Re: Feeling stressed and not sure what to do

[Guest guest]

oh Joy,

I'm so sorry you are having this worry and extra stress. Do you have

the strength and time to push it with the insurance company? surely

being casted by dr. ponseti can't be that much more than the casting

by Dr. Koop.. they're just not approving it because it's out of

network, or whatever they call it. you could make a case that casting

by dr. ponseti could minimize any major surgeries down the road,

which of course would be much more expensive than casting.

i also encourage you to spill your worries about this to joyce and

whomever else at UIHC you can.. maybe they can help you figure out a

way. Also talk to Dr. Ponseti personally.. i know he'd want to

discuss it with you.

I'm so sorry.. you don't need this worry. but don't give up yet! hang

in there..

>

> I'm really not sure what I'm going to do now. Our insurance will

not approve

> Grant (or Rose for that matter!) to be seen by Dr. Ponseti, so I

will have to

> pay out of pocket. I heard back today, and I'm shocked! I don't

think we can

> afford to pay out of pocket, so I'm not sure what my next step is

going to be.

>

> A returning visit (for Rose) is $297. Which seems a bit steep.

For a new

> patient visit it will be $341. If Dr. Ponseti decides to cast

Grant it will be

> $448 for each leg. it would total up to over 1500 dollars.

>

> Is it worth a consult with Dr. Ponseti?? Grant has so many issues

besides the

> clubfoot, and I'm starting to doubt whether I " need " to have Dr.

Ponseti look

> at it or not. I know I WANT Dr. Ponseti to reassure me that the

treatment is

> going well, but then I think what if he doesn't?? argh! Is the

method

> successful with spina bifida? am I going to have to reassess my

expectations of

> clubfoot treatment for Grant? Dr. Koop does seem to be having

success, and I'm

> quite pleased with the progress so far, but I have my concerns and

worries.

>

> In all of this I've been thinking how hard it is to see a Ponseti

doctor after

> having seen Dr. Ponseti Himself. LOL

>

> We certainly can't afford to pay out of pocket. I can't believe

it's 300

> dollars just to see Rose! We'll come up with that, and possibly

we can come

> up with the other 350, but wow.

>

> Just needed to unload that.

>

> Joy

>

> Rose (1-99)

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> Iris (2-01)

> Spencer (3-03)

> Grant (9-05) http://www.caringbridge.org/visit/grantphilip

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

[Guest guest]

I know what you're talking about Joy. We pay out of pocket for the kids to see

Ponseti and the cost keeps going up. I finally had to humble myself and ask

's father for help with his part of the bill - the first time in 7 years

the man has paid a thing towards the boy, but thankfully he agreed and sent some

$ to the clinic. If baby #3 here is cf I think I may have to look in to a

Shriner's option instead and that will be hard to do after seeing Ponseti

himself all this time. I " m no help and i wish you the best, I just mean you're

not alone with the financial strain.

s.

Feeling stressed and not sure what to do

I'm really not sure what I'm going to do now. Our insurance will not approve

Grant (or Rose for that matter!) to be seen by Dr. Ponseti, so I will have to

pay out of pocket. I heard back today, and I'm shocked! I don't think we can

afford to pay out of pocket, so I'm not sure what my next step is going to be.

A returning visit (for Rose) is $297. Which seems a bit steep. For a new

patient visit it will be $341. If Dr. Ponseti decides to cast Grant it will be

$448 for each leg. it would total up to over 1500 dollars.

Is it worth a consult with Dr. Ponseti?? Grant has so many issues besides the

clubfoot, and I'm starting to doubt whether I " need " to have Dr. Ponseti look

at it or not. I know I WANT Dr. Ponseti to reassure me that the treatment is

going well, but then I think what if he doesn't?? argh! Is the method

successful with spina bifida? am I going to have to reassess my expectations of

clubfoot treatment for Grant? Dr. Koop does seem to be having success, and I'm

quite pleased with the progress so far, but I have my concerns and worries.

In all of this I've been thinking how hard it is to see a Ponseti doctor after

having seen Dr. Ponseti Himself. LOL

We certainly can't afford to pay out of pocket. I can't believe it's 300

dollars just to see Rose! We'll come up with that, and possibly we can come

up with the other 350, but wow.

Just needed to unload that.

Joy

Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html

Iris (2-01)

Spencer (3-03)

Grant (9-05) http://www.caringbridge.org/visit/grantphilip

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

Aw you'r too sweet! Dr. Dobbs was going to be my 2nd choice (after

Ponseti!). It would be nice to have someone there to show me around. I just

got word my midwife got a Level 2 ultrasound approved for me, no date yet, but

maybe that will let me know for sure one way or the other.

s.

Feeling stressed and

> not sure what to do

>

>

> I'm really not sure what I'm going to do now. Our

> insurance will not approve

> Grant (or Rose for that matter!) to be seen by Dr.

> Ponseti, so I will have to

> pay out of pocket. I heard back today, and I'm

> shocked! I don't think we can

> afford to pay out of pocket, so I'm not sure what my

> next step is going to be.

>

> A returning visit (for Rose) is $297. Which seems a

> bit steep. For a new

> patient visit it will be $341. If Dr. Ponseti

> decides to cast Grant it will be

> $448 for each leg. it would total up to over 1500

> dollars.

>

> Is it worth a consult with Dr. Ponseti?? Grant has

> so many issues besides the

> clubfoot, and I'm starting to doubt whether I " need "

> to have Dr. Ponseti look

> at it or not. I know I WANT Dr. Ponseti to reassure

> me that the treatment is

> going well, but then I think what if he doesn't??

> argh! Is the method

> successful with spina bifida? am I going to have to

> reassess my expectations of

> clubfoot treatment for Grant? Dr. Koop does seem to

> be having success, and I'm

> quite pleased with the progress so far, but I have

> my concerns and worries.

>

> In all of this I've been thinking how hard it is to

> see a Ponseti doctor after

> having seen Dr. Ponseti Himself. LOL

>

> We certainly can't afford to pay out of pocket. I

> can't believe it's 300

> dollars just to see Rose! We'll come up with

> that, and possibly we can come

> up with the other 350, but wow.

>

> Just needed to unload that.

>

> Joy

>

> Rose (1-99)

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> Iris (2-01)

> Spencer (3-03)

> Grant (9-05)

> http://www.caringbridge.org/visit/grantphilip

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

>

>

[Guest guest]

ee,

If needed, and I know it would be difficult after

seeing dr. Ponseti, but you could always see Dr. Dobbs

at Shriners. Just a little closer to you - and then

maybe we could get together sometime while you are in

St. Louis! Not that you are going to need it for the

new baby...still keeping my fingers crossed for you on

that one!

--- number23 wrote:

> I know what you're talking about Joy. We pay out

> of pocket for the kids to see Ponseti and the cost

> keeps going up. I finally had to humble myself and

> ask 's father for help with his part of the

> bill - the first time in 7 years the man has paid a

> thing towards the boy, but thankfully he agreed and

> sent some $ to the clinic. If baby #3 here is cf I

> think I may have to look in to a Shriner's option

> instead and that will be hard to do after seeing

> Ponseti himself all this time. I " m no help and i

> wish you the best, I just mean you're not alone with

> the financial strain.

> s.

>

> Feeling stressed and

> not sure what to do

>

>

> I'm really not sure what I'm going to do now. Our

> insurance will not approve

> Grant (or Rose for that matter!) to be seen by Dr.

> Ponseti, so I will have to

> pay out of pocket. I heard back today, and I'm

> shocked! I don't think we can

> afford to pay out of pocket, so I'm not sure what my

> next step is going to be.

>

> A returning visit (for Rose) is $297. Which seems a

> bit steep. For a new

> patient visit it will be $341. If Dr. Ponseti

> decides to cast Grant it will be

> $448 for each leg. it would total up to over 1500

> dollars.

>

> Is it worth a consult with Dr. Ponseti?? Grant has

> so many issues besides the

> clubfoot, and I'm starting to doubt whether I " need "

> to have Dr. Ponseti look

> at it or not. I know I WANT Dr. Ponseti to reassure

> me that the treatment is

> going well, but then I think what if he doesn't??

> argh! Is the method

> successful with spina bifida? am I going to have to

> reassess my expectations of

> clubfoot treatment for Grant? Dr. Koop does seem to

> be having success, and I'm

> quite pleased with the progress so far, but I have

> my concerns and worries.

>

> In all of this I've been thinking how hard it is to

> see a Ponseti doctor after

> having seen Dr. Ponseti Himself. LOL

>

> We certainly can't afford to pay out of pocket. I

> can't believe it's 300

> dollars just to see Rose! We'll come up with

> that, and possibly we can come

> up with the other 350, but wow.

>

> Just needed to unload that.

>

> Joy

>

> Rose (1-99)

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> Iris (2-01)

> Spencer (3-03)

> Grant (9-05)

> http://www.caringbridge.org/visit/grantphilip

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

>

>

[Guest guest]

, don't take this the wrong way but frankly I hope we don't have any

reason to meet you or Dr. Dobbs in St. Louis! ha ha..... If we do though, I'd

be honored to have you as our guide! I actually went to St. Louis once as a

child, I have vague memories of going up in the Arch and have tried many times

to convince my dh to take us home from Iowa via St. Louis so I could see it

again. Maybe one of these days, eh?

s.

Feeling stressed and

> > not sure what to do

> >

> >

> > I'm really not sure what I'm going to do now. Our

> > insurance will not approve

> > Grant (or Rose for that matter!) to be seen by Dr.

> > Ponseti, so I will have to

> > pay out of pocket. I heard back today, and I'm

> > shocked! I don't think we can

> > afford to pay out of pocket, so I'm not sure what

> my

> > next step is going to be.

> >

> > A returning visit (for Rose) is $297. Which seems

> a

> > bit steep. For a new

> > patient visit it will be $341. If Dr. Ponseti

> > decides to cast Grant it will be

> > $448 for each leg. it would total up to over 1500

> > dollars.

> >

> > Is it worth a consult with Dr. Ponseti?? Grant

> has

> > so many issues besides the

> > clubfoot, and I'm starting to doubt whether I

> " need "

> > to have Dr. Ponseti look

> > at it or not. I know I WANT Dr. Ponseti to

> reassure

> > me that the treatment is

> > going well, but then I think what if he doesn't??

> > argh! Is the method

> > successful with spina bifida? am I going to have

> to

> > reassess my expectations of

> > clubfoot treatment for Grant? Dr. Koop does seem

> to

> > be having success, and I'm

> > quite pleased with the progress so far, but I have

> > my concerns and worries.

> >

> > In all of this I've been thinking how hard it is

> to

> > see a Ponseti doctor after

> > having seen Dr. Ponseti Himself. LOL

> >

> > We certainly can't afford to pay out of pocket. I

> > can't believe it's 300

> > dollars just to see Rose! We'll come up with

> > that, and possibly we can come

> > up with the other 350, but wow.

> >

> > Just needed to unload that.

> >

> > Joy

> >

> > Rose (1-99)

> >

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> > Iris (2-01)

> > Spencer (3-03)

> > Grant (9-05)

> > http://www.caringbridge.org/visit/grantphilip

> >

> >

> >

> >

> > __________________________________

> > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > http://mail.yahoo.com

> >

> >

> >

[Guest guest]

Ha ha.....

s.

ee - Hey that offends me! Just kidding! I would

be really happy if you never *have* to meet either one

of us.

allison

--- number23 wrote:

> , don't take this the wrong way but frankly I

> hope we don't have any reason to meet you or Dr.

> Dobbs in St. Louis! ha ha..... If we do though, I'd

> be honored to have you as our guide! I actually

> went to St. Louis once as a child, I have vague

> memories of going up in the Arch and have tried many

> times to convince my dh to take us home from Iowa

> via St. Louis so I could see it again. Maybe one of

> these days, eh?

> s.

>

> Feeling stressed

> and

> > > not sure what to do

> > >

> > >

> > > I'm really not sure what I'm going to do now.

> Our

> > > insurance will not approve

> > > Grant (or Rose for that matter!) to be seen by

> Dr.

> > > Ponseti, so I will have to

> > > pay out of pocket. I heard back today, and I'm

> > > shocked! I don't think we can

> > > afford to pay out of pocket, so I'm not sure

> what

> > my

> > > next step is going to be.

> > >

> > > A returning visit (for Rose) is $297. Which

> seems

> > a

> > > bit steep. For a new

> > > patient visit it will be $341. If Dr. Ponseti

> > > decides to cast Grant it will be

> > > $448 for each leg. it would total up to over

> 1500

> > > dollars.

> > >

> > > Is it worth a consult with Dr. Ponseti?? Grant

> > has

> > > so many issues besides the

> > > clubfoot, and I'm starting to doubt whether I

> > " need "

> > > to have Dr. Ponseti look

> > > at it or not. I know I WANT Dr. Ponseti to

> > reassure

> > > me that the treatment is

> > > going well, but then I think what if he

> doesn't??

> > > argh! Is the method

> > > successful with spina bifida? am I going to have

> > to

> > > reassess my expectations of

> > > clubfoot treatment for Grant? Dr. Koop does

> seem

> > to

> > > be having success, and I'm

> > > quite pleased with the progress so far, but I

> have

> > > my concerns and worries.

> > >

> > > In all of this I've been thinking how hard it is

> > to

> > > see a Ponseti doctor after

> > > having seen Dr. Ponseti Himself. LOL

> > >

> > > We certainly can't afford to pay out of pocket.

> I

> > > can't believe it's 300

> > > dollars just to see Rose! We'll come up with

> > > that, and possibly we can come

> > > up with the other 350, but wow.

> > >

> > > Just needed to unload that.

> > >

> > > Joy

> > >

> > > Rose (1-99)

> > >

> >

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> > > Iris (2-01)

> > > Spencer (3-03)

> > > Grant (9-05)

> > > http://www.caringbridge.org/visit/grantphilip

> > >

> > >

> > >

> > >

> > > __________________________________

> > > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > > http://mail.yahoo.com

> > >

> > >

> > >

[Guest guest]

ee,

It would be my pleasure to be your St. Louis guide.

Anytime you all want to check out Dr. Dobbs I'd be

happy to meet up with you.

--- number23 wrote:

> Aw you'r too sweet! Dr. Dobbs was going to

> be my 2nd choice (after Ponseti!). It would be

> nice to have someone there to show me around. I

> just got word my midwife got a Level 2 ultrasound

> approved for me, no date yet, but maybe that will

> let me know for sure one way or the other.

> s.

>

> Feeling stressed and

> > not sure what to do

> >

> >

> > I'm really not sure what I'm going to do now. Our

> > insurance will not approve

> > Grant (or Rose for that matter!) to be seen by Dr.

> > Ponseti, so I will have to

> > pay out of pocket. I heard back today, and I'm

> > shocked! I don't think we can

> > afford to pay out of pocket, so I'm not sure what

> my

> > next step is going to be.

> >

> > A returning visit (for Rose) is $297. Which seems

> a

> > bit steep. For a new

> > patient visit it will be $341. If Dr. Ponseti

> > decides to cast Grant it will be

> > $448 for each leg. it would total up to over 1500

> > dollars.

> >

> > Is it worth a consult with Dr. Ponseti?? Grant

> has

> > so many issues besides the

> > clubfoot, and I'm starting to doubt whether I

> " need "

> > to have Dr. Ponseti look

> > at it or not. I know I WANT Dr. Ponseti to

> reassure

> > me that the treatment is

> > going well, but then I think what if he doesn't??

> > argh! Is the method

> > successful with spina bifida? am I going to have

> to

> > reassess my expectations of

> > clubfoot treatment for Grant? Dr. Koop does seem

> to

> > be having success, and I'm

> > quite pleased with the progress so far, but I have

> > my concerns and worries.

> >

> > In all of this I've been thinking how hard it is

> to

> > see a Ponseti doctor after

> > having seen Dr. Ponseti Himself. LOL

> >

> > We certainly can't afford to pay out of pocket. I

> > can't believe it's 300

> > dollars just to see Rose! We'll come up with

> > that, and possibly we can come

> > up with the other 350, but wow.

> >

> > Just needed to unload that.

> >

> > Joy

> >

> > Rose (1-99)

> >

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> > Iris (2-01)

> > Spencer (3-03)

> > Grant (9-05)

> > http://www.caringbridge.org/visit/grantphilip

> >

> >

> >

> >

> > __________________________________

> > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > http://mail.yahoo.com

> >

> >

> >

[Guest guest]

ee - Hey that offends me! Just kidding! I would

be really happy if you never *have* to meet either one

of us.

allison

--- number23 wrote:

> , don't take this the wrong way but frankly I

> hope we don't have any reason to meet you or Dr.

> Dobbs in St. Louis! ha ha..... If we do though, I'd

> be honored to have you as our guide! I actually

> went to St. Louis once as a child, I have vague

> memories of going up in the Arch and have tried many

> times to convince my dh to take us home from Iowa

> via St. Louis so I could see it again. Maybe one of

> these days, eh?

> s.

>

> Feeling stressed

> and

> > > not sure what to do

> > >

> > >

> > > I'm really not sure what I'm going to do now.

> Our

> > > insurance will not approve

> > > Grant (or Rose for that matter!) to be seen by

> Dr.

> > > Ponseti, so I will have to

> > > pay out of pocket. I heard back today, and I'm

> > > shocked! I don't think we can

> > > afford to pay out of pocket, so I'm not sure

> what

> > my

> > > next step is going to be.

> > >

> > > A returning visit (for Rose) is $297. Which

> seems

> > a

> > > bit steep. For a new

> > > patient visit it will be $341. If Dr. Ponseti

> > > decides to cast Grant it will be

> > > $448 for each leg. it would total up to over

> 1500

> > > dollars.

> > >

> > > Is it worth a consult with Dr. Ponseti?? Grant

> > has

> > > so many issues besides the

> > > clubfoot, and I'm starting to doubt whether I

> > " need "

> > > to have Dr. Ponseti look

> > > at it or not. I know I WANT Dr. Ponseti to

> > reassure

> > > me that the treatment is

> > > going well, but then I think what if he

> doesn't??

> > > argh! Is the method

> > > successful with spina bifida? am I going to have

> > to

> > > reassess my expectations of

> > > clubfoot treatment for Grant? Dr. Koop does

> seem

> > to

> > > be having success, and I'm

> > > quite pleased with the progress so far, but I

> have

> > > my concerns and worries.

> > >

> > > In all of this I've been thinking how hard it is

> > to

> > > see a Ponseti doctor after

> > > having seen Dr. Ponseti Himself. LOL

> > >

> > > We certainly can't afford to pay out of pocket.

> I

> > > can't believe it's 300

> > > dollars just to see Rose! We'll come up with

> > > that, and possibly we can come

> > > up with the other 350, but wow.

> > >

> > > Just needed to unload that.

> > >

> > > Joy

> > >

> > > Rose (1-99)

> > >

> >

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> > > Iris (2-01)

> > > Spencer (3-03)

> > > Grant (9-05)

> > > http://www.caringbridge.org/visit/grantphilip

> > >

> > >

> > >

> > >

> > > __________________________________

> > > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > > http://mail.yahoo.com

> > >

> > >

> > >

[Guest guest]

Hi there,

My name is Bri and I have a 3 year old ( 4 this month ) who has leftclubfoot.

We used to have a doctor back home who took care of him till he moved out of

state. Now we have moved and seeing a new doctor. I think it's because I am not

used to how other doctor's deal with clubfoot and got to used and trusting with

our old doctor, but i am not satisfied with what he has to say or how the visits

are. I read this little e-mail and saw that you are in St. Louis. I live in

Kansas City Kansas and am not to far. I would if you could get more info on Doc

Dr. Dobbs, or if anyone can tell me about Dr. Ponsetti ( sp ) I am close to

both. All I want is to get the proper treatment for my son and the beable to

walk out after the visit knowing that the doctor did good. I am used to

traveling ( had to back home for all of his doctors and my husbands ) so that is

not a problem. Also his doctor has said that he might want to do botox on him. I

have looked it up but don't see anything about the shot

and clubfoot. ( lol not that good at lookin up things I guess ). If someone

knows anything about this could you please give me some info on this?

Bri

number23 wrote:

, don't take this the wrong way but frankly I hope we don't have any

reason to meet you or Dr. Dobbs in St. Louis! ha ha..... If we do though, I'd

be honored to have you as our guide! I actually went to St. Louis once as a

child, I have vague memories of going up in the Arch and have tried many times

to convince my dh to take us home from Iowa via St. Louis so I could see it

again. Maybe one of these days, eh?

s.

Feeling stressed and

> > not sure what to do

> >

> >

> > I'm really not sure what I'm going to do now. Our

> > insurance will not approve

> > Grant (or Rose for that matter!) to be seen by Dr.

> > Ponseti, so I will have to

> > pay out of pocket. I heard back today, and I'm

> > shocked! I don't think we can

> > afford to pay out of pocket, so I'm not sure what

> my

> > next step is going to be.

> >

> > A returning visit (for Rose) is $297. Which seems

> a

> > bit steep. For a new

> > patient visit it will be $341. If Dr. Ponseti

> > decides to cast Grant it will be

> > $448 for each leg. it would total up to over 1500

> > dollars.

> >

> > Is it worth a consult with Dr. Ponseti?? Grant

> has

> > so many issues besides the

> > clubfoot, and I'm starting to doubt whether I

> " need "

> > to have Dr. Ponseti look

> > at it or not. I know I WANT Dr. Ponseti to

> reassure

> > me that the treatment is

> > going well, but then I think what if he doesn't??

> > argh! Is the method

> > successful with spina bifida? am I going to have

> to

> > reassess my expectations of

> > clubfoot treatment for Grant? Dr. Koop does seem

> to

> > be having success, and I'm

> > quite pleased with the progress so far, but I have

> > my concerns and worries.

> >

> > In all of this I've been thinking how hard it is

> to

> > see a Ponseti doctor after

> > having seen Dr. Ponseti Himself. LOL

> >

> > We certainly can't afford to pay out of pocket. I

> > can't believe it's 300

> > dollars just to see Rose! We'll come up with

> > that, and possibly we can come

> > up with the other 350, but wow.

> >

> > Just needed to unload that.

> >

> > Joy

> >

> > Rose (1-99)

> >

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> > Iris (2-01)

> > Spencer (3-03)

> > Grant (9-05)

> > http://www.caringbridge.org/visit/grantphilip

> >

> >

> >

> >

> > __________________________________

> > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > http://mail.yahoo.com

> >

> >

> >

[Guest guest]

Poor Bri, I can't imagine what you're going through. I wish I knew a doc to

suggest but I don't. Can your dh 's doctor look at your son knownig there is a

family link? As for the botox, some docs are experimenting with it but as far

as the Ponseti Method of treatment, botox is not part of that and shouldn't be

necessary.

s.

Feeling stressed

> > and

> > > > not sure what to do

> > > >

> > > >

> > > > I'm really not sure what I'm going to do now.

> > Our

> > > > insurance will not approve

> > > > Grant (or Rose for that matter!) to be seen by

> > Dr.

> > > > Ponseti, so I will have to

> > > > pay out of pocket. I heard back today, and

> I'm

> > > > shocked! I don't think we can

> > > > afford to pay out of pocket, so I'm not sure

> > what

>

=== message truncated ===

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com