Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Kath, I can't help with a shortening of a limb as you describe but as far as club feet go, I recommend the Ponseti Method all the way. I have two sons and both have bilateral club foot. The oldest was not treated early on by Dr. P and we really regret that. The youngest was treated by Dr. P from the start and he has perfect feet. Best of luck with your new baby! shawnee Hi - new member Hi My name is Kath and I live in Canberra, Australia. My husband and I recently found out at our 20 week ultrasound, and a subsequent visit to our Foetal Medicine Unit, that our baby has severe right sided talipes and shortened tibia and fibula on the right side. All else appears to be just perfect with our little guy and the specialist suspects that both conditions are a result of an early amniotic band that has now disappeared. We are trying to learn what we can about our baby's condition before he gets here so that we can provide him with the most suitable treatment to correct is foot and leg when he arrives. Some web searching has brought me to the ponseti method, and I am interested to hear how successful other members have found this treatment, particularly if a shortening of the lower limb has also been a concern. I would also love to hear from other Aussies on the list. Looking forward to meeting you all. Kath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi My name is Kath and I live in Canberra, Australia. My husband and I recently found out at our 20 week ultrasound, and a subsequent visit to our Foetal Medicine Unit, that our baby has severe right sided talipes and shortened tibia and fibula on the right side. All else appears to be just perfect with our little guy and the specialist suspects that both conditions are a result of an early amniotic band that has now disappeared. We are trying to learn what we can about our baby's condition before he gets here so that we can provide him with the most suitable treatment to correct is foot and leg when he arrives. Some web searching has brought me to the ponseti method, and I am interested to hear how successful other members have found this treatment, particularly if a shortening of the lower limb has also been a concern. I would also love to hear from other Aussies on the list. Looking forward to meeting you all. Kath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Welcome, Kath, and congrats on your pregnancy! We have a few Aussies and New Zealander families here- hopefully they'll see your note! Here's another clubfoot group that an Aussie mom told me about: http://au.groups.yahoo.com/group/AustFoot/ She takes her daughter to Dr. Patel. We have a few families here also who have dealt with ABS, but I'm not sure if any of them have shortened leg limbs due to it. You might consider emailing Dr. Ponseti himself with whatever details you have found from the ultrasound and ask him what special approaches might be needed. Maybe you could get a copy of the ultrasound report and send it to him for review. I am assuming that there won't be any special challenges for casting and correction, however, there may be some issues with the traditional bracing approach. You may just have to have a special bar made that would make up for the leg length difference if it's significant. You probably won't know what the leg length discrepancy will be until your little one arrives, but Dr. Herzenberg, of Baltimore, land, USA, is a world reknown doctor who specializes in limb lengthening and also the Ponseti method of clubfoot and has a good website that you might find useful at www.limblengthening.org (the link to the clubfoot section is on the right hand side also). We're glad you're here and hope you'll keep posting updates as you're able to! Regards, & (3-16-00, left clubfoot) http://ponseticlubfoot.freeservers.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Hi Kath! My daughter Ava is 15 months old, and was born with a right Club foot, and suspected ABS. She didn't have any leg length issues, just some light bands on her right leg & right arm & wrist. There's some good info out there about both CF & ABS, but don't let anything scare you! Just enjoy the rest of your pregnancy and get ready to meet your new little guy! > > Hi > > My name is Kath and I live in Canberra, Australia. My husband and I > recently found out at our 20 week ultrasound, and a subsequent visit > to our Foetal Medicine Unit, that our baby has severe right sided > talipes and shortened tibia and fibula on the right side. All else > appears to be just perfect with our little guy and the specialist > suspects that both conditions are a result of an early amniotic band > that has now disappeared. > > We are trying to learn what we can about our baby's condition before > he gets here so that we can provide him with the most suitable > treatment to correct is foot and leg when he arrives. Some web > searching has brought me to the ponseti method, and I am interested to > hear how successful other members have found this treatment, > particularly if a shortening of the lower limb has also been a concern. > > I would also love to hear from other Aussies on the list. > > Looking forward to meeting you all. > > Kath > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 That's such a good attitude Kath! You are exactly right - the Ponseti method is so non-invasive that it does leave the door open to other treatment options should they become necessary....something most traditional methods don't do. Just keep a good out look and look on the bright sides of things! Anymore, for me to look at " regular " baby feet they look funny cuz I'm so used to looking at club feet. s. From: kathi fry To: nosurgery4clubfoot Sent: Saturday, November 05, 2005 1:49 AM Subject: Re: Hi - new member Hi ee All I seem to have done since hearing the news about our baby is read about talipes treatments!! From what I have read, and heard from people with experience, the Ponsetti method is definately the way to go. Thanks for your advice! I think that this method should definately be our first option.....if for some unlikely reason it doesn't work or isn't appropriate, then we can look into alternatives. Kath --- number23 wrote: > Kath, I can't help with a shortening of a limb as > you describe but as far as club feet go, I recommend > the Ponseti Method all the way. I have two sons and > both have bilateral club foot. The oldest was not > treated early on by Dr. P and we really regret that. > The youngest was treated by Dr. P from the start > and he has perfect feet. Best of luck with your > new baby! > shawnee > > Hi - new member > > > Hi > > My name is Kath and I live in Canberra, Australia. > My husband and I > recently found out at our 20 week ultrasound, and a > subsequent visit > to our Foetal Medicine Unit, that our baby has > severe right sided > talipes and shortened tibia and fibula on the right > side. All else > appears to be just perfect with our little guy and > the specialist > suspects that both conditions are a result of an > early amniotic band > that has now disappeared. > > We are trying to learn what we can about our baby's > condition before > he gets here so that we can provide him with the > most suitable > treatment to correct is foot and leg when he > arrives. Some web > searching has brought me to the ponseti method, and > I am interested to > hear how successful other members have found this > treatment, > particularly if a shortening of the lower limb has > also been a concern. > > I would also love to hear from other Aussies on the > list. > > Looking forward to meeting you all. > > Kath > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Thanks You are so right....there is a lot of info out there on talipes and ABS, and I must admit, some of it has really scared me! Especially when reading on one site that most cases of ABS end in miscarriage or still birth, and many children suffer much worse defects than our baby will need to deal with. I was also upset, thinking that I somehow did something that may have caused the ABS when I read that it occurs because of trauma to the amniotic sack that can be caused by strenuous activity or blows to the abdomen. I really don't know at this point which information to believe, but am trying to stay positive by remembering that there is no sign of the ABS now and it is unlikely to recur. Thanks for your positive thoughts....I will continue to enjoy my pregnancy and am really looking forward to meeting our special little guy. I look forward to talking to you and Ava more as well. Kath --- wrote: > Hi Kath! My daughter Ava is 15 months old, and was > born with a right > Club foot, and suspected ABS. She didn't have any > leg length issues, > just some light bands on her right leg & right arm & > wrist. There's > some good info out there about both CF & ABS, but > don't let anything > scare you! Just enjoy the rest of your pregnancy and > get ready to meet > your new little guy! > > > > > > > Hi > > > > My name is Kath and I live in Canberra, Australia. > My husband and I > > recently found out at our 20 week ultrasound, and > a subsequent visit > > to our Foetal Medicine Unit, that our baby has > severe right sided > > talipes and shortened tibia and fibula on the > right side. All else > > appears to be just perfect with our little guy and > the specialist > > suspects that both conditions are a result of an > early amniotic band > > that has now disappeared. > > > > We are trying to learn what we can about our > baby's condition before > > he gets here so that we can provide him with the > most suitable > > treatment to correct is foot and leg when he > arrives. Some web > > searching has brought me to the ponseti method, > and I am interested to > > hear how successful other members have found this > treatment, > > particularly if a shortening of the lower limb has > also been a concern. > > > > I would also love to hear from other Aussies on > the list. > > > > Looking forward to meeting you all. > > > > Kath > > > > > > > __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Hi ee All I seem to have done since hearing the news about our baby is read about talipes treatments!! From what I have read, and heard from people with experience, the Ponsetti method is definately the way to go. Thanks for your advice! I think that this method should definately be our first option.....if for some unlikely reason it doesn't work or isn't appropriate, then we can look into alternatives. Kath --- number23 wrote: > Kath, I can't help with a shortening of a limb as > you describe but as far as club feet go, I recommend > the Ponseti Method all the way. I have two sons and > both have bilateral club foot. The oldest was not > treated early on by Dr. P and we really regret that. > The youngest was treated by Dr. P from the start > and he has perfect feet. Best of luck with your > new baby! > shawnee > > Hi - new member > > > Hi > > My name is Kath and I live in Canberra, Australia. > My husband and I > recently found out at our 20 week ultrasound, and a > subsequent visit > to our Foetal Medicine Unit, that our baby has > severe right sided > talipes and shortened tibia and fibula on the right > side. All else > appears to be just perfect with our little guy and > the specialist > suspects that both conditions are a result of an > early amniotic band > that has now disappeared. > > We are trying to learn what we can about our baby's > condition before > he gets here so that we can provide him with the > most suitable > treatment to correct is foot and leg when he > arrives. Some web > searching has brought me to the ponseti method, and > I am interested to > hear how successful other members have found this > treatment, > particularly if a shortening of the lower limb has > also been a concern. > > I would also love to hear from other Aussies on the > list. > > Looking forward to meeting you all. > > Kath > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 HI Kath and welcome to the group! I would also encourage you to join the ABS support group as the families on there will be able to help you with the limb difference. My son was born with bilateral club feet and also ABS affected feet and right hand-both were complete surprises to us. As far as his ABS goes-he was more fortunate than others as I too researched and discovered that most abs issues result in miscarriage. He was born with a right thumb nubbin as well as a band around his index finger, he is missing is his right big toe and has abbreviated other toes on his right foot. Congratulations on the upcoming birth of your baby. Enjoy your pregnancy and keep asking questions.With 's treatment-we focused on the clubfeet first and then the ABS issues as we wanted to wait until he was older to start his surgeries. We will certainly try to help you. Please let me know if there is anything I can do to help! Again congratulations! Kathleen > > Hi > > My name is Kath and I live in Canberra, Australia. My husband and I > recently found out at our 20 week ultrasound, and a subsequent visit > to our Foetal Medicine Unit, that our baby has severe right sided > talipes and shortened tibia and fibula on the right side. All else > appears to be just perfect with our little guy and the specialist > suspects that both conditions are a result of an early amniotic band > that has now disappeared. > > We are trying to learn what we can about our baby's condition before > he gets here so that we can provide him with the most suitable > treatment to correct is foot and leg when he arrives. Some web > searching has brought me to the ponseti method, and I am interested to > hear how successful other members have found this treatment, > particularly if a shortening of the lower limb has also been a concern. > > I would also love to hear from other Aussies on the list. > > Looking forward to meeting you all. > > Kath > Quote Link to comment Share on other sites More sharing options...
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