Re: AFO until when?

[Guest guest]

Are you talking about the FAB / AFO? I hope all goes well with

her, you're in the best hands possible in Iowa!

s.

AFO until when?

Hi everyone,

Greetings from the Mc house in Iowa. My husband and I took

our daughter to see Dr. Ponseti and Morcuende this morning and

she had a second tenotomy. It is amazing how brave that little is.

She cried a lot during the procedure but after her usual nap she is the

same happy baby.

got fitted for AFO's this time. The doctors told us that since

she doesn't flex her feet upwards, the heel cord has not stretched out

enough. Therefore, she is going to use the AFO's full time once she

comes out of the casts. Anyone out there in a similar situation? How do

they work? Do they help and if so, what happens if the baby never

flexes the foot beyond 90 degrees on her own? has bilateral

atypical clubfeet and is 9 months old.

Thank you for your help,

andra

[Guest guest]

that has to be it... AS IF Dr. Ponseti would prescribe AFO's for a

non-surgical foot... Ever! We're going to have a problem with this

terminology now... The FAB AFO is NOT the standard AFO. It is still

shoes with a bar abducted for the clubfoot to 70 (or 60 with the PM's

- the FAB/AFO). It is not a molded hard plastic brace

that is separate from the other foot which is what AFO by itself refers to.

Someone needs to call Iowa and ask them to stop using the term AFO so

lightly.

Kori

At 02:33 AM 11/4/2005, you wrote:

>Are you talking about the FAB / AFO? I hope all goes

>well with her, you're in the best hands possible in Iowa!

>s.

>

> AFO until when?

>

>

>Hi everyone,

>

>Greetings from the Mc house in Iowa. My husband and I took

>our daughter to see Dr. Ponseti and Morcuende this morning and

>she had a second tenotomy. It is amazing how brave that little is.

>She cried a lot during the procedure but after her usual nap she is the

>same happy baby.

>

> got fitted for AFO's this time. The doctors told us that since

>she doesn't flex her feet upwards, the heel cord has not stretched out

>enough. Therefore, she is going to use the AFO's full time once she

>comes out of the casts. Anyone out there in a similar situation? How do

>they work? Do they help and if so, what happens if the baby never

>flexes the foot beyond 90 degrees on her own? has bilateral

>atypical clubfeet and is 9 months old.

>

>Thank you for your help,

>

>andra

>

>

>

>

>

>

>

[Guest guest]

Wooooowwww.....dr ponseti using the real AFO? That is news to me and very

interesting to hear about! Seriously! I will be really interested to hear

about this as it progresses, please keep us posted, OK?

s.

AFO until when?

>

>

> Hi everyone,

>

> Greetings from the Mc house in Iowa. My husband and I

took

> our daughter to see Dr. Ponseti and Morcuende this morning

and

> she had a second tenotomy. It is amazing how brave that little

is.

> She cried a lot during the procedure but after her usual nap she is

the

> same happy baby.

>

> got fitted for AFO's this time. The doctors told us that

since

> she doesn't flex her feet upwards, the heel cord has not stretched

out

> enough. Therefore, she is going to use the AFO's full time once she

> comes out of the casts. Anyone out there in a similar situation?

How do

> they work? Do they help and if so, what happens if the baby never

> flexes the foot beyond 90 degrees on her own? has bilateral

> atypical clubfeet and is 9 months old.

>

> Thank you for your help,

>

> andra

>

>

>

>

>

>

>

[Guest guest]

Sorry about that...they are calling the shoes AFO now. But I

am talking about the Ankle and Foot Orthodics (the ones that have

velcro straps no bar). They are making it to abduct at 95 degrees.

Ponseti thinks it is necessary because doesn't stretch her

feet upwards. Her problem is not much of her feet turning inward but

not staying upward (dorsiflexion)

Anyone has tried these AFO's?

Thanks

>

> Are you talking about the FAB / AFO? I hope all

goes well with her, you're in the best hands possible in Iowa!

> s.

>

> AFO until when?

>

>

> Hi everyone,

>

> Greetings from the Mc house in Iowa. My husband and I

took

> our daughter to see Dr. Ponseti and Morcuende this morning

and

> she had a second tenotomy. It is amazing how brave that little

is.

> She cried a lot during the procedure but after her usual nap she is

the

> same happy baby.

>

> got fitted for AFO's this time. The doctors told us that

since

> she doesn't flex her feet upwards, the heel cord has not stretched

out

> enough. Therefore, she is going to use the AFO's full time once she

> comes out of the casts. Anyone out there in a similar situation?

How do

> they work? Do they help and if so, what happens if the baby never

> flexes the foot beyond 90 degrees on her own? has bilateral

> atypical clubfeet and is 9 months old.

>

> Thank you for your help,

>

> andra

>

>

>

>

>

>

>

[Guest guest]

You are right...this HAS to be addressed...from what I understand,

there are a few people here who have a good working relationship with

. Would one of you please call him and talk to him about this?!

Calling his wonderful handmade Ponseti shoes and brace an AFO is not

just confusing it is downright dangerous! We are in the 's or

I would call him myself!

& Grace

>

> I so agree Kori, I mean the old, typical AFO was a HUGE NO NO for

club feet and still is! Yet here they're calling 's shoe an AFO

and it's causing major confusion. What was wrong with calling it a

FAB? That's what the damn thing is anyway and if insurance will pay

for a Markell FAB why not a FAB?

>

> I do have concerns this duel-terminology is going to bite some

people in the butt as doctors prescribe AFO's (the real ones) and

stuff or get confused because most of the doctors don't know jack

about FAB's anyway as we've proven here a million times (even some of

the so-called Ponseti doctors dont' know jack about the

system!) ...then some parents are going to say, " Hey my kid was

treated with an AFO and did just fine " meaning they used the

FAB but someone else will hear that and say well then my doctor

prescribing an AFO is right when it's not the FAB it's the

blasted AFO that doesn't work! Oiy!

>

> I just see us stepping one step foward and two steps back with

mixing up the terms here. Not only do we risk more babies getting

treated with the non-successful AFO with disasterous results, it

seems to me eventually risks a loss of business as

people who know AFO's don't work avoid using his wrongly-named AFO

that is NOT an AFO it's a friggen FAB!!! My wore the REAL

AFO, the one that phuked up his feet and my other son Everett wore

the Ponseti FAB (um, afo???) that they're now calling

an AFO with perfect results ......And anyone new here reading this is

going to be more confused than ever! Having gone the true afo route

though with those disasterous results I mentioned this really irks

me they're calling this wonderful club foot brace a friggen afo

after we've striven for years to convince folks not to use afo's on

their cf kids.

> Speaking of cf kids, I have two I need to go put to bed, have a

good weekend!

> s.

>

> ----- We're going to have a problem with this

> terminology now... The FAB AFO is NOT the standard AFO.

> Kori

>

>

>

>

>

[Guest guest]

We are in the Markell's I mean...

> >

> > I so agree Kori, I mean the old, typical AFO was a HUGE NO NO for

> club feet and still is! Yet here they're calling 's shoe an

AFO

> and it's causing major confusion. What was wrong with calling it a

> FAB? That's what the damn thing is anyway and if insurance will

pay

> for a Markell FAB why not a FAB?

> >

> > I do have concerns this duel-terminology is going to bite some

> people in the butt as doctors prescribe AFO's (the real ones) and

> stuff or get confused because most of the doctors don't know jack

> about FAB's anyway as we've proven here a million times (even some

of

> the so-called Ponseti doctors dont' know jack about the

> system!) ...then some parents are going to say, " Hey my kid was

> treated with an AFO and did just fine " meaning they used the

> FAB but someone else will hear that and say well then my doctor

> prescribing an AFO is right when it's not the FAB it's the

> blasted AFO that doesn't work! Oiy!

> >

> > I just see us stepping one step foward and two steps back with

> mixing up the terms here. Not only do we risk more babies getting

> treated with the non-successful AFO with disasterous results, it

> seems to me eventually risks a loss of business as

> people who know AFO's don't work avoid using his wrongly-named AFO

> that is NOT an AFO it's a friggen FAB!!! My wore the REAL

> AFO, the one that phuked up his feet and my other son Everett wore

> the Ponseti FAB (um, afo???) that they're now

calling

> an AFO with perfect results ......And anyone new here reading this

is

> going to be more confused than ever! Having gone the true afo

route

> though with those disasterous results I mentioned this really irks

> me they're calling this wonderful club foot brace a friggen afo

> after we've striven for years to convince folks not to use afo's

on

> their cf kids.

> > Speaking of cf kids, I have two I need to go put to bed, have a

> good weekend!

> > s.

> >

> > ----- We're going to have a problem with this

> > terminology now... The FAB AFO is NOT the standard AFO.

> > Kori

> >

> >

> >

> >

> >