age 3

Mia from China- age 1

---------------------------------

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Was he casted since 14mo's up till now? What prompted the bar and

shoes just now if not? Non-surgical cluboot treatment involves 4-7

weekly castings (9 being the max) and then immediately into the shoes

and bar for 3 mo's full time, then gradually decreasing over the next

year. Night time wear alone is ONLY indicated after the child has

been through the longer hours over the first year in the brace,

although older children are often given an accelerated decreasing

because of age. They still must wear the brace full time for at least

6w (more like 8 or even 12 depending on severity) and then still

gradually decreasing over the next few months. 12-14hr/d (nights

only) is the last phase of the treatment process, and comes to

walkers who have worn the brace longer hours for a while (most often

12-16mo's in age assuming treatment started in infancy). By then

these children are so used to the brace they do not complain much if

at all (mine can't hardly sleep without hers actually) which is one

of the advantages to having done the longer hours previously.

Can you tell us more about his treatment thus far and where you're

located (what doc are you seeing?)? With the information you've

posted, it sounds like something is very amiss with his treatment and

I would recommend that you get a second opinion from a Ponseti

trained doc immediately. If you've just been fitted for the FAB

(shoes and bar) without proper full correction attained, no wonder

he's having struggles wearing it. Uncorrected feet cannot wear this

brace well if at all, and most tolerance issues are a result of

uncorrected feet prematurely fitted for the FAB. It should not be a

struggle at all and absolutely should have been done a long time

ago. However it is not too late to get him to a good doc who knows

how to treat older children, there has been great success lately with

older children so do not despair. Unfortunately not all docs are

created equal with this method, and I fear your child may have been a

victim of this if indeed he has just started wearing the FAB after

this long just in corrective shoes. If I am assuming incorrectly, I

apologize. If not however, we can help you to know what should be

happening and help you to find someone who can truly fix your son's feet.

I am looking forward to hearing more about you and your son. You are

not alone with this, many other parents have been in your same shoes

only to come out of it with happy little feet. Just let us know a

little more about what's going on and we can help you figure it all out.

Welcome!

Kori

At 11:53 AM 10/31/2005, you wrote:

>Yes.. My son started wearing the corrective shoes at 14 months. And

>now (at 2 1/2 yrs) has just been fitted with the bar. We're having struggles.

> Yes at night is apparently the most important time to wear it.

>

>H wrote:

>I want to introduce myself to the group. My name is Holly and

>we are currently adopting a wonderful baby from China. We

>requested special needs and she has a right club foot (not sure of

>the correct term but pointing downward and inward). We hope to

>bring her home when she is about 16-18 months old. We are so in

>love with her and can't wait to hold her!

>

>Does anyone have experience treating their child as a toddler or

>older (beginning treatment)? We have emailed Dr. Ponseti and he

>has been wonderful. We are definately considering going to Iowa for treatment.

>

>Also, in all of the brace photos I see a bar between the two

>shoes. Is this what our daughter will wear when she sleeps even

>though only one foot is affected?

>

>Thanks for your help. We are trying to learn as much as possible

>and look forward to learning from you!

>

>Holly

>Blessed Mom to

>Caroline from China -age 6

> from Guatemala - age 3

>Mia from China- age 1

>

>

>

>---------------------------------

>Yahoo! FareChase - Search multiple travel sites in one click.

>

>

[Guest guest]

Welcome to the group Holly.

My son was almost 10 months old when we started the Ponseti method.

We had a non-Ponseti doctor who was going to operate on 's

feet, but luckily I found this group and Dr. Ponseti's website. I

believe it's possible to correct feet up to the age of 2 with the

Ponseti method. Your daughter will wear the shoes and bar just like

children with bilateral clubfeet, but her non-clubfoot will not be

rotated as far out.

Good luck to you and let us know how things go.

and 11/10/03 bilateral cf dbb 14/7

>

> I want to introduce myself to the group. My name is Holly

and we are currently adopting a wonderful baby from China. We

requested special needs and she has a right club foot (not sure of

the correct term but pointing downward and inward). We hope to

bring her home when she is about 16-18 months old. We are so in

love with her and can't wait to hold her!

>

> Does anyone have experience treating their child as a toddler or

older (beginning treatment)? We have emailed Dr. Ponseti and he

has been wonderful. We are definately considering going to Iowa for

treatment.

>

> Also, in all of the brace photos I see a bar between the two

shoes. Is this what our daughter will wear when she sleeps even

though only one foot is affected?

>

> Thanks for your help. We are trying to learn as much as possible

and look forward to learning from you!

>

> Holly

> Blessed Mom to

> Caroline from China -age 6

> from Guatemala - age 3

> Mia from China- age 1

>

>

>

> ---------------------------------

> Yahoo! FareChase - Search multiple travel sites in one click.

>

>