Re: Hi - new member (Kathleen)

[Guest guest]

Thanks Kathleen

I would be very interested in joining the

ABS support group. Is it web based? And if so, can

you point me in the right direction?

Like you, I feel incredibly lucky that, while my baby

will have a couple of challenges to overcome, he

appears to be an otherwise healthy, active baby. Like

you say, things could have been much worse!

How has coped with his challenges? Has he taken

it all in his stride? And have the treatments been

successful?

Thanks again for your advice.

Kath

--- leenernd wrote:

> HI Kath and welcome to the group!

> I would also encourage you to join the ABS support

> group as the

> families on there will be able to help you with the

> limb difference.

> My son was born with bilateral club feet and also

> ABS affected feet

> and right hand-both were complete surprises to us.

> As far as his ABS

> goes-he was more fortunate than others as I too

> researched and

> discovered that most abs issues result in

> miscarriage. He was born

> with a right thumb nubbin as well as a band around

> his index finger,

> he is missing is his right big toe and has

> abbreviated other toes on

> his right foot. Congratulations on the upcoming

> birth of your baby.

> Enjoy your pregnancy and keep asking questions.With

> 's

> treatment-we focused on the clubfeet first and then

> the ABS issues

> as we wanted to wait until he was older to start his

> surgeries. We

> will certainly try to help you. Please let me know

> if there is

> anything I can do to help!

> Again congratulations!

> Kathleen

>

>

> >

> > Hi

> >

> > My name is Kath and I live in Canberra, Australia.

> My husband and

> I

> > recently found out at our 20 week ultrasound, and

> a subsequent

> visit

> > to our Foetal Medicine Unit, that our baby has

> severe right sided

> > talipes and shortened tibia and fibula on the

> right side. All else

> > appears to be just perfect with our little guy and

> the specialist

> > suspects that both conditions are a result of an

> early amniotic

> band

> > that has now disappeared.

> >

> > We are trying to learn what we can about our

> baby's condition

> before

> > he gets here so that we can provide him with the

> most suitable

> > treatment to correct is foot and leg when he

> arrives. Some web

> > searching has brought me to the ponseti method,

> and I am

> interested to

> > hear how successful other members have found this

> treatment,

> > particularly if a shortening of the lower limb has

> also been a

> concern.

> >

> > I would also love to hear from other Aussies on

> the list.

> >

> > Looking forward to meeting you all.

> >

> > Kath

> >

>

>

>

>

>

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[Guest guest]

Kath-

Here is a link to the group:

http://health.groups.yahoo.com/group/ABS_support/?yguid=206082053

With 's ABS, he has had one surgery so far to " release " the

bands on his wrist and his index finger-this was at 9 mo of age. The

procedure was called z-plasty. He was to have his second surgery 12

weeks later-however, his ortho was so impressed with the results, he

decided to postpone the second z plasty until next summer. His thumb

may be lengthened prior to his starting school(via a bone graft)-

however, at his age now (14 mo), he is pretty even in " handedness " -

the shortened right thumb has not slowed him down. The one thing our

orthos have taught us is that since he was born with a partial

thumb/no right big toe-he would adapt to these situations and

utilize them in a way we would be amazed by. Neither missing digit

has slowed him down nor has his bilateral clubfeet. I too questioned

myself and my pregnancy and wondered if there was anything I could

of done to prevent it-however, my pregnancy was problem free,

morning sickness free, and wonderful so I realized it wasn't my

fault, that it was just meant to be. has taught us soo much in

these short 14 mo-more than I have ever learned at school! You will

be amazed(he is our first).

Hope this helps!

Kathleen

mom to 8/28/04 bcf fab 12/7

> > >

> > > Hi

> > >

> > > My name is Kath and I live in Canberra, Australia.

> > My husband and

> > I

> > > recently found out at our 20 week ultrasound, and

> > a subsequent

> > visit

> > > to our Foetal Medicine Unit, that our baby has

> > severe right sided

> > > talipes and shortened tibia and fibula on the

> > right side. All else

> > > appears to be just perfect with our little guy and

> > the specialist

> > > suspects that both conditions are a result of an

> > early amniotic

> > band

> > > that has now disappeared.

> > >

> > > We are trying to learn what we can about our

> > baby's condition

> > before

> > > he gets here so that we can provide him with the

> > most suitable

> > > treatment to correct is foot and leg when he

> > arrives. Some web

> > > searching has brought me to the ponseti method,

> > and I am

> > interested to

> > > hear how successful other members have found this

> > treatment,

> > > particularly if a shortening of the lower limb has

> > also been a

> > concern.

> > >

> > > I would also love to hear from other Aussies on

> > the list.

> > >

> > > Looking forward to meeting you all.

> > >

> > > Kath

> > >

> >

> >

> >

> >

> >

>

>

>

>

> __________________________________

> Yahoo! FareChase: Search multiple travel sites in one click.

> http://farechase.yahoo.com

>

[Guest guest]

Hi again Kathleen

That's great news that 's surgery's and talipes

treatment have gone so well! He sounds like a

brilliant little boy who is just getting on with it!

Through all the reading I have been doing, and the

stories I am hearing from parents like you, I am

beginning to realise that like , our baby will

adapt to whatever the ABS and Talipes throws at him.

I am also trying not to beat myself up about what I

should or shouldn't have done to prevent this. Like

you, my pregnancy has been wonderful with little

morning sickness (2 weeks) and feeling fit and healthy

the entire way through. I am also trying not to worry

about what may come in the next 18 or so weeks! I

hope this gets easier as the pregnancy progresses!

;o))

I will join the ABS group too. Probably see you

there! And thanks again for you positive advice. It

certainly is helping.

Kath

--- leenernd wrote:

> Kath-

> Here is a link to the group:

>

http://health.groups.yahoo.com/group/ABS_support/?yguid=206082053

>

> With 's ABS, he has had one surgery so far to

> " release " the

> bands on his wrist and his index finger-this was at

> 9 mo of age. The

> procedure was called z-plasty. He was to have his

> second surgery 12

> weeks later-however, his ortho was so impressed with

> the results, he

> decided to postpone the second z plasty until next

> summer. His thumb

> may be lengthened prior to his starting school(via a

> bone graft)-

> however, at his age now (14 mo), he is pretty even

> in " handedness " -

> the shortened right thumb has not slowed him down.

> The one thing our

> orthos have taught us is that since he was born with

> a partial

> thumb/no right big toe-he would adapt to these

> situations and

> utilize them in a way we would be amazed by. Neither

> missing digit

> has slowed him down nor has his bilateral clubfeet.

> I too questioned

> myself and my pregnancy and wondered if there was

> anything I could

> of done to prevent it-however, my pregnancy was

> problem free,

> morning sickness free, and wonderful so I realized

> it wasn't my

> fault, that it was just meant to be. has

> taught us soo much in

> these short 14 mo-more than I have ever learned at

> school! You will

> be amazed(he is our first).

> Hope this helps!

> Kathleen

> mom to 8/28/04 bcf fab 12/7

>

>

> > > >

> > > > Hi

> > > >

> > > > My name is Kath and I live in Canberra,

> Australia.

> > > My husband and

> > > I

> > > > recently found out at our 20 week ultrasound,

> and

> > > a subsequent

> > > visit

> > > > to our Foetal Medicine Unit, that our baby has

> > > severe right sided

> > > > talipes and shortened tibia and fibula on the

> > > right side. All else

> > > > appears to be just perfect with our little guy

> and

> > > the specialist

> > > > suspects that both conditions are a result of

> an

> > > early amniotic

> > > band

> > > > that has now disappeared.

> > > >

> > > > We are trying to learn what we can about our

> > > baby's condition

> > > before

> > > > he gets here so that we can provide him with

> the

> > > most suitable

> > > > treatment to correct is foot and leg when he

> > > arrives. Some web

> > > > searching has brought me to the ponseti

> method,

> > > and I am

> > > interested to

> > > > hear how successful other members have found

> this

> > > treatment,

> > > > particularly if a shortening of the lower limb

> has

> > > also been a

> > > concern.

> > > >

> > > > I would also love to hear from other Aussies

> on

> > > the list.

> > > >

> > > > Looking forward to meeting you all.

> > > >

> > > > Kath

> > > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> > __________________________________

> > Yahoo! FareChase: Search multiple travel sites in

> one click.

> > http://farechase.yahoo.com

> >

>

>

>

>

>

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