RE: eye

[Guest guest]

Hi Darlene,

My left eye has been bothering me for some time. yesterday, I took off my glasses, I have multi focal, I felt as if my eye was "stuck in one p lace and I saw doublr vision. I rubbed it and closed it a few times and it took a while until things were normal, but it was a scare.

Pomy

To: Neurosarcoidosis From: arney@...Date: Mon, 10 Aug 2009 07:17:51 -0400Subject: Re: eye

Hi Pomy,

What symptoms did you have?? I do not have sarc in my eyes (at least not yet), but

I know several on the list have mentioned it. I am sure one or more will respond to you.

I am going to call my eye specialist and get an appointment as I am having sharp pains

in both of my eyes and that worries me. Are you having that?? Keep us posted.

Hugs,

Darlene

NS Co-Owner/Moderator

eye

Hi,Can someone write me how sarc started in their eyes, what the symptoms were etc? I hacd a very frightening experience this morning and I don't know what to do about it. Thanks, Pomy

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[Guest guest]

hi,

I want to thank all of you for replying . I wear multi focal glasses and I know if they aren't in place,it can cause blurriness. I took them off and I felt that my eye was stuck on the side and wouldn't move. Then I started to see double . I closed ,opened, and rubbed the eye a few times and it finally went back to normal. It was very scary, but I know the answer of my doctor, come back when and if it happens again.

My neurosarc started with floaters, but I was able to see, then after a few hours it completely covered my vision. I thought i was on a "trip" without taking anything!

Pomy

To: Neurosarcoidosis From: hmwalker9@...Date: Mon, 10 Aug 2009 18:44:58 -0700Subject: Re: eye

Hi everyone,

My diagnosis came aboutseveral years ago. I was driving to visist a client and I saw wavy black oily spots,which is called floaters.I thought my hair was in my face and I kept trying to remove it until I realized it wasn't my hair.Fear set in and I drove tomy eye doc.She diagnosised me eye sarcoidosis.I use steroid eye drops and see a eye special often .It can cause blindness if untreated.

HELEN

From: jackie <shadowme810 (AT) verizon (DOT) net>Subject: Re: eyeTo: Neurosarcoidosis Date: Monday, August 10, 2009, 11:33 AM

Hi all. I didn't start with the eye thingy but after seeing an eye doctor and getting new glasses I found I couldn't see out of my right eye. I called the eye doctor back and he said my God you were just in here.. I went to my neruo and he said it was a flair up. Gave me massive doses of prednisone along with something else. can't remember right now. After 3 days it cleared up and my vision was better than ever. That is my bout with the eyes. I do have a small cataract forming keeping watch on it.

Jackie

eye

Hi,Can someone write me how sarc started in their eyes, what the symptoms were etc? I hacd a very frightening experience this morning and I don't know what to do about it. Thanks, Pomy

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More than mail–Windows Live™ goes way beyond your inbox.

More than messages

[Guest guest]

>

>

> Hi,

>

> Can someone write me how sarc started in their eyes, what the symptoms were

etc? I hacd a very frightening experience this morning and I don't know what to

do about it.

>

>

>

> Thanks,

>

>

>

> Pomy

>

>

>

> _

Pomy, my neuro opthamologist distinguishes between eye sarc and neuro sarc which

affects the eye. He attributes effects to my right optic nerve to sarc; I see

him again tomorrow for tests and evaluation to determine if there's been any

change since my last visit in early June.

The neuro opthalmologist attributes symptoms like these to neuro sarc: blurred

vision (includes major episodes in which I am unable to see even large objects

like my 42 inch tv clearly), reading problems like reading a line and the eyes

jump one to 3 lines above and repeat the process over again. I've even had one

episode where I'd look at the curtains at one point and my eyes would roll to

the ceiling with no effort on my part and I couldn't control the activity.

I've experience floaters for many years but there are many more and of larger

sizes since sarc was diagnosed_spring of 2008. Like others I have dry eyes;

treatment includes Retasis morning and night and regular drops two times in

between. I'm not sure whether dry eyes and floaters are related to sarc. I'll

clarify that tomorrow.

How long did your episode last and what were the symptoms?

Take care.

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[Guest guest]

pOMY, USE THE ARTIFICIAL TEARS OFTEN. That will help. But also-- get this checked out, especially if you are light sensitive.

To: "Neurosarcoidosis " <neurosarcoidosis >Sent: Monday, August 10, 2009 10:26:16 PMSubject: RE: eye

Hi Darlene, My left eye has been bothering me for some time. yesterday, I took off my glasses, I have multi focal, I felt as if my eye was "stuck in one p lace and I saw doublr vision. I rubbed it and closed it a few times and it took a while until things were normal, but it was a scare. Pomy

To: Neurosarcoidosis@ yahoogroups. comFrom: arney@...Date: Mon, 10 Aug 2009 07:17:51 -0400Subject: Re: eye

Hi Pomy,

What symptoms did you have?? I do not have sarc in my eyes (at least not yet), but

I know several on the list have mentioned it. I am sure one or more will respond to you.

I am going to call my eye specialist and get an appointment as I am having sharp pains

in both of my eyes and that worries me. Are you having that?? Keep us posted.

Hugs,

Darlene

NS Co-Owner/Moderator

eye

Hi,Can someone write me how sarc started in their eyes, what the symptoms were etc? I hacd a very frightening experience this morning and I don't know what to do about it. Thanks, Pomy

check out the rest of the Windows Live™. More than mail–Windows Live™ goes way beyond your inbox. More than messages

[Guest guest]

Pomy, I've been asking the same thing. I just woke up one day about 3-4 weeks ago and my vision was 1/2 what it was the day before. Everything was a furry, fuzzy, blob. I went to the Opthalmologist, and all he could tell me was the eyes were ok, but "I was sick, so I didn't have the power to focus?". Then he tried to to give me a prescription for glasses twice the strength of my fairly new ones. I came home up'd my dose of prednisone (I don't recommend follow this action), prayed alot and in a few days my vision got better. You can hang a Florida opthamologist knowing what sarc is. My vision still isn't 100% but at least I'm driving legal now, and I don't have to wear a prescription pair and a 375 strength store pair to read my paperwork at work. Guys am I guessing right, did my sarc do this since it got

better. Connie

Subject: Re: eyeTo: Neurosarcoidosis Date: Monday, August 10, 2009, 8:57 AM

Pomy, Mine started with blurry, almost like a cloud formation in my eye. I had spots and there ws a dull achy pain around my orbit. This was treated with dropsfor quite some time. I was away at a quilt retreat though, and all of a sudden, I had incredible pain in my eye. It wouldnt go away. I had to patch my eye and drive home, luckily I wasnt too far away. Scared me, but went away after a few hours of drops and motrin. What's going on with yours?? If you're having a problem and your'e not sure what's wrong, get to an ophthamologist right away. Vision is too important to wait.Let me know how you are. Bonnie B eye

Hi,Can someone write me how sarc started in their eyes, what the symptoms were etc? I hacd a very frightening experience this morning and I don't know what to do about it. Thanks, Pomy

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[Guest guest]

Probably not-- but it could have been that your blood sugars where high and that can cause a sudden decrease in vision-- I'm fighting that one daily. Dry eyes can also majorally effect vision, as the cornea is 90% water, and if the surface is dry, it's like looking into a still lake, or looking into the same spot on the same lake when the water is moving. The reflection will be distorted if the water isn't "calm."

Hugs,

Tracie

To: Neurosarcoidosis Sent: Wednesday, August 12, 2009 7:31:15 PMSubject: Re: eye

Pomy, I've been asking the same thing. I just woke up one day about 3-4 weeks ago and my vision was 1/2 what it was the day before. Everything was a furry, fuzzy, blob. I went to the Opthalmologist, and all he could tell me was the eyes were ok, but "I was sick, so I didn't have the power to focus?". Then he tried to to give me a prescription for glasses twice the strength of my fairly new ones. I came home up'd my dose of prednisone (I don't recommend follow this action), prayed alot and in a few days my vision got better. You can hang a Florida opthamologist knowing what sarc is. My vision still isn't 100% but at least I'm driving legal now, and I don't have to wear a prescription pair and a 375 strength store pair to read my paperwork at work. Guys am I guessing right, did my sarc do this since it got better. Connie

From: quiltenbe (AT) aol (DOT) com <quiltenbe (AT) aol (DOT) com>Subject: Re: eyeTo: Neurosarcoidosis@ yahoogroups. comDate: Monday, August 10, 2009, 8:57 AM

Pomy, Mine started with blurry, almost like a cloud formation in my eye. I had spots and there ws a dull achy pain around my orbit. This was treated with dropsfor quite some time. I was away at a quilt retreat though, and all of a sudden, I had incredible pain in my eye. It wouldnt go away. I had to patch my eye and drive home, luckily I wasnt too far away. Scared me, but went away after a few hours of drops and motrin. What's going on with yours?? If you're having a problem and your'e not sure what's wrong, get to an ophthamologist right away. Vision is too important to wait.Let me know how you are. Bonnie B

eye

Hi,Can someone write me how sarc started in their eyes, what the symptoms were etc? I hacd a very frightening experience this morning and I don't know what to do about it. Thanks, Pomy

See all the ways you can stay connected to friends and family

[Guest guest]

I had something very similar to this. I had just gotten a new pair of glasses. I went home and my vision was worse. I called my eye dr. and told him what was going on. He just pushed it off on my being nuts. I went to the university of Wisconsin eye clinic, was examined and the neruo was called in. He took one look and said Sarc. Flare up. I was put on 3 days of prednisone (and something else can't remember) IV. My vision cleared after the 1st treatment and only got better after the others. I was then put on 40 mg of prednisone and reduced back down to my 5. Maybe the eye clinics of America should do some classes in Sarc.

That is my 4 cents.

Jackie

eye

Hi,Can someone write me how sarc started in their eyes, what the symptoms were etc? I hacd a very frightening experience this morning and I don't know what to do about it. Thanks, Pomy

See all the ways you can stay connected to friends and family