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Zoe,

My daughter has unilateral A-Typical CF. She uses the s also. I HATED

the Markells as they are not good fits for A-Typical. They were like torcher

chanbers! Anyhow, it IS normal for the heel not to completely fill the back at

first. Dr. Ponseti says,and I have seen it 1st hand with my daughter, that is

takes about 2 weeks for the heel for form back there in the afo. No worries. You

mentioned that you wanted a 2nd opinion on the correction of her foot...how far

dorsoflexed (upwards) and abducted (outwards) is it? Fully corrected should be

at 15%dorsoflexed, and 60-70% abducted. If you have any more questions feel free

to call me...

Christee

Oregon

Lilee ~ Unilateral A-Typical CF w/Plantaris

theresazoe1 wrote:

Hello all,

I'm new to this site and am wondering if anyone can give me any

input. Its been comforting to read other posts and find so many

people who have been dealing with the same frustrations as we have!

Here is a quick version of our story--Our daughter Sophie was born in

July 05 with bilateral clubfeet. She saw Dr Ballock at the Cleveland

Clinic who is not on the Ponseti List but who introduced us to the

method and seemed very knowledgeable. We've also been in contact with

the Ponseti institute from time to time. Her feet were corrected in 4

casts but Ballock recommended heel-cord release be performed, after

our planned move to South Carolina. We moved shortly thereafter when

she was 6 wks old (whew, its been quite a year)and began seeing Dr

Gross in ton. He performed the heel cord release, recasted,

moved her into the Markell shoes, which slipped off constantly day

and night. At the next appt he recasted her bc her feet had started

to revert, and in the meantime we ordered and received the AFO from

. At todays appt, Gross removed the casts and we began

using the new shoes and brace which seem much more comfortable and do

not slip off, at least so far. However, her heels do not seem to fit

down in the shoes completely. We've tried dorsiflexing them as much

as possible but she is still able to pull up her heels so they dont

sit flat.

My question is to anyone with experience with this brace, any tips to

get the feet dorsiflexed properly? Ive read Kori's tips in the files

section which are great; would people recommend I try to get pads for

the sole, and if so where does one find them?

We also wonder if maybe her feet are not fully corrected enough, and

that is why they will not sit flat in the shoes.We want to get a

second opinion as Gross seems a very nice man and well respected in

other areas but not fully up to date on Ponseti. I have family in

Baltimore and was thinking of trying to see Herzenberg at Sinai. If

for some reason we cant get in, has anyone had good experiences with

any doctor in the Savannah/ton area? (I know none are listed

on Ponseti's list, and I believe Gross is the only pediatric

orthopedist in ton, but am not sure)

Sorry this turned out to be a bit more long-winded than I meant it to

be. Any advice or comments anyone has would be welcome!

Thanks,

Zoe

mom of Sophie 7/16/05 bilateral CF, 7/3/02

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Hi Zoe,

Welcome to the group, glad to have you here. When you say her heel

will not sit down in the shoe all the way, do you mean it doesn't go

all the way back, or that it doesn't sit all the way flat in the

bottom of the shoe? From what you are describing it sounds like the

latter. If so, and I am not an expert on 's shoes so you all can

correct me if I am wrong, I am a bit concerned that Sophie's feet

might not fully corrected. Is her foot able to dorsiflex at least 10-

15 degrees? If you hold her upright in a weight bearing position do

her heels touch the ground? If these things look okay, my suggestion

would be to just email Dr. P himself, or even and ask,

just to give yourself the peace of mind. I don't think you should

need to put in any type of pad, if this is normal then I think it

will resolve itself - definitely as she starts more weight bearing

activities.

Hope this helps,

>

> Hello all,

> I'm new to this site and am wondering if anyone can give me any

> input. Its been comforting to read other posts and find so many

> people who have been dealing with the same frustrations as we have!

>

> Here is a quick version of our story--Our daughter Sophie was born

in

> July 05 with bilateral clubfeet. She saw Dr Ballock at the

Cleveland

> Clinic who is not on the Ponseti List but who introduced us to the

> method and seemed very knowledgeable. We've also been in contact

with

> the Ponseti institute from time to time. Her feet were corrected in

4

> casts but Ballock recommended heel-cord release be performed, after

> our planned move to South Carolina. We moved shortly thereafter

when

> she was 6 wks old (whew, its been quite a year)and began seeing Dr

> Gross in ton. He performed the heel cord release, recasted,

> moved her into the Markell shoes, which slipped off constantly day

> and night. At the next appt he recasted her bc her feet had

started

> to revert, and in the meantime we ordered and received the AFO from

> . At todays appt, Gross removed the casts and we began

> using the new shoes and brace which seem much more comfortable and

do

> not slip off, at least so far. However, her heels do not seem to

fit

> down in the shoes completely. We've tried dorsiflexing them as much

> as possible but she is still able to pull up her heels so they dont

> sit flat.

>

> My question is to anyone with experience with this brace, any tips

to

> get the feet dorsiflexed properly? Ive read Kori's tips in the

files

> section which are great; would people recommend I try to get pads

for

> the sole, and if so where does one find them?

>

> We also wonder if maybe her feet are not fully corrected enough,

and

> that is why they will not sit flat in the shoes.We want to get a

> second opinion as Gross seems a very nice man and well respected in

> other areas but not fully up to date on Ponseti. I have family in

> Baltimore and was thinking of trying to see Herzenberg at Sinai. If

> for some reason we cant get in, has anyone had good experiences

with

> any doctor in the Savannah/ton area? (I know none are listed

> on Ponseti's list, and I believe Gross is the only pediatric

> orthopedist in ton, but am not sure)

>

> Sorry this turned out to be a bit more long-winded than I meant it

to

> be. Any advice or comments anyone has would be welcome!

>

> Thanks,

> Zoe

> mom of Sophie 7/16/05 bilateral CF, 7/3/02

>

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Zoe,

We loved Dr. Ballock. He was trained by Dr. Ponseti and is very good at

correcting feet using the method. Isn't his staff wonderful as well? Did he

introduce you to the shoes? He'd not seen them before we ordered them

and when he saw them he absolutely loved them. However he wasn't experienced

at atypical feet and our daughter's are VERY atypical so we've been out to see

Dr. P several times. Dr. Ballock keeps up to date on how her treatment is

progressing and the two of them are planning on how we can get 's ATTT done

in Iowa with immediate follow ups here in Cleveland. You can't beat that for

cooperation! Anyway, that's not what you asked about. LOL

Initially the heels do not need to sit fully down in the sandals. Our

daughters always did but it took me a bit of time to figure out how to get them

that way. I recall Dr. Ponseti seeing them on her and saying " Wow. You really

get her heel down in there, don't you? " and me laughing because it took awhile

to get them there. Just be sure the feet are in the shoes correctly and on as

tightly as they can be. If you have to punch extra holes in the straps to make

them tight enough then feel free. If you have to trim the strap width to do

that then do that as well so it fits through the buckle. If you have any

questions about it then take a picture of your child's foot in the shoe and send

it to or Dr. P. They'll tell you if you are doing it correctly.

Chris

brace/doctors

Hello all,

I'm new to this site and am wondering if anyone can give me any

input. Its been comforting to read other posts and find so many

people who have been dealing with the same frustrations as we have!

Here is a quick version of our story--Our daughter Sophie was born in

July 05 with bilateral clubfeet. She saw Dr Ballock at the Cleveland

Clinic who is not on the Ponseti List but who introduced us to the

method and seemed very knowledgeable. We've also been in contact with

the Ponseti institute from time to time. Her feet were corrected in 4

casts but Ballock recommended heel-cord release be performed, after

our planned move to South Carolina. We moved shortly thereafter when

she was 6 wks old (whew, its been quite a year)and began seeing Dr

Gross in ton. He performed the heel cord release, recasted,

moved her into the Markell shoes, which slipped off constantly day

and night. At the next appt he recasted her bc her feet had started

to revert, and in the meantime we ordered and received the AFO from

. At todays appt, Gross removed the casts and we began

using the new shoes and brace which seem much more comfortable and do

not slip off, at least so far. However, her heels do not seem to fit

down in the shoes completely. We've tried dorsiflexing them as much

as possible but she is still able to pull up her heels so they dont

sit flat.

My question is to anyone with experience with this brace, any tips to

get the feet dorsiflexed properly? Ive read Kori's tips in the files

section which are great; would people recommend I try to get pads for

the sole, and if so where does one find them?

We also wonder if maybe her feet are not fully corrected enough, and

that is why they will not sit flat in the shoes.We want to get a

second opinion as Gross seems a very nice man and well respected in

other areas but not fully up to date on Ponseti. I have family in

Baltimore and was thinking of trying to see Herzenberg at Sinai. If

for some reason we cant get in, has anyone had good experiences with

any doctor in the Savannah/ton area? (I know none are listed

on Ponseti's list, and I believe Gross is the only pediatric

orthopedist in ton, but am not sure)

Sorry this turned out to be a bit more long-winded than I meant it to

be. Any advice or comments anyone has would be welcome!

Thanks,

Zoe

mom of Sophie 7/16/05 bilateral CF, 7/3/02

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Hi

I have a similar situation, where my son's heel on the left foot sits

fully down no problem but the right heel is always tricking, I can get

it down after about four tries. Could you offer some instruction on how

you did get the heel all the way down, maybe you have some special

tricks we could all benefit from.

Thanks much,

Isis mom to Isaiah, 12/14/05, s w/Ponseti bar 20hrs

wrote:

> Zoe,

> We loved Dr. Ballock. He was trained by Dr. Ponseti and is very good

> at correcting feet using the method. Isn't his staff wonderful as

> well? Did he introduce you to the shoes? He'd not seen them

> before we ordered them and when he saw them he absolutely loved

> them. However he wasn't experienced at atypical feet and our

> daughter's are VERY atypical so we've been out to see Dr. P several

> times. Dr. Ballock keeps up to date on how her treatment is

> progressing and the two of them are planning on how we can get 's

> ATTT done in Iowa with immediate follow ups here in Cleveland. You

> can't beat that for cooperation! Anyway, that's not what you asked

> about. LOL

>

> Initially the heels do not need to sit fully down in the

> sandals. Our daughters always did but it took me a bit of time to

> figure out how to get them that way. I recall Dr. Ponseti seeing them

> on her and saying " Wow. You really get her heel down in there, don't

> you? " and me laughing because it took awhile to get them there. Just

> be sure the feet are in the shoes correctly and on as tightly as they

> can be. If you have to punch extra holes in the straps to make them

> tight enough then feel free. If you have to trim the strap width to

> do that then do that as well so it fits through the buckle. If you

> have any questions about it then take a picture of your child's foot

> in the shoe and send it to or Dr. P. They'll tell you if you are

> doing it correctly.

> Chris

>

>

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Isis,

I think the best thing to do is bend the knee and grasp her lower leg and 'set'

the foot. When you bend the knee it sets the heel down in the shoe without a

problem. I also made sure that her foot was flat and not turning any and held

it that way as I pulled the tongue over. I just do the middle buckle and then

she can unbend her knee for the rest. Does that make sense?

Chris

Re: brace/doctors

Hi

I have a similar situation, where my son's heel on the left foot sits

fully down no problem but the right heel is always tricking, I can get

it down after about four tries. Could you offer some instruction on how

you did get the heel all the way down, maybe you have some special

tricks we could all benefit from.

Thanks much,

Isis mom to Isaiah, 12/14/05, s w/Ponseti bar 20hrs

wrote:

> Zoe,

> We loved Dr. Ballock. He was trained by Dr. Ponseti and is very good

> at correcting feet using the method. Isn't his staff wonderful as

> well? Did he introduce you to the shoes? He'd not seen them

> before we ordered them and when he saw them he absolutely loved

> them. However he wasn't experienced at atypical feet and our

> daughter's are VERY atypical so we've been out to see Dr. P several

> times. Dr. Ballock keeps up to date on how her treatment is

> progressing and the two of them are planning on how we can get 's

> ATTT done in Iowa with immediate follow ups here in Cleveland. You

> can't beat that for cooperation! Anyway, that's not what you asked

> about. LOL

>

> Initially the heels do not need to sit fully down in the

> sandals. Our daughters always did but it took me a bit of time to

> figure out how to get them that way. I recall Dr. Ponseti seeing them

> on her and saying " Wow. You really get her heel down in there, don't

> you? " and me laughing because it took awhile to get them there. Just

> be sure the feet are in the shoes correctly and on as tightly as they

> can be. If you have to punch extra holes in the straps to make them

> tight enough then feel free. If you have to trim the strap width to

> do that then do that as well so it fits through the buckle. If you

> have any questions about it then take a picture of your child's foot

> in the shoe and send it to or Dr. P. They'll tell you if you are

> doing it correctly.

> Chris

>

>

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Yes, it makes perfect sense, ah, the trick is to bend the knee. I will

try that this evening.

Thanks again for the wealth of information everyone shares!

-Isis

wrote:

> Isis,

> I think the best thing to do is bend the knee and grasp her lower leg

> and 'set' the foot. When you bend the knee it sets the heel down in

> the shoe without a problem. I also made sure that her foot was flat

> and not turning any and held it that way as I pulled the tongue over.

> I just do the middle buckle and then she can unbend her knee for the

> rest. Does that make sense?

> Chris

> Re: brace/doctors

>

>

> Hi

>

> I have a similar situation, where my son's heel on the left foot sits

> fully down no problem but the right heel is always tricking, I can get

> it down after about four tries. Could you offer some instruction on

> how

> you did get the heel all the way down, maybe you have some special

> tricks we could all benefit from.

>

> Thanks much,

>

> Isis mom to Isaiah, 12/14/05, s w/Ponseti bar 20hrs

>

>

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Thanks so much for your message!

Yes we did love Dr. Ballock and feel so lucky to have found him bc Im

not sure we would have found about Ponseti were it not for him. He

is also the one who told us about the shoes. We brought

them to the most recent appt with dr. gross here in ton and he

was also flabbergasted to look at them. We definitely miss the

Cleveland Clinic, the quality of care and facilities are so

good....well, at least for the all important first 6 weeks of care we

were up there!

Thanks also for the tips about the shoes, that is reassuring to know

other people have had the same experience. I will try to keep

getting those heels down in them. Even so, they are SO much better

then the Markell shoes for us. Sophie's feet, while not atypical,

are very small, and they slipped out as soon as we tied them in. I

think the 2 wks she was in them (if you can call it that) were the

hardest in my life!

All the same we may take pictures and send them just to be sure.

thanks again,

Zoe

>

> Zoe,

> We loved Dr. Ballock. He was trained by Dr. Ponseti and is very

good at correcting feet using the method. Isn't his staff wonderful

as well? Did he introduce you to the shoes? He'd not seen

them before we ordered them and when he saw them he absolutely loved

them. However he wasn't experienced at atypical feet and our

daughter's are VERY atypical so we've been out to see Dr. P several

times. Dr. Ballock keeps up to date on how her treatment is

progressing and the two of them are planning on how we can get

's ATTT done in Iowa with immediate follow ups here in

Cleveland. You can't beat that for cooperation! Anyway, that's not

what you asked about. LOL

>

> Initially the heels do not need to sit fully down in the

sandals. Our daughters always did but it took me a bit of time to

figure out how to get them that way. I recall Dr. Ponseti seeing

them on her and saying " Wow. You really get her heel down in there,

don't you? " and me laughing because it took awhile to get them

there. Just be sure the feet are in the shoes correctly and on as

tightly as they can be. If you have to punch extra holes in the

straps to make them tight enough then feel free. If you have to trim

the strap width to do that then do that as well so it fits through

the buckle. If you have any questions about it then take a picture

of your child's foot in the shoe and send it to or Dr. P.

They'll tell you if you are doing it correctly.

> Chris

>

> brace/doctors

>

>

> Hello all,

> I'm new to this site and am wondering if anyone can give me any

> input. Its been comforting to read other posts and find so many

> people who have been dealing with the same frustrations as we

have!

>

> Here is a quick version of our story--Our daughter Sophie was

born in

> July 05 with bilateral clubfeet. She saw Dr Ballock at the

Cleveland

> Clinic who is not on the Ponseti List but who introduced us to

the

> method and seemed very knowledgeable. We've also been in contact

with

> the Ponseti institute from time to time. Her feet were corrected

in 4

> casts but Ballock recommended heel-cord release be performed,

after

> our planned move to South Carolina. We moved shortly thereafter

when

> she was 6 wks old (whew, its been quite a year)and began seeing

Dr

> Gross in ton. He performed the heel cord release,

recasted,

> moved her into the Markell shoes, which slipped off constantly

day

> and night. At the next appt he recasted her bc her feet had

started

> to revert, and in the meantime we ordered and received the AFO

from

> . At todays appt, Gross removed the casts and we

began

> using the new shoes and brace which seem much more comfortable

and do

> not slip off, at least so far. However, her heels do not seem to

fit

> down in the shoes completely. We've tried dorsiflexing them as

much

> as possible but she is still able to pull up her heels so they

dont

> sit flat.

>

> My question is to anyone with experience with this brace, any

tips to

> get the feet dorsiflexed properly? Ive read Kori's tips in the

files

> section which are great; would people recommend I try to get pads

for

> the sole, and if so where does one find them?

>

> We also wonder if maybe her feet are not fully corrected enough,

and

> that is why they will not sit flat in the shoes.We want to get a

> second opinion as Gross seems a very nice man and well respected

in

> other areas but not fully up to date on Ponseti. I have family

in

> Baltimore and was thinking of trying to see Herzenberg at Sinai.

If

> for some reason we cant get in, has anyone had good experiences

with

> any doctor in the Savannah/ton area? (I know none are

listed

> on Ponseti's list, and I believe Gross is the only pediatric

> orthopedist in ton, but am not sure)

>

> Sorry this turned out to be a bit more long-winded than I meant

it to

> be. Any advice or comments anyone has would be welcome!

>

> Thanks,

> Zoe

> mom of Sophie 7/16/05 bilateral CF, 7/3/02

>

>

>

>

>

>

>

>

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Thanks Christee for the support.

Sophie's feet are 70% abducted and I'm not sure on the dorsiflexion.

We will check tonight when we take her out of the shoes. I dont want

to do it unless I have to at this pt, it is such a production getting

them back in. She is a wiggler. Hopefully Ill get better with time

but yes we also HATED the Markells, they were a total joke for us.

Apparently some people can use them ok, and Im glad to hear it bc if

everyone had our experience, the shoes would be a huge scam.

Thanks again for your input, it helps so much to hear other peoples

experience!

Zoe

> Hello all,

> I'm new to this site and am wondering if anyone can give me any

> input. Its been comforting to read other posts and find so many

> people who have been dealing with the same frustrations as we have!

>

> Here is a quick version of our story--Our daughter Sophie was born

in

> July 05 with bilateral clubfeet. She saw Dr Ballock at the

Cleveland

> Clinic who is not on the Ponseti List but who introduced us to the

> method and seemed very knowledgeable. We've also been in contact

with

> the Ponseti institute from time to time. Her feet were corrected in

4

> casts but Ballock recommended heel-cord release be performed, after

> our planned move to South Carolina. We moved shortly thereafter

when

> she was 6 wks old (whew, its been quite a year)and began seeing Dr

> Gross in ton. He performed the heel cord release, recasted,

> moved her into the Markell shoes, which slipped off constantly day

> and night. At the next appt he recasted her bc her feet had

started

> to revert, and in the meantime we ordered and received the AFO from

> . At todays appt, Gross removed the casts and we began

> using the new shoes and brace which seem much more comfortable and

do

> not slip off, at least so far. However, her heels do not seem to

fit

> down in the shoes completely. We've tried dorsiflexing them as much

> as possible but she is still able to pull up her heels so they dont

> sit flat.

>

> My question is to anyone with experience with this brace, any tips

to

> get the feet dorsiflexed properly? Ive read Kori's tips in the

files

> section which are great; would people recommend I try to get pads

for

> the sole, and if so where does one find them?

>

> We also wonder if maybe her feet are not fully corrected enough,

and

> that is why they will not sit flat in the shoes.We want to get a

> second opinion as Gross seems a very nice man and well respected in

> other areas but not fully up to date on Ponseti. I have family in

> Baltimore and was thinking of trying to see Herzenberg at Sinai. If

> for some reason we cant get in, has anyone had good experiences

with

> any doctor in the Savannah/ton area? (I know none are listed

> on Ponseti's list, and I believe Gross is the only pediatric

> orthopedist in ton, but am not sure)

>

> Sorry this turned out to be a bit more long-winded than I meant it

to

> be. Any advice or comments anyone has would be welcome!

>

> Thanks,

> Zoe

> mom of Sophie 7/16/05 bilateral CF, 7/3/02

>

>

>

>

>

>

>

>

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Thanks Christee for the support.

Sophie's feet are 70% abducted and I'm not sure on the dorsiflexion.

We will check tonight when we take her out of the shoes. I dont want

to do it unless I have to at this pt, it is such a production getting

them back in. She is a wiggler. Hopefully Ill get better with time

but yes we also HATED the Markells, they were a total joke for us.

Apparently some people can use them ok, and Im glad to hear it bc if

everyone had our experience, the shoes would be a huge scam.

Thanks again for your input, it helps so much to hear other peoples

experience!

Zoe

> Hello all,

> I'm new to this site and am wondering if anyone can give me any

> input. Its been comforting to read other posts and find so many

> people who have been dealing with the same frustrations as we have!

>

> Here is a quick version of our story--Our daughter Sophie was born

in

> July 05 with bilateral clubfeet. She saw Dr Ballock at the

Cleveland

> Clinic who is not on the Ponseti List but who introduced us to the

> method and seemed very knowledgeable. We've also been in contact

with

> the Ponseti institute from time to time. Her feet were corrected in

4

> casts but Ballock recommended heel-cord release be performed, after

> our planned move to South Carolina. We moved shortly thereafter

when

> she was 6 wks old (whew, its been quite a year)and began seeing Dr

> Gross in ton. He performed the heel cord release, recasted,

> moved her into the Markell shoes, which slipped off constantly day

> and night. At the next appt he recasted her bc her feet had

started

> to revert, and in the meantime we ordered and received the AFO from

> . At todays appt, Gross removed the casts and we began

> using the new shoes and brace which seem much more comfortable and

do

> not slip off, at least so far. However, her heels do not seem to

fit

> down in the shoes completely. We've tried dorsiflexing them as much

> as possible but she is still able to pull up her heels so they dont

> sit flat.

>

> My question is to anyone with experience with this brace, any tips

to

> get the feet dorsiflexed properly? Ive read Kori's tips in the

files

> section which are great; would people recommend I try to get pads

for

> the sole, and if so where does one find them?

>

> We also wonder if maybe her feet are not fully corrected enough,

and

> that is why they will not sit flat in the shoes.We want to get a

> second opinion as Gross seems a very nice man and well respected in

> other areas but not fully up to date on Ponseti. I have family in

> Baltimore and was thinking of trying to see Herzenberg at Sinai. If

> for some reason we cant get in, has anyone had good experiences

with

> any doctor in the Savannah/ton area? (I know none are listed

> on Ponseti's list, and I believe Gross is the only pediatric

> orthopedist in ton, but am not sure)

>

> Sorry this turned out to be a bit more long-winded than I meant it

to

> be. Any advice or comments anyone has would be welcome!

>

> Thanks,

> Zoe

> mom of Sophie 7/16/05 bilateral CF, 7/3/02

>

>

>

>

>

>

>

>

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Isis,

Let me know how it goes!

Chris

PS - this is a wonderful place for info and support, isn't it?

Re: brace/doctors

>

>

> Hi

>

> I have a similar situation, where my son's heel on the left foot sits

> fully down no problem but the right heel is always tricking, I can get

> it down after about four tries. Could you offer some instruction on

> how

> you did get the heel all the way down, maybe you have some special

> tricks we could all benefit from.

>

> Thanks much,

>

> Isis mom to Isaiah, 12/14/05, s w/Ponseti bar 20hrs

>

>

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,

You asked very good questions; I will check tonight when we take off

her shoes on the degree of dorsiflexion. Off the top of my head they

may go up 5 or 10% but I'll have to look for sure, along with your

question about whether her heels touch the ground in a weight bearing

position. That I think will be iffy. I think we will also take

pictures and send them to or Dr Ponseti to have their opinion on

whether the feet need more correction or whether it is simply an

issue of her heel coming down naturally.

Thanks again for the replies,

Zoe

> >

> > Hello all,

> > I'm new to this site and am wondering if anyone can give me any

> > input. Its been comforting to read other posts and find so many

> > people who have been dealing with the same frustrations as we

have!

> >

> > Here is a quick version of our story--Our daughter Sophie was

born

> in

> > July 05 with bilateral clubfeet. She saw Dr Ballock at the

> Cleveland

> > Clinic who is not on the Ponseti List but who introduced us to

the

> > method and seemed very knowledgeable. We've also been in contact

> with

> > the Ponseti institute from time to time. Her feet were corrected

in

> 4

> > casts but Ballock recommended heel-cord release be performed,

after

> > our planned move to South Carolina. We moved shortly thereafter

> when

> > she was 6 wks old (whew, its been quite a year)and began seeing

Dr

> > Gross in ton. He performed the heel cord release,

recasted,

> > moved her into the Markell shoes, which slipped off constantly

day

> > and night. At the next appt he recasted her bc her feet had

> started

> > to revert, and in the meantime we ordered and received the AFO

from

> > . At todays appt, Gross removed the casts and we

began

> > using the new shoes and brace which seem much more comfortable

and

> do

> > not slip off, at least so far. However, her heels do not seem to

> fit

> > down in the shoes completely. We've tried dorsiflexing them as

much

> > as possible but she is still able to pull up her heels so they

dont

> > sit flat.

> >

> > My question is to anyone with experience with this brace, any

tips

> to

> > get the feet dorsiflexed properly? Ive read Kori's tips in the

> files

> > section which are great; would people recommend I try to get pads

> for

> > the sole, and if so where does one find them?

> >

> > We also wonder if maybe her feet are not fully corrected enough,

> and

> > that is why they will not sit flat in the shoes.We want to get a

> > second opinion as Gross seems a very nice man and well respected

in

> > other areas but not fully up to date on Ponseti. I have family

in

> > Baltimore and was thinking of trying to see Herzenberg at Sinai.

If

> > for some reason we cant get in, has anyone had good experiences

> with

> > any doctor in the Savannah/ton area? (I know none are

listed

> > on Ponseti's list, and I believe Gross is the only pediatric

> > orthopedist in ton, but am not sure)

> >

> > Sorry this turned out to be a bit more long-winded than I meant

it

> to

> > be. Any advice or comments anyone has would be welcome!

> >

> > Thanks,

> > Zoe

> > mom of Sophie 7/16/05 bilateral CF, 7/3/02

> >

>

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Yes, bend the knee as you apply the shoe. I set the middle strap first.

s.

Re: brace/doctors

>

>

> Hi

>

> I have a similar situation, where my son's heel on the left foot sits

> fully down no problem but the right heel is always tricking, I can get

> it down after about four tries. Could you offer some instruction on how

> you did get the heel all the way down, maybe you have some special

> tricks we could all benefit from.

>

> Thanks much,

>

> Isis mom to Isaiah, 12/14/05, s w/Ponseti bar 20hrs

>

> wrote:

>

> > Zoe,

> > We loved Dr. Ballock. He was trained by Dr. Ponseti and is very good

> > at correcting feet using the method. Isn't his staff wonderful as

> > well? Did he introduce you to the shoes? He'd not seen them

> > before we ordered them and when he saw them he absolutely loved

> > them. However he wasn't experienced at atypical feet and our

> > daughter's are VERY atypical so we've been out to see Dr. P several

> > times. Dr. Ballock keeps up to date on how her treatment is

> > progressing and the two of them are planning on how we can get 's

> > ATTT done in Iowa with immediate follow ups here in Cleveland. You

> > can't beat that for cooperation! Anyway, that's not what you asked

> > about. LOL

> >

> > Initially the heels do not need to sit fully down in the

> > sandals. Our daughters always did but it took me a bit of time to

> > figure out how to get them that way. I recall Dr. Ponseti seeing them

> > on her and saying " Wow. You really get her heel down in there, don't

> > you? " and me laughing because it took awhile to get them there. Just

> > be sure the feet are in the shoes correctly and on as tightly as they

> > can be. If you have to punch extra holes in the straps to make them

> > tight enough then feel free. If you have to trim the strap width to

> > do that then do that as well so it fits through the buckle. If you

> > have any questions about it then take a picture of your child's foot

> > in the shoe and send it to or Dr. P. They'll tell you if you are

> > doing it correctly.

> > Chris

> >

> >

>

>

>

>

>

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Interestingly enough, when we got the PM's I found that if I point

her toes after I lay her foot into the shoe and press, it sets the

heel right back there in the heel nicely. Quite the opposite of the

Markell's. I point the foot, set the tongue and tighten the middle

strap. Then I dorsiflex her foot and do the top and then bottom

straps. Her heels are always right there in the back deeply. But

then again... she didn't start wearing them till she was over 2 and

her heel is nicely developed. I don't know if this works with

infants fresh out of casts. was interested to know that her

heel sits deeply in the shoes every time last time I talked to

him. I should find an infant to experiment with on this before I

decide if it works for everyone...

Kori

(who hasn't been around because the school auction is SATURDAY this

week and I've been up to my ears in database design for it. Once

that's over... I'll see y'all more, sorry!)

At 08:53 AM 11/3/2005, you wrote:

>Isis,

>I think the best thing to do is bend the knee and grasp her lower

>leg and 'set' the foot. When you bend the knee it sets the heel

>down in the shoe without a problem. I also made sure that her foot

>was flat and not turning any and held it that way as I pulled the

>tongue over. I just do the middle buckle and then she can unbend

>her knee for the rest. Does that make sense?

>Chris

> Re: brace/doctors

>

>

> Hi

>

> I have a similar situation, where my son's heel on the left foot sits

> fully down no problem but the right heel is always tricking, I can get

> it down after about four tries. Could you offer some instruction on how

> you did get the heel all the way down, maybe you have some special

> tricks we could all benefit from.

>

> Thanks much,

>

> Isis mom to Isaiah, 12/14/05, s w/Ponseti bar 20hrs

>

> wrote:

>

> > Zoe,

> > We loved Dr. Ballock. He was trained by Dr. Ponseti and is very good

> > at correcting feet using the method. Isn't his staff wonderful as

> > well? Did he introduce you to the shoes? He'd not seen them

> > before we ordered them and when he saw them he absolutely loved

> > them. However he wasn't experienced at atypical feet and our

> > daughter's are VERY atypical so we've been out to see Dr. P several

> > times. Dr. Ballock keeps up to date on how her treatment is

> > progressing and the two of them are planning on how we can get 's

> > ATTT done in Iowa with immediate follow ups here in Cleveland. You

> > can't beat that for cooperation! Anyway, that's not what you asked

> > about. LOL

> >

> > Initially the heels do not need to sit fully down in the

> > sandals. Our daughters always did but it took me a bit of time to

> > figure out how to get them that way. I recall Dr. Ponseti seeing them

> > on her and saying " Wow. You really get her heel down in there, don't

> > you? " and me laughing because it took awhile to get them there. Just

> > be sure the feet are in the shoes correctly and on as tightly as they

> > can be. If you have to punch extra holes in the straps to make them

> > tight enough then feel free. If you have to trim the strap width to

> > do that then do that as well so it fits through the buckle. If you

> > have any questions about it then take a picture of your child's foot

> > in the shoe and send it to or Dr. P. They'll tell you if you are

> > doing it correctly.

> > Chris

> >

> >

>

>

>

>

>

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